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What Went - Friday

Friday, October 31, 2014

We finally have a schedule for caregivers. MIL will have 3 caregivers a week. I wish that one person could do five days and one the weekend but the person they had free for that was young and while nice, a bit lazy. We liked the lady for today. SIL will go over and meet the weekend lady tomorrow. I'll go next week to meet the third lady. I want to make sure that we are comfortable with the caregivers that we are leaving there. FIL is there and is pretty savvy still but I still want to be sure. MIL gets assessed on Monday for the retirement home. I was very happy to find that they will assess her in her own home so we don't have to tire her out taking her somewhere else and back. Both MIL and FIL are so surprised when a caregiver comes each day - despite having it explained over and over again that they will be there daily. I'm not sure how it going to go when they move over to the retirement home. I worry that they will not like it but I just don't know how we can sustain this level of care at home.

Other than that, today was Catch-Up-a-Bit-on-Our-Own-Needs Day. I went into the big city to meet with the allergist. Now I can go back to doing shots at home for the next five months. I also got ds in for his allergy shots. We did shopping to prepare ds for his hunting trip this weekend. I'm also working on the kitchen and the laundry. Dh will finally get a day off tomorrow. I'm sure he will be madly preparing his sermons since all sermon prep time earlier in the week was given over to his parents and their needs. SIL and the weekend caregiver have the weekend shift with the ILs. We might go over on Sunday. We'll see.

  Member Comments About This Blog Post:

FRAN0426 11/1/2014 1:06AM

    Good to see that some progress moving forward with your ILs. Finally some time for your family to get caught up on stuff , that's great.

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JACKIEWALKS4FUN 10/31/2014 10:23PM

    Still so busy, but seems like some progress. emoticon

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1CRAZYDOG 10/31/2014 9:59PM

    Hope things work as planned. Good luck!

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What Went - Thursday

Thursday, October 30, 2014

We got an absolutely wonderful substitute caregiver sent to us today because the scheduled one flaked. I love this new one! Unfortunately she's booked because she's good. I could tell within 3 minutes that I was getting underfoot so I gave a couple of instructions, tried unsuccessfully to figure out MIL's meds, talked to dh to hand the med. mess to him and left.

We got a hat and rain coat for ds.

We got my new printer! Ds has been trying to set it up. I need to test it out when I'm done here to see if it will work.

Got home. Had lunch. Was sitting down to rest a bit and got a call from dh asking me to bring him lunch and dinner.
Ran out to get that and to deliver that at his work.

Did a small grocery run on the way home to round out dinner.

I am so tired! FIL doesn't know why all these people are descending on his house. He can't quite grasp that MIL cannot take care of herself any more and his "help" was leaving her in benign neglect. Now he's starting to back down on going to a retirement home. Gaaaah! I don't know if all of us can keep doing this day after day. It takes me 40 min. one way to get there. I haven't done school with the kids all week. (They've done schoolwork but I haven't been able to check it at all and a few areas where they need my help have stalled at that point.) I totally missed my own doctor's appt. yesterday because I was taking care of MIL and couldn't leave.

  Member Comments About This Blog Post:

JACKIEWALKS4FUN 10/30/2014 10:06PM

    Big emoticon emoticon

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1CRAZYDOG 10/30/2014 8:20PM

    emoticon To say it's a tough situation is a monumental understatement.

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CINDYPRAY 10/30/2014 7:39PM

    I'm my husband's Best person 7 caregiver. A nose bleed sent us to the ER for 4 hours this week. Then the med supply company sent the wrong order to our house...orders got mixed. I didn't have a spare nutrition bag, because we had it counted to the day & one bag leaked a can of nutrition down my carpet last week... so last night I was rigging a sports quart to old style pump tubing to get DH fed last night...

The whole crazy list goes on and on. I have been battling all day today.

I'm glad you were blessed with a good caregiver today, even if she was a temp. They tell me there is a light at the end of this tunnel...I'm trusting it is true.

Hang in there. Breathe, and all will be well.

-- Cindy

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FRAN0426 10/30/2014 7:23PM

    Hope all works out soon with ILs situations so your family can get back on track.

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What Went - Tuesday

Tuesday, October 28, 2014

I spent the day with dh, trying to get things settled for the ILs. MIL was not released from the hospital after all. The doctor has changed her medication, trying to stabilize her bloodsugars which are still not under control. She refuses to eat more than a couple of bites which doesn't help. I don't quite understand why her sugars are so terribly high when she doesn't eat anything. . .

Dh and I toured one retirement place. Lovely place but we have some reservations mainly because it is so foreign culturally from what they are used to. We have home health set up to start as soon as MIL comes home, possibly as soon as tomorrow, but that is a stop gap measure as it will not be able to keep up with care if dementia and Alzheimer needs increase, as they undoubtedly will.

I am so terribly tired. I've neglected the kids for two days. They're ok but of course it is not optimal to do this for too many days.

I've felt like I'm on the cusp of getting sick for the past couple of days. A bit of throat swelling, actually. I'm supposed to get another allergy shot this week but now I'm not quite sure if I should't hold off on this one.

  Member Comments About This Blog Post:

1CRAZYDOG 10/29/2014 5:20PM

    Wishing you all the luck w/looking @ facilities. Usually the first impressions are right on, so if it doesn't feel right, chances are it probably isn't the right one. Anyhow, wishing you much luck.

As for the blood sugars, if she's not eating, the body goes into starvation mode. When that happens, it releases it's glycogen stores to raise the blood sugar.

Obviously, just my theory, for what it's worth. Hope her nutrition can be improved.

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JENNEINAZ 10/29/2014 11:44AM

  I hope you get the MIL situation resolved soon and everyone likes the solution.

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JACKIEWALKS4FUN 10/28/2014 11:17PM

    I also hope you find a place for MIL, I remember having to do this, not easy.
Sure hope you do not get sick going through all of this, hope you can get a good night sleep and feel better. emoticon

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FRAN0426 10/28/2014 11:00PM

    Hope you can find a place that will suit the needs of your ILS.
I see your point with the kids, but once in awhile things do come along that needs your immediate attention, they will do fine. I believe teens today realize when your attention is needed elsewhere for a day or two. Take care Jean, hope you feel better tomorrow.

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What Went - Monday

Monday, October 27, 2014

1. Dd is testing out the memory foam topper. The verdict is still out.

2. I took dd's 2 inch thick (or thin, rather!) non-memory foam topper and really like it. I'm not giving it back!

3. Dd had a friend over for the afternoon. This ended up being a blessing instead of an interruption because. . . .

4. I got a call from dh saying that MIL is going to be discharged from the hospital tomorrow and he needed me to try and find her home health care by tomorrow! So I spent much of the afternoon making calls and waiting for calls. At this point I've made all the calls I can make until I hear back with more information from SIL and dh.

5. It is really hard to stress eat when you are gluten free, darn it! I think this is a good thing. . .

6. Dd went to the Y but the power outage we had two days ago apparently still has them dark. The good thing is that I don't have to go and pick her up later, making me more available for return phone calls.

  Member Comments About This Blog Post:

1CRAZYDOG 10/28/2014 3:01PM

    Good luck w/the home-health arrangements. (((HGUS))))

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JENNEINAZ 10/28/2014 10:51AM

  I'm glad your daughter's topper is working for you.

I'm sorry that finding good care for your MIL is so hard.

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FRAN0426 10/27/2014 11:44PM

    Keeping fingers crossed you find home care for your MIL. They sure spring that, just before discharging a patient these days. Years ago people know in advance most of the time that the patient would need help either at home or somewhere.

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What Went - Sunday

Monday, October 27, 2014

Our power went out yesterday evening around 8 pm. Fortunately I knew there was a high wind warning and when I saw the first flickers in the lights got out all the flashlights and candles. Dh was at work with full power but the kids and I and the pets were all cozy in the living room together. Ds serenaded us on his acoustic guitar. Dd and I read by lantern. The dogs were a bit anxious but were ok. The cat was oblivious.

I did part two of the memory foam mattress experiment. Dh thought I should try the topper under my futon mattress. It was a lot cushier than my futon by itself. It didn't work for me again though this time I was able to sleep a couple of hours on it. It disrupted my alignment just enough that my feet kept falling asleep. And for some odd reason, even though I wasn't right on it, it made me very hot. Dd is trying it on her bed tonight.

Things are even more stressful around here at the moment. MIL is in the hospital again and this time she cannot go home. Her needs have progressed to the point where FIL cannot take care of her and even daily family support just isn't enough to keep her safe. They say that she has not had a stroke so I guess it is her dementia that is speeding up but today she lost the ability to speak English and has reverted to her native language. But who knows that could change since her mental state seems to wax and wane. My husband is working with a social worker to find a placement for her since the hospital is ready to send her "home" but we need that to be a safe place.

I'm wanting to stress eat but since going gluten free that is harder to do! I know there are gluten free cookies etc. but I don't buy those types of things and the things I have around here for the kids are not things I can eat. I still don't totally know if going gluten free helps but I'm going to try this for at least another month or so before doing a small test to see how I react. I know that it doesn't prevent me from going into a flare since I just went into one but it could help me in other ways.

  Member Comments About This Blog Post:

JACKIEWALKS4FUN 10/27/2014 5:01PM


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1CRAZYDOG 10/27/2014 1:45PM

    ((((HUIGS)))) So sorry to hear of the situation w/MIL. It's beyond difficult.

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JENNEINAZ 10/27/2014 10:24AM

  I'm sorry that your MIL is having a hard time. Please try to take good care of yourself.

And not having the comfort foods you can eat in the house is a good way to not eat them even if it isn't very comforting.

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