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UPSTATEKAREN Posts: 339
7/26/13 10:31 A

I have a son who is autistic and although you said the specialists have ruled out ASD we still share speech delays with our kids. Jessaelinn gave you very good advice about using pictures...many kids are "visual" learners and while the word may escape them the picture will elicit the desired motivation. I would start with a few simple ones such as drink, eat, bathroom, playground - things that are meaningful to your daughter and when she consistently touches the picture and tries to elicit a response from you have her attempt to say the word - praise/reward anything that even comes close to the word - and you must give her what she asks for ...you must honor her request because she's worked hard to give you an appropriate request. Once she's consistent with a few then expand as needed. My son has pictures of socks on his sock drawer and pj's on his pajama drawer so now I can send him to his room and say "get a pair of socks" and he does! label the fridge and the stove, tv and telephone and whenever you use the item repeat the name....it will come with time. I also have to wonder if you've had your daughter's hearing checked - it seems to me that perhaps she is only hearing part of the words around her and responding to what she think she hears? it's worth ruling out. Good luck to you - the biggest battle she has is already won - she has you for her mom/advocate.

LIVING4TODAY Posts: 197
7/26/13 12:17 A

Have they ruled out Verbal Apraxia? I have seen kids that sound a lot like your daughter and that seems to be their primary issue.

I think ASD looks a lot different in girls. There has been a lot of research on that lately. Our team has labeled several girls as ASD (schoolSS have different and sometimes stricter criterias than outside clinicians) and they all demonstrate shared interest with others and are somewhat social, although never really socially appropriate. They look much better socially when they are younger, but the older they get the more they struggle.

As a disclaimer, I am not suggesting or diagnosing your daughter with any of the above :) . Just sharing info. Hopefully you get some good answers with your upcoming testing. You sound like a wonderful advocate for your daughter. That is awesome. emoticon

Edited by: LIVING4TODAY at: 7/26/2013 (13:30)
LMRYAN2 Posts: 44
7/18/13 9:07 P

When my son was one, (he's WAY beyond in language expression) he would say things like that took, "blue, bite-bite." And when I had NO clue, I would say, "I don't understand what you're trying to say, show me." And he would then run to the freezer and pull out the popsicles, and I would say, "Oh! You want the popsicle?" And he would nod, and I would say, "we call this a popsicle." Can you say popsicle? And when he wouuldn't try it, I would say, "Look at my mouth while I say it." And then I would repeat it syllabically, and he would try it, and we'd work on it til he got it right. Now his vocab is ridiculous. He's two and yesterday he said, "Oh, I see the cart is available." At the grocery store. I think sometimes kids need help with the finesse of our language. But as a first grade teacher, I've seen kids with this problem before. So it's a good idea to get her tested. I hope you will find my strategy helpful.

JESSAELINN SparkPoints: (17,454)
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7/14/13 7:01 P

I've been studying child development for 15 years now, and have worked with a few children that do the same thing your daughter does. It sounds like she has a comprehension and verbal expression delay. She may know exactly what she wants to tell you, but can't formulate the sentences. Start with flash cards, pictures, since she can name them, it seems to work for her. Start with what already works for her. Make a book of pictures of things she is familiar with, thigns that expresses your daily activities. What does she usually want to do throughout the day? eat throughout the day? Play with? what is she usually angry about? Cut those pictures out, laminate them, make a book. Then, here's the tricky part. Instead of lashing out in anger, (which is what she is doing because she's angry she can't express what she needs) make it a requirement that she must show you from her book, then say at least one word that represents that picture or idea. Then she gets what she wants. Do that until it becomes relatively easy for her, until it's a habit. Then build on that. Of course, over time you should add more ideas and pictures, maybe including her in the scrapbooking process, then you can expound on it more fully. Also, use pictures of her as well. She'll relate to that activity and to herself much quicker. Then, once she consistently tells you with at least one word, then tell her you want her to say two words, and so on and so forth. You can also learn simple sign language, since visuals really do bridge the gap between verbal and visual communication.

Here's an idea of the kind of material you can find on sign language.
www.carecoursesbookstore.com/Book_SimpleSi
gning.html


Above all, don't give up! She's still young and is within that window of opportunity to be able to communicate effectively. If she gets beyond the age of 4 and has not progressed, it is time to look at other options. But the problem is, that window of opportunity can be missed, which can make it harder for her. Don't hesitate to get an Individual Education Plan doen through speech specialists and carry her through that process. The worste mistake that can be made is stopping that therapy and quitting too soon.

Good luck!

1MORETRI SparkPoints: (149)
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6/15/13 1:00 A

Thank you for replying and for sound advice. Best of luck with your children as well.

CRABBYTHING SparkPoints: (12,988)
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6/13/13 8:00 A

Good luck with the evaluation. I hope you get answers. You are doing the best for your daughter and as you go along you will learn more and more about how to help her. Don't forget to take care of yourself as well during this time. I forgot that and my whole life became about the negative stuff, I completely forgot about all the stuff that makes me happy. Take care of yourself so you have more to give to them (or you just end up with nothing left to help with)

We are finally done the search with my son and are now working on getting answers for my daughter.

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6/11/13 9:44 P

We are taking her to get an evaluation in Cincinnati to determine what is going on with her. And it has been suggested we start her in school this year.
For the last 4 days she has kept saying to me "blue bite-bite". I had no idea what she meant by blue bite-bite. Then today I realized that she meant the blue freezer pops. But that's how she told me what she wanted. When I got her what she wanted she was so happy and said "Yes! Yes, mommy"! She really tries...
I just want to do the best for her. I feel like I should be doing more at home to teach her but I'm at a loss of how and what.

TRINITYROYAL Posts: 2,399
6/11/13 1:34 P

You can't really rule out the autism spectrum when a child is that young. Not all people with autism are non-social, and many people with autism can make eye contact. These are traditional markers, but they're not universal by any means.

Has your daughter had a neuropsychological evaluation? That might help to identify or rule out autism spectrum issues or other neurological trouble.

A few other things to look at are language processing problems. Your daugher might have verbal or non-verbal learning disorders, an auditory processing issue, or something else.

Trying to get a diagnosis can be an exhausting process, and it can take years. Don't give up. You know your child best, keep looking until you find a doc who can help you pinpoint the issues.

1MORETRI SparkPoints: (149)
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6/9/13 9:14 P

Thanks for the reply. I wish I could describe her better. She has no issues socially. People that don't know her just think she's quiet. She acts completely normal but her language and understanding is probably a year behind. I had issues keeping my amniotic fluid up at the end of my pregnancy. I wonder if that had something to do with it.

CRABBYTHING SparkPoints: (12,988)
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6/9/13 5:26 P

My kids are a bit older. My 8 year old has a global developmental delay and ADHD, as well as signs of Autism. My daughter may be aspergers and ADD. It was hard for us to get a diagnosis. We went through 12 doctors/therapists and are finally getting help. You keep fighting until you feel like you are being heard.
My son is sort of social, looks at some people, not at others. He looks through most people. He is very touchy feely and will pet you while he talks to you. I was told there are two extremes to Autism, those who are very introverted and those who are in your face.
What I have found out is that there are a lot of parents out there that have children with issues of some sort, so you are never alone.

1MORETRI SparkPoints: (149)
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6/7/13 5:48 P

It's hard to describe I guess. I also have a teenager so I've been through this once and although I know I'm not supposed to compare children, she's nowhere near where he was at that age.
She still has that jibber jabber language sometimes. It's hard for her to explain what she wants sometimes. Like when she gets upset, no matter what time of day it is or no matter what we are doing, she will say "night nights!" This is her go to phrase in any frustrating situation shes in.

The program we were in recommended putting her in school at 3 which we will do after her evaluation. I was kind of hoping to meet someone on here that worked with kids like her or was in a similar situation as we are. She doesn't fit into any category to say she has a specific disorder but she clearly has some issues.

Thanks for the reply!


2UNHEALTHY Posts: 2,231
6/7/13 3:16 A

The example you have provided seems a bit more like the normal response most three year olds give...they generally have a short attention span and don't begin listening when we begin speaking so she may be missing the first part of the question and simply hear "are you eating?" to which she replies "yes"...my son, also three, generally responds without completely listening and then I rephrase the question and elicit the appropriate response.

All children develop at different intervals...the 'milestones' are merely guidelines but by no means written in stone. The way you describe her she seems like a happy healthy three year old...you may need to provide more information in areas you feel she is behind to truly get some relevant advice.



1MORETRI SparkPoints: (149)
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6/6/13 8:26 P

My daughter is 3 and is pretty behind for a 3 year old. She took speech therapy until she aged out of it at 3. We are supposed to go to Cincinnati to have her evaluated because nobody can really say what's wrong with her.
They've pretty much ruled out autism because she's very social, she loves people and other children. She makes eye contact, she is very loving, gives hugs and kisses, but she is far behind for a 3 year old.
Here's an example of what I mean: I can show her a new book that she's never seen with pictures and she can name everything in the pictures. But then if I say, "What are you eating?" she will reply, "Yes!"
But then if she sees something that she can't get to she'll look at me and say, "Mommy, I can't reach!" She knows shapes, even knows what a hexagon is. She knows all her colors, she can count to 20, she plays pretend with her dishes and dolls, there's so much she can do so I have hope but then there's so much she can't and should be able to do.
If anybody can offer some advice that's familiar with this kind of thing I'd be happy to hear it.

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