Tuesday, March 25, 2014
And, after over 20 blood tests; 1 visit to doctor; 1 visit to specialist; 1 very long phone conversation with doctor.............I AM FINE!!! I got an email from rheumatologist this morning telling me everything was negative. My lab results are posted to my medical website so I already knew that the tests where I had a point of reference were normal. I am a very happy girl. Not necessarily because I now know I have NO autoimmune disease (they tested for everything), my liver is good as is my gallbladder, but because I do not have to schedule a doctor visit or lab visit! WooHoo!!
Thank you for all of your support and prayers. I can't tell you how much I appreciate it!
Now, to get on with my healthy life!
Friday, March 21, 2014
I met with the rheumatologist today. She was very nice, seemed to know her stuff and appeared to be 18!! LOL!! We reviewed my history and all of the blood work done so far. She sincerely doubts that I have lupus. But, she did want to do more blood work to check for more obscure autoimmune diseases. She said that, as a specialist, she feels driven to make sure there is NOTHING there! I have dry eye syndrome and that could be related to Sjogren's Syndrome and I had 4 miscarriages which could indicate some autoimmune disease that effects blood clotting BUT I've never had a blood clot. I did have lots of fertility issues and received hormone injections to carry the 2 children I have. But, I agreed that since I'd come this far we may as well finish it up. I went to lab and had 10 (yes, TEN) vials of blood drawn. I've given about 30 vials of blood this month!!! YIKES! Thank goodness all but one have come back negative.
She did say that 5% of the general population will test positive on this ANA test. I had an aunt with lupus and have a cousin with MS so I would have an even higher chance of being a "carrier" with no symptoms. She thinks this is probably what's going on since "they've" been trying to give me this diagnosis and, after 30 years, I still show no solid, consistent symptoms.
To be continued.............
Tuesday, March 18, 2014
So I did talk to the doctor on Monday. However, it only happened following much confusion but whatever. We had a very long talk (40 minutes), got the air cleared, although she was extremely apologetic so I didn't have to say much. She kept going on and on about how awful she felt. She explained the communication breakdown and we talked about the lab results. Discovered that the last ANA test (2011) was also mild positive but dermatologist interpreted it as negative. This ANA shows the very same numbers but my doctor and the rheumatologist interpret is as positive. So, bottom line is that probably nothing significant has changed healthwise. I went today for more blood work for rheumatologist and will see the rheumatologist Friday morning at 11:00. Hopefully, I can get some answers and we can figure this out.
I've worked out Monday and Tuesday; so far no chest pain on either side.
Saturday, March 15, 2014
I'm definitely back on the roller coaster of life. What a couple of weeks (month?) it has been. As of my last blog, I was increasing weights and reps; doing great and feeling good. Uh-oh. Chest pain rears it's ugly head. No, not heart related but it felt like pulled muscles. On right side of chest, that achy pulled muscle feeling that, when you move a certain way, reminds you it's there. Ouch. On the left side of chest (actually on top rib) a burning sensation. It would wake me in the night if I moved from curled up position to stretch or roll over. Big ouch. During the day this pain was rare.
OK, so I pulled muscles. I will back off on routine. First, I eliminated the exercises that I thought may have caused the problem. Not better. Then I reduced the weights. Not better. Ibuprofen seemed to help a bit as did heat. But those pain issues just kept nagging at me. One day, nothing and the next it was back. Maybe the pain would be better but the burning would be there or the other way around. Just couldn't kick it. Tried Prilosec thinking that burning may be heartburn. No help.
I finally gave in and made appointment to see my doctor. My doctor had left so this is actually a new doctor to me. I liked her. She was VERY thorough. Lots of questions, thorough exam. She even apologized to ME for taking so much of my time! The only thing that bothered me was she seemed to tweak my responses.
Example: Dr. "joint pain?" Me: "no". Later in conversation; Dr. "so when do you experience the joint pain?" I had made a comment that some mornings I'm stiff when I get out of bed but it quickly goes away. This piece of info seemed very significant to her and she immediately was talking red flag, etc. I'm thinking "I'm 63 years old! Of course, I'm stiff!" So there were a few concerning issues during my visit. She decided to do blood work (checking for autoimmune issues) and a chest x-ray in case there was hairline fracture.
Now, many of you who know me may remember that 2 years ago I went through the same thing. My doctor thought I may have lupus so I had blood work. It was negative. I went to dermatologist who also thought I had lupus so she ordered a different blood test. ANA, supposed to be gold standard to test for autoimmune issues. It came back negative. WHEW!
30 years ago I was diagnosed with lupus. Medicine had not come this far and it was many tests and specialists later that it was declared a misdiagnosis. Are you seeing a pattern yet?
Back to the present. Doctor posts my test results on my medical page and they are all well within normal range. Whew! Doctor calls me--we talk a long time about each test and possible causes for the pain. (I'm convinced pulled muscles that I'm not "fixing"). We are both pleased at the negative outcome of tests. She asks for more bloodwork. OK, I reluctantly head to lab and give more blood.
The next afternoon I get a call from rheumatology saying my doctor had sent a referral for me to be seen. I questioned that and I was told that I had an abnormal test result and joint pain was indicated. I was not happy, I explained test results were normal, etc. Refused to make app't. till I talked to my doctor. Sent her an email immediately.
Yesterday, her nurse calls (doctor is out of office). She said an ANA was done and it was positive. WHAT?? Why was that test not posted on my page and/or why did doctor not share this info with me?? So doctor referred me to rheumatology and wanted more blood work. I had a little hissy fit with the nurse. I had a positive result that no one told me about? Totally unacceptable!! I did apologize; not her fault. So, I have a phone app't. with doctor on Monday afternoon. Trust me I have plenty of questions for her about this incident!!!
(If you are still reading, God bless you!) So, I will talk to doctor to find out why I was not informed, I will probably get more blood work, I will probably go to rheumatologist to follow up. I have no other symptoms. I am barely working out trying to heal my chest. This is NOT good!! I am staying in calorie range and tracking food.
I am trying to stay positive about test results. If I have something going on, I can't change that. I have to trust in God to care for me and the doctors caring for me to make wise decisions!
(If you've read all of this---you're amazing! And, thank you! )
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