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  • v JUSTYNA7
    Hey I have been thinking of you this morning. Hope all is well today. I know... that is such a silly thing to say. I wish I could be there to hug you my dear friend. I hear the frustration and the tiredness and the "not wanting to be a bother" and wanting someone to look after you. All those feelings are totally legitimate. I wonder.... is there some kind of palliative care program around? It's a terrible word I know, but it is time you start living your life and they might be able to help... in a backwards way. Help with appointments or help with some home care? Meals? It seems like a chain reaction of events going on and all focused on surviving new diagnoses and I wonder if a different point of view might help.... so you are focusing on what things you want to do while alive. So many people don't want to talk about it. What's the worse that happens? You get better? I found working in Palliative care very rewarding. And we were there for the families as well as the clients. There is something called spoon theory. You only have so many spoons to get through the day so you have to decide what you are going to do and what others can do for you so that you are truly doing the things that are important to you. Hugs, squeezes, and a few tears in sympathetic support. Justyna
    15 hours ago

    Comment edited on: 7/25/2017 7:49:45 AM
    Glad to hear it. Enjoy your weekend when it comes. emoticon
    4 days ago
  • v JUSTYNA7
    My biggest wish for you is to have someone come and pamper you and hubby for a while. Look after the food and cleaning etc. and just let you read, play cards, catch up on friends. I feel your exhaustion and I am amazed at the glimpses of positive attitude. You are such an incredible person. I know I know... what choice do you have? Well I've met my share of grumpy mean abusive people. I get why they are like that... but what is the point? That said, we are allowed to be mad and bitch and gripe when things are bad. I can only say that moving is the best thing for ME but rest is too. It is a relief to be able to sit and as you said, rest without guilt. You are ill. Do what you have to do. Ask for help. Enjoy the small things. I'm sorry I am not here much for you right now. I'm hoping by fall to be on here regularly. I am walking with my neighbour again and it is lovely.
    5 days ago
    hi i live in enfield ct not to far from talcott mountain ,Did you husband every deliver or pick up goods at Hallmark cards at manning or bacon road in enfield ct we used to get deliveries from yellow frieght all the time, small world. hope today is a good day for you
    20 days ago
  • v JUSTYNA7
    Oh me too. I have 2 big "shadows" lurking. At some point they will be frogs but right now there is nothing I can do. I spent a while worrying about them but now I've moved on and will just try and live in today. You know, everything can change on a dime. Things I worried about never came to fruition because we changed directions. When the time comes you will deal with these things the best you can.. .and ave my permission to "file" them for now. Do something good for yourself! emoticon emoticon emoticon
    91 days ago
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