ONBEACHSIDE   53,401
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July 2012, after pedicle subtraction osteotomy. Before cane, now I can't sit or use a cane.





Using the cane in July 2012, improving until December when severe adhesive arachnoiditis hit me.





Life was good. I did what I wanted on 4-6 Darvocet / day. Now 23 hours I am laying down out of 24.



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The pain of bone cancer without the prospect of imminent death.

I used to worry and feel that being thin was the MOST important issue in my life. I worked hard to get thin and fit exercising two to three hours daily. That amount of exercising allowed me to eat 2300-2700 calories daily and I still lost 30 lbs.
In one afternoon, at PT, I overpowered my pelvis and lost by bodies coping mechanism to walk. It changed my life FULLY and has changed my priorities. Now my goal is to have some life. I currently can't do daily life activities. I awaken at ...
I used to worry and feel that being thin was the MOST important issue in my life. I worked hard to get thin and fit exercising two to three hours daily. That amount of exercising allowed me to eat 2300-2700 calories daily and I still lost 30 lbs.
In one afternoon, at PT, I overpowered my pelvis and lost by bodies coping mechanism to walk. It changed my life FULLY and has changed my priorities. Now my goal is to have some life. I currently can't do daily life activities. I awaken at 11-11:30 am, it takes me 20 min to get dressed, comb my hair and brush my teeth, after that I go on a 0.3 mile walk with my Dad which takes 30 minutes. That activity is all I can manage in any day. I am told it will never get better.The rest of the day is either laying on the sofa or sleeping on the bed. Most nights I can't sleep until 3-4am. And it starts all over again.
I initially gained 13 lbs back. I cut my caloric intake down to 1500 calories. This is a struggle, but I haven't gained anymore. I need to cut 100 cal. more but I don't know that I can since food is the only enjoyable thing left in my life and that is not getting much fun food.
UPDATE: February 2014: I have been diagnosed by two doctors, one of which is the only doctor to have written two medical texts for doctors on the disease,with severe adhesive arachnoiditis. One doctor is quoted as saying, "it has the pain of bone cancer without the prospect of an imminent death." I am doing palliative care. The liquid morphine has helped with the pain in addition to my other narcotics. I also have been on all sorts of hormones as the pain strained my adrenal glands and several other hormone manufacturing in the body. They have brought up the hormone level. My life remains at 22-23 hours lying down in a day. I can walk 0.3 miles in 30 minutes. That is all my body can take and my arms carry a lot of the walking on the walker. This is my so called life.
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Member Since: 3/11/2011

SparkPoints: 53,401

Fitness Minutes: 30,501

My Goals:
To lose 3-8 pounds
Get my parents to go on a date without me
To find fun activities.

I have been part of SP since 17 March 2006. I went. By attheinlet back then when my health took a serious downturn so did my feelings. And you know the saying if you have nothing nice to say, well I was in a bad frame of mind and didn't want to pass it on so I changed my name to onbeachside and just used the trackers and kept up with only a couple folks while I figured out were life was taking me.

My Program:
Since major surgery, I have had to change goals. I wish I would lose about ten pounds but I don't see it happening.

My physical activity involves a morning 30 min walk and stretches 3 times a day to prevent muscle contractures. That s what my body can only do now.

When I joined SP a few years ago as attheinlet I was burning 3700 calories a week, so this is tough not getting to eat what I want.

Personal Information:
I am a 48 single woman with serious back and pain issues. I can walk 20-25 minutes I can't stand sitting due to increasing pain.
Life is...
...and the beat goes on!

Other Information:
I had serious life and death surgery 23 January 2012. I have come back to walk .34 miles in 30 minutes.

It is hard to be happy to be alive when you can't do anything without the severe pain being just controlled doing nothing with high narcotics. Just knowing that the littlest extra thing will make the pain uncontrollable which means I am trapped in this life until I die.

I am only alive thanks to parents as I can't stand to cook, sit to drive, stand to shower. I am very dependent on them and believe me, it is NOT my choice.

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Member Comments:
MAGA99
1/17/2014 10:04:15 PM

emoticon
for your encouragement and support
I appreciated your response to my blog



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DAISY443
1/1/2014 8:00:19 PM

Kimberly, you know how much the Goodie means to me. I will be OK, just have to work through the sadness. You are such a special friend, thank you!



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JAE_HENNINGTON1
11/2/2013 11:12:34 PM

I hope things are doing better for you

Comment edited on: 11/2/2013 11:14:16 PM

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DIANEDOESSMILES
10/30/2013 2:45:06 AM

HI Kimberly !! WOW ur life is not an easy one !! I can sit up, but if I do for long,, some days 20 mins, other days 1 hr and 40 mins, though those are RARE TIMES !! Today a few friends came over,, at diff times. I was sitting up for about 30 mins, the pain is still about 14 hrs later very, very bad,, I am on a high narc,, it DOES help "normally" but tonight, I can barely breathe, for the pain hurts to muchers. Oh well,, tomorrow will be TOMORROW !! Maybe it'll be less. I'll LOOK FORWARD to this,, and keep UP my HOPES !!!

Hon, I do MOST of my exercises laying down,, since sitting hurts so muchers,, and standing is almost impossible, though I AM learning to WALK AGAIN !! Mon I was able to, but today (Tues) NOPPERS !!! Oh that's FINE,, for I WILL AGAIN !!!

The ones I do laying down,, one that helps me the MOST,, is laying in a VERY COMFY position,, and tightening my core, buttocks and legs,, and than releasing them quickly,,, any more of than that on holding,, I am in BIG TROUBLE !!! I do this over and over again, but first started out at 5 mins at a time,, I've now built it up to over an hr now, but it's been 3 yrs. :) I DO count it, as my PT said it's very good for me,,and makes it so that I can stand/walk as the little I do. Inside I do my BESt to walk,,, unless I've just had a surg,, Nov 19th is the next one,,, my 17th on feet.

Another one I do,,, is to lay in a COMFY position on my back,, tighten my core,,, and do the TINEST marches with my knees up. That does NOT happen every day,, and I only do 10 of those. I do NOT hold my core, for any time,, since that GR8ly adds to the pain in my back.

Also I NEED to keep my neck moving,, so that it doesn't go forward more than it does,,, bad scolosis,,, though it's been HELPED !! but, my head tends to POINt out quite a bit. So just doing gentle rolls, also helps. I've checked with a leader of a team I am on,, well I am the challenge Leader,, of the Spirited Under Dawgs, but the ones who run the 5% challenge, and they allow me to do these, whereas they'd NEVER Allow this from someone who does NOT have a very limited amount of exercise. :) So yeah,, COUNT THAT TIME !! it IS a workout FOR YOU !!

I'ts very nice to meet ya !!



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DIANEDOESSMILES
10/29/2013 12:34:28 AM

I am so sorry hon,, that things are Not easy for you. What's going on with the walking? Are you able to do much if any?

Have you see in the "Losing and Disabled" team,,, we have an ENTIRE list of Exercises for chair exercise? You just need to look around a little,,, it's behind the front page,, but there are well over,,, 15 of them centrally located. We worked HARD to make it easier for those on the team. :)

Did you get any help in CO? I had moved out there for medical issues. My scolosis was VERY BAD,,, about a 30% bending frontwards,,,, after seeing a MOST TERRIFIC Chiro,, who just happen to live in the neighborhood I did,,,, now has me about a 7% bendover. NOT BAD AT ALL !! They ALSO sent me a note when I got home,, from the Hosp I went to for neurological problems,, that they think I have chaivi (SP?) disease,,, caused from birth. We've NEVER been able to tell why my eyes/hearing are bad,, and why it is, I've had headaches, ever since I was 12,,,, I am kinda of "just used to them now" well as much as can be. Also explains the NUMBNESS through OUT my body. COOL HUH?

Do you like FL better than CO? It's WARMER at least. I came back to Maine,,, and BELIEVE ME !! it's NOT WARM AT ALL !! And CLOUDY /RAINY days to the MAX !!

HUGS !!



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