Sunday, August 24, 2014
It's the sabbath, and as usual, I have a lot of preparation to do today...
It's not going to be easy...
My dad passed away last night.
Saturday, August 23, 2014
My dad is in big trouble...
He's 85, and he has been falling a LOT over the last several months... two weeks or so ago he fell through the guard rail on his own 4 ft high front porch, and went rolling across the lawn. He broke one rib, cracked four others, and had all kinds of bruises, especially one shoulder. He was hospitalized because the doctors were concerned about the bruising in his lung. He was scheduled to go home but didn't because he had an attack--he suffers from atrial fibrillation. He got through that and went home... and fell. It messed up his hand so it was badly swollen and it was decided that he'd see his doctor the next morning--and the next morning, he fell again. the hand? Two of his fingers are broken. And, he's in the hospital now; apparently, a bone spur on one of his cervical vertebrae cracked... and the doctors on call discussed it and called in a neurologist specializing in brain disorders.
He has been diagnosed with (deep breath) Progress Supranuclear Palsy, aka PSP.
It's often misdiagnosed as Parkinson's, since there are several things they have in common--but it's rare, only about 0.00006% of the population will ever have it.
Unlike Parkinson's, there is no tremor, but they both affect voluntary motor control. Eyes, arms, legs... He can't move his eyes up or down, a distinctive trait of this particular disease, so he can't see his feet, and when he wavers the least little bit, he no longer has the mechanism in place to correct his stance. so he goes down backwards, like a felled tree. (Odd little piece of trivia, Parkinson's patients fall too, but they tend to fall forward...)
As the name suggests, it's progressive, and his is moving fast. Yesterday he was eating lunch with my sister, and by dinner time his right shoulder had frozen, and he couldn't lift his arm to reach his mouth. Since his other hand is in a splint, he had to be fed.
And he rang for the nurse but tried to get up by himself before she got there, and he fell off the hospital bed. (The doc thinks that's why his shoulder froze up so fast, the neck injury...)From what I was told, they were running to make sure he hadn't done any more damage to himself--I imagine that neck injury must be a worry right now, too.
Add to that some anomalies in my own blood sugar metabolism... I'm a bit stressed! LOL
I had to call 9-1-1 for myself. I did about 3 minutes of my physical therapy, mostly stretching... and my blood sugar crashed. It was 40.
I ate about 24 grams of glucose, and checked again after a bit. It was THIRTY-SIX. It had gone down. I kept eating while I was waiting for the paramedics. It took almost twice as long as normal for the glucose to kick in. By the time they left, it was 75. I ate my "afternoon tea" (ramen with veggies)... a total all in all of about 80 net carbs. My glucose level the next time I tested was three hours later, and it was 150. I expected 200 or more! Crazy...
I left a message for my endo, and they called back but I had fallen asleep and didn't hear it ring...they didn't leave instructions, so I called them.
Tag! They're "it"! LOL
The kitties are doing GREAT. I found a free clinic. It's a real hassle to get there and wait for six hours once a month, but it's been worth it--Licorice and Isis have become regular play monsters, and they suddenly want to snuggle too--I'd forgot how active they were before! LOL
...And I'm now the choir director for my ward at church. I've never done this before, and it's a challenge, but I'm having fun too!
So not everything is weird... just me.
Saturday, August 16, 2014
What a roller coaster ride! LOL
I had that fever for THREE WEEKS... and still have the cough, so Thursday found me in the Cardio/Pulmonary unit at the local hospital for testing. Again. yuck. LOL
It took three MONTHS to get the hard drive for my laptop, and it still has issues--there are no programs at all (my MS Office disk has disappeared!) and it only operates in safe mode, so I can't save anything...
July 6th: I fell for no apparent reason. I had Licorice in my arms, and I just turned and went down. Licorice landed easily on the bed, but I didn't fare so well...a box broke my fall, but scraped and bruised my thigh, and I apparently sprained my foot (NOT the ankle, go figure! lol) my knee, my hip-- and both shoulders were affected because of the way I caught myself... ouch. The very next day, a stainless steel pan lid fell on my other foot and I had to have it xrayed--they thought it might be broken, but no. Just an abnormality in the toe, never mind telling me which one... Yet I survive. LOL
Now I'm back in Physical Therapy for the neuropathy issue again, which has gotten worse. Remedial class, anyone? LOL
Yesterday, I went to my Rheumatologist for a follow-up, and showed him my heel. He didn't like the look of it, and decided to do an ultrasound right there in his office. He let me watch...
Black is liquid, gray is soft tissue, white is bone, and red is inflammation, right? There's a tiny bone spur on the inside edge of my heel but not apparently causing any issues. There is also liquid all around the joint...
...have you ever seen a documentary of the lava fields in Hawaii? The lava moves slowly enough that the top has time to harden to a black shell, which cracks into interesting patterns when the red hot lava peeks through the cracks. My heel looked like that when he moved the wand over it, except that there were a few places that were a solid red glow. Kind of cool looking, but really HOT. Literally. So...
He can't do a cortisone shot that close to the tendon/bone connection, since there is a high risk of rupturing the tendon--and he says, "... a ruptured Achilles tendon would not be good". Isn't Dr. Wang cute? LOL
...I'm on corticosteroids again, a WHOPPING big dose the first day--my blood glucose level at my second meal today was 378...! I have another "new" Dr. Wang (my third, an endocrinologist--his brother!!-- not familiar with my case--haven't even met him yet! LOL) had just two days ago called and lowered my baseline insulin because I was dropping too low--his suggestion for this situation was to use my sliding scale on the short term insulin, but my former endo--oh, I miss him!-- had me adjusting my baseline too when I was taking prednisone before. So I'm going call the on-call doctor and ask to go back to my most recent old doses on the baseline. I don't think with the steroids are going to let me crash too far, do you? LOL
I've missed all of you SO much... and there's a lot to catch up on, so I'll come back later. Got that call to make--I'm do for another insulin dose! LOL
Tuesday, May 20, 2014
It's been almost a month since I got sick--and I'm still not back to where I was, but I'm (finally!) starting to feel more like myself.
And it's been almost two weeks since my hot water heater died! The maintenance man tried a couple of things, but no dice. He got permission from the manager to replace it, but the landlord insists that parts for the place be purchased from his own hardware store--and they'd just replaced the heater in another apartment and didn't have any in stock, so it will be Thursday or Friday before I have hot tap water again.
Nothing quite like a cold shampoo when you have bronchitis! LOL
I've tried dry shampoo, and my hair looks and smells better, but the residue?... feels totally gross--that stuff isn't worth the money or the time! Meanwhile, I'm having to boil water to wash dishes... and my teakettle only holds about a quart of water.
I miss my Revereware... stainless steel, and it was pretty heavy when full, but it held a whole gallon. *sigh*
Never rains but it pours! But...
I've got all the right things and people on my side!
...I'm going to get through this. I always do! LOL
P.S. My visiting teacher from church, who is fast becoming family, dropped by yesterday just to bring me a little pot of pansies--exactly like the ones on my SparkPage wallpaper--and my grandmother's front stoop! Of course, Isis... five minutes after Karen left, five of the blossoms were on my floor! LOL I've got what's left of them sitting on a little shelf right outside my front door. REASONABLY safe, except from strong winds! LOL
Friday, April 25, 2014
For the first time in I don't know when, I'm actually running a fever.
I think I had one about 15 yrs ago, when I had bronchial pneumonia...
My blood sugar levels have been a bit high since the dose changes--supposedly an adjustment period, right? ... so I just kept doing what I do, and I thought this was just allergies, until my blood sugars starting spiking REALLY high yesterday, up to 328... and suddenly, last night, I was really hot. My eyes--my whole face-- felt all puffy, and I was dizzy... ONE HUNDRED DEGREES.
Not life-threatening, but three degrees higher than my norm... and very uncomfortable. I called my home teaching elder, and he and another brother from my church came and gave me a blessing.
I woke at about 02:30 am, and my blood sugar was 71...
...Had to get up and eat! LOL
Heading back to bed, since it's only 03:30 am...
I'm getting over this quickly, it seems... the power of faith? Oh yeah!... but I AM going to call my doctor when it's daylight, and see what she has to say...
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