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ATRYEU SparkPoints: (2,997)
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5/26/12 3:07 P

Thank you! I will look forward to the response.

AILEBBELIA SparkPoints: (13,410)
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5/26/12 2:20 P

I will respond later on how I handled that situation later on tonight in your personal blog. I'm heading out.

hugs


ATRYEU SparkPoints: (2,997)
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5/26/12 2:09 P

No, I've never heard of that place before. I tried the local, county and state assistance places and none could help. A lot of the problem is that I'm fully dependent on my parents still and they say I don't qualify because they "make too much money". It's not very fair that they keep looking at my parents and not myself since I'm applying for me, alone and I just live here because I have no other options for now :(

Thanks for the link. I will look at it tonight and see if it's something I can give a try :)

AILEBBELIA SparkPoints: (13,410)
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5/26/12 1:41 P

I have a lot of health problems too and I was feeling really overwhelmed paying for my medications.

Have you applied for assistance with meds through AstraZeneca?

If you aren't working and don't have insurance they might be able to help with meds.


I applied and have been able to get help. The application requires documentation explaining hardship. I typed a letter explaining my past struggles and how getting the meds will help me etc...and my doctor faxed the application packet.

Good Luck

Here's the link with the info and list of meds:
astrazeneca-us.com/help-affording-your-med
icines/prescription-saving-program/


ATRYEU SparkPoints: (2,997)
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5/26/12 1:04 A

Anarie: I'm 100% sure it is not fear. I know the difference there and I know when I'm afraid of something I'm allergic to and the reaction I get from that. If I start thinking something new I'm trying might bother me and I have to do my taste tests to make sure, even with nothing I'm allergic to and no allergen warnings to look out for, it can trigger a response just like if I had gotten something I really am allergic to. The first symptons are itching of the tongue and throat and if I start to feel anything like that I don't touch it anymore, immediatly get my mouth well washed out and make sure nothing worsens. The actual allergy gets followed by severe hive break outs and anphalxis (not sure how to spell that LoL) which becomes deadly within minutes. I don't get cramps in my stomach from the diary, it's itching, heat from the hives and a fever, lack of air and the feeling of getting ready to pass out. Besides, if it were "fear", I'd be in some big trouble due to a particular person I'm forced to live in the same house with who's a complete slob and I'm afraid for my life to just leave my room. I can't touch anything I'm allergic to without triggering a reaction too and they don't care. I'd be in pain constantly if it were just fear because of the thought of accidently touching something that had something I am allergic to on previously.

I know the adrenaline rush well too (I used to do a lot of things, such as skydiving, for my birthdays because I liked that rush). I've never experienced cramps with it either though. I'm sad to say I've had a panic attack too a few years ago due to the loss of my companion. I do remember some of those symptons plus the light headedness, but I don't remember ever having the cramps.

I'm certain this is an actual reaction to the food. It only happens when I eat these specific foods. I don't get the cramps at any other time and never have had them before that I can remember until those specific foods started causing me trouble.

I can also promise you that if I tried to ride 20 miles on a bicycle I'd be dead before I even got to 5 due to my asthma, and there's no way in hell I would ever attempt it. Town is around 500ft above sea level, I'm over 1000ft. I don't know anybody who would make it back up this mountain on a bike and I can't even imagine anybody doing it on foot. It's "steep" and it would be suicide either way because it's so narrow with a lot of blind corners. There is wildlife to worry about too. We have a lot of bears and a cougar out here and it's not safe to go wandering around away from any houses unarmed.

I want out of this living situation something awful, I can tell you that, but at this time I have no option. My only chance is by vehicle and nobody will help teach me to drive, but that's a whole nother issue that I don't want to get into.

ANARIE Posts: 12,436
5/26/12 12:24 A

Honestly, my guess is that it's fear. Subconsciously, you're afraid things have dairy in them, so you get basically a panic attack. Some people's panic attacks affect their breathing or heart rate, some people faint, and others get stomach cramps. All of those things are adrenaline reactions.

I don't know what you can do about it, except getting out of your living situation.That may seem impossible, but I'll point out that 20 miles is an hour and a half on a bicycle.

ATRYEU SparkPoints: (2,997)
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5/26/12 12:09 A

Thank you for the link Heather. I've never heard of the site before but it looks sort of what I'm looking for, and best of all it isn't a problem for dialup.... yet....

Thanks for understanding, too. I've tried so hard the last 9 years to find health care help but I'm always denied because of the stupidest reasons (if they even provide one). :( I know there are people much worse off than myself but it's sure not fair that people with serious existing health issues can't get help. My single asthma medication is up to $200/month and it's getting too expensive for my parents to keep paying for. We can't even afford the epi-pens for my allergies anymore so I'm in very serious trouble if I end up with an allergic reaction and can't get it under control :(

I understand the whole issue about not being able to provide medical advice here or elsewhere (I have never asked for medical advice online because I know legally it can't be provided) and I have a whole world of problems that I do intend on getting checked out the very minute I do ever get insurance.

I just want to try and get an idea of what could be going on with the foods, and if there is something they have in common it's a start, if not it's back to the drawing board. I just don't know of any other way to start figuring thing out. I do know I can't do the fishy stuff and I know that Omega stuff comes largely from fish and I have seen information about eggs and such having the same thing so it made me wonder if there is a link between these foods. If there is, it might help me to stay away from things easier that do hurt my stomach until I can maybe someday see a doctor about it again. I personally find it a better idea to try and get an idea of what is going on than to just sit round and wait for the next food to come along and cause me troubles :(

Thank you again for that link. It's a start and I will compare and figure the next step from there.

DRAGONCHILDE SparkPoints: (57,014)
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5/25/12 11:31 P

All of those foods are readily available in the USDA food database.

ndb.nal.usda.gov/

I'd suggest your search there. Unfortunately, without a medical examination, I think it's unlikely you'll be able to guess the cause of the problems. It may have nothing to do with the nutritional content of the foods themselves, or it may be something else unrelated to the types of foods in question. There may be no relation at all.

Good luck with your quest, and I hope you find the answers you need. As someone who has gone a very long time with no insurance myself, I understand the frustration.

ATRYEU SparkPoints: (2,997)
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5/25/12 11:13 P

The deadly allergy is to dairy & dairy bi-products. It has been a known issue since I was 6mo old. I have spent a large portion of my life in the hospital in the past due to companies not clearly listing allergens on the labels or the fact that their foods are made in places that also do the dairy. It has been 10-15 years since I last had to go to the hospital over it, and it was due to my "non dairy" ice cream that suddenly decided to make dairy products in their company and not list it on their boxes until after we contacted them over the problems :(

All of the types of beef that I used to eat have started hurting my stomach and I completely avoid it now. I have never had food poisoning before in my entire life (makes it easier when I can't eat anywhere but home due to my dairy allergy). I wouldn't know what would be bad that happened though around any of those. The first time with the seafood was with my aunt at her house after coming home from a movie. First time with beef was here at home while we BBQd on my birthday (I remember because I spent a few hours in pain for my birthday *cries*). The steak was here at home as well, cooked on the stove (both times with the meat they were overcooked a bit since it's the only way I could ever stand to eat them in the first place LoL). Same with chicken, it was here with our home raised chicken... Eggs were the same too. I used to eat scrambled eggs & hash browns for dinner a lot and it suddenly started hurting my stomach Same with the pork, just a few months ago. Each time, except for the once with my aunt, I ate alone in my bedroom just like I've done every day for the last 12-13yrs or so (forget which year we moved to this house). I've never had anything bad happen, other than a bit of food trying to jump away onto the floor or something LoL

Medical help is not possible for me, like I said. There is 1 doctor office in the area and my last visit was 6 or 7 years ago for an emergency with my asthma. The appointment was almost $300 total ($100 alone just for the visit and the rest for the medication and treatment). The only other "local" place (which is over 30 miles away) requires special insurance which I don't have anymore after I turned 18. There are no free places around here to go, there are no offices with sliding plans anymore (the local one used to be until PeaceHealth took over and they destroyed anybody's chance to afford going anymore). I have no transportation to get my anywhere. I live over 20 miles from town, no license, stuck at home in a very rural area with parents that both work full time. I have no local friends to help me and the only other local family is my uncle who is bed ridden with MS. The state's Basic Health plan is not accepting new members because the government is trying to get rid of it rather than taking a pay cut themselves to solve the money problems. I don't know any tv show doctors. I have 1 local tv channel with nothing but reality/game show junk on half the day and paid programming the rest. I'm on dialup and search engines I know of no longer work on my connection speed so I can't go searching around for 'tv doctors" :(

I understand there are different types of proteins and such. I never said this was an allergy, I just said it's causing stomach cramps. I don't think it's an allergy the way it acts, considering I have had food allergies my entire life and know the symptoms. I just want the nutritional information for the foods listed so I can then try and figure things out myself. If I wanted medical advice or information I would have went elsewhere. If nobody either can or is willing to provide the nutritional information, that's fine. I'd rather have a straight answer than to have people keep telling me to seek medical advice when I'm not asking for it and it is impossible for me at this time.

ANARIE Posts: 12,436
5/25/12 10:42 P

You're not going to get the answer you want here because that's the type of thing that allergists study for many years and spend a few hundred thousand dollars in tuition to learn. You can't just say, "it's not protein," because there are many hundreds of proteins. Virtually every allergy is an allergy to some specific type of protein-- hay fever is a reaction to the specific proteins in certain types of pollen, for example. Mushrooms have proteins in their cell walls that are the same as some of the proteins in shrimp shells, but you'll need a biochemist or allergist to figure out which one.

But that wouldn't explain why you react to some types of beef and not others, and you're okay with eggs when they don't look/taste like eggs, etc. The way it's expanding makes it sound more like a learned reaction and not an allergy at all. That happens sometimes; if you get food poisoning or just have something bad happen to you around the time you eat a food, your body blames the food, so when you encounter it again it sets up an auto-immune response just like an allergy. But that doesn't prevent the upset from happening again, so the body starts blaming other foods with similar smells or tastes, and it mushrooms from there. You didn't mention what your actual known allergy is, but you describe it as "deadly," so that leads one to believe that you had a close call with it at some point. Your body might now be over-protecting you against anything even vaguely similar to it-- and the similarity could be something you're not consciously aware of, like color or temperature or the position you're sitting in when you eat it.

There's just no way that you're going to resolve this without medical help. Look for free clinics, see if a teaching hospital will take you as a mystery patient for their students, write to TV doctor shows, go to Mexico, sneak into Canada-- whatever it takes.

ATRYEU SparkPoints: (2,997)
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5/25/12 9:26 P

I am not asking for medical advice, I asked what those foods have in common. There is something in those specific foods that is causing problems for me. I keep getting told anywhere I have asked about this that it's medical advice, but I'm asking what ties the foods together besides protein.... There is something that I obviously need to avoid and I am trying to figure out what it is. :(

I can't go to a doctor about it... I have no insurance, no money, and no income (not to mention no transportation and I live in a rural area). I had asked about the seafood a long time ago before I turned 18 and was taken off my parent's insurance and they said I needed to see an allergy specialist to try and figure it out. We did that several times when I was very little, trying to figure out my deadly allergies, and it was an absolute waste of money since it wasn't covered on the insurance and they didn't tell us a single thing we didn't already know. I'm not asking for medical advice or help, I posted in the diet & nutrition hoping somebody could tell me what vitamins/minerals/etc these shared in common so I can start an elimination process.

No, other foods don't bother me. I tend to eat mostly veggies and the only one I've ever had trouble with are mushrooms. I eat a large amount of tomatoes every week and I have a glass of orange juice several times a week as well with no problems.

The Pepcid I would only take once every week or two, when we would eat those sort of foods. I'm not fond of meat to begin with so I don't eat it much, only when there is nothing else in the house for me to choose from for dinners. It was not a prescription obviously, but when I first started having problems I was told by a doctor to try and see if it helped, and it did until this last year.

DRAGONCHILDE SparkPoints: (57,014)
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5/25/12 9:16 P

There is, unfortunately, no way for us to really help you with this. Because we don't know your personal medical history, we can't really advise you on medical problems. I know that's not the answer you were hoping for, but we can't really give medical advice here.

www.sparkpeople.com/community/ask_the_expe
rts.asp?q=89


This expert's question has links to some resources that may help you find the access you need, beause if you're having issues like that, you really do need to see a doctor.

AILEBBELIA SparkPoints: (13,410)
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5/25/12 9:11 P

Could you have gastritis or an ulcer? Stomach cramps occur with that too...

Do you feel fine when you eat/drink acidic foods like oranges, tomatoes?

It is also not a good idea to take acid reducers if they aren't prescribed. Have you read about the effects of long term use...

Have you checked to see if your town has a reduced clinic?

ATRYEU SparkPoints: (2,997)
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Posts: 202
5/25/12 8:30 P

Hey everybody! I thought I'd try and ask here and see if anybody has a clue what could be going on here.... In addition to my regular deadly food allergy, I've had a lot of problems with other foods causing mild to severe cramping in my stomach. The list has slowly grown over the years and I'm trying to figure out what ties these foods together to be causing the problems. I don't have insurance to go to a doctor or specialist and just want to get an idea about what is going on LoL Something ties these foods together and I put them in the order that they started bothering me:

* Seafood (this started first more than 10yrs ago.. started with shrimp and then with things like the seaweeds and such)

* Fish (started a couple years later)

* Mushrooms (any kind, started within the last 5-10yrs)

* Eggs (if they are mixed into something like a cake it's fine but anything else hurts, and it seems it's mostly the whites and not the yolk, within the last 5yrs)

* Beef (about 5yrs ago... usually did organic burger, and then 2-4yrs ago it started with the 1 steak I like to eat which didn't bother me before like burger did, this happened after)

* Chicken & Turkey (started within the last 2yrs or so)

* Pork (started a few months ago)

I know it's not what it's actually used for, but the Pepcid AC used to help take away the cramps or eliminate them completely but it stopped helping about a year or so ago :(

Any ideas what tie those foods together? We eliminated protein since I eat/drink a lot of other things (almonds especially) that don't bother me like this. It would be nice to be prepared for anything else down the line that may start doing this. Between my actual deadly food allergies that are way too common, and now this problem, I'm really running out of foods I can eat without problems :(

Thanks in advance!
- Jen


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