Friday, February 14, 2014
In addition to Spark People and our Diabetes related Spark Groups, I am very active with peer support. My special interest is Type 1 Diabetes, particularly Brittle Type 1 DM which was recently listed (2013) by the U.S. National Institutes of Health (NIH) Office of Rare Diseases Research as a separate category of Type 1.
With over 43 years personal experience with Brittle Type 1 Diabetes, I have developed strategies for maintaining relatively close control using intensive self-management. Beginning at onset in 1980 I kept meticulous log books.
Despite the inaccuracy of urine tests using reagent tablets and later urine test strips, through careful analysis I discovered a pattern of "Dawn Phenomenon high BG levels followed by daytime raised BGs. I proactively suggested dividing my long acting NPH insulin into two doses, morning and night. With my physician's approval, I implemented that change with positive results. Not long after that I started intensive multiple daily injection (MDI) therapy.
U-40 insulin caused frequent temporary inject site pock marks. When U-80 insulin became available, I immediately changed to U-80 R and NPH.
Pock mark occurrence diminished but still appeared on occasion. I rotated injection sites carefully, but on MDI my six or more daily injections quickly used every spot I could reach that did not cause bleeding or was too painful.
Log books became much more accurate and useful when blood glucose meters arrived. Once again I was an early adopter of emerging technology for Diabetes. I jumped at the chance to change of rDNA human insulin, and participated clinical trials or professional samples if human insulin. Not only did control improve -- significant for Brittle Type 1 -- but the pockmarks and local injection site sensitivity as well.
As an IT professional I created a spreadsheet Blood Glucose log book. It worked fairly well, but I had to manually enter data from my paper log book when away from the computer. The spreadsheet let me use my log book data and was useful but tedious.
I was selected to be an early adopter of Windows PDA's before the release of Windows CE. I could use my PDA as a portable log book. I was able to synchronize my spreadsheet log book between my PocketPC PDA and my PC whether at work or home.
After extensive web searches I found SiDiary for PC, an application created by an engineer who developed it for personal use then published on the internet on his SINOVO.net web site.
The application, SiDiary 5, was much more full featured than my home grown spreadsheet log book. They also had a version for PocketPC so my log book data continued to improve and became more useful.
I went through several PDAs then changed to a Blackberry smartphone. Fortunately SiDiary 5 had a Blackberry version which also synchronized with my PC SiDiary 5. Not long after that, SINOVO started development of SiDiary 6 and I became a Beta tester. The SINOVO folks became cyber-friendsand key members of my Diabetes support network.
After SiDiary 6 was released, versions for multiple platforms followed, including Android, iOS (iPhone/iPad), Symbian, Windows Phone, and a self-contained USB thumb drive, SiDiary 6 PnP (Plug n Play). Details about SiDiary 6 were featured in my Blog a couple of days ago, and on my Spark Page. For more info:
(Note: This link is not an advertisement, but I provide it based on my personal experience. Other than being a satisfied user and Beta tester I do not represent SINOVO, nor do I receive any compensation.)
The support and information I received and shared with social networks like Spark People and Facebook inspired me to create a peer support Facebook page for Brittle Type 1 Diabetes:
My Diabetes peer support network is now world-wide! Thanks to Spark People for inspiring me by the awesome support I share here.
Happy Valentine's Day to all my Spark Friends!
Wednesday, December 28, 2011
Just reached SparkPeople Level 9!
Changed my Tracker to Weeks on Maintenance Weight!
Reached my Maintenance Weight several months ago, and have only minor fluctuations of 3 - 5 pounds, all within my target!
Thanks to President Obama for the Affordable Care Act that helps relieve the financial burden of Type 1 Diabetes and an increasingly Geriatric body.
Recent checkups with my Primary Care Doctor and Opthalmologist gave me a clean bill of health with NO Diabetes complications after 41 years brittle Type 1! Saw my Specialist for Sleep Disorders and, after an extensive Sleep Study, now have a new, replacement Respironics CPAP machine. Saw my Respiratory Medicine Doctor and have a new Nebulizer. Finally, my Medtronic Paradigm Revel Insulin Pump is working great, helping keep my still-brittle Type 1 Diabetes manageable with fewer blood sugar swings, rare hyperglycemia (high blood sugar) and fewer hypoglycemic (low blood sugar) episodes. It's still a tight-rope walk, but after 41 years I have gained a good sense of balance and maintain my sense of humor.
As my 95-year-old father says,
"We're in great shape for the shape we're in!"
Thanks to all my Spark Friends for your support, encouragement, kind words, and friendship. Thanks to SparkPeople for the great tools, information, articles, and healthy social network.
Warm personal regards, with wishes for a healthy, happy, peaceful, and prosperous 2012 for us all,
Wednesday, July 20, 2011
I stepped on the scales for my weigh in and got a pleasant (though not unexpected) surprise:
As my goal approaches the transition to maintenance mode, I am sure there will be minor fluctuations in what the scale reads. 165 may or may appear on the dial next week, but it will appear. In Zen there is a concept of "right mindfullness". My 95 year old Dad says to accomplish something difficult "you've got to hold your mouth right". In reaching my weight goals that translates into right mindfully having a lightning bolt path to and focus on the goal. The path may zig and zag but strikes the goal of electrical balance. By combining awareness of my whole life balance in diet, nutrition, exercise, rest, relaxation, recreation, socialization -- overall balance in my life -- I am holding my mouth right to reach this and (simultaneously) other goals.
Thanks to my Spark Friends for encouragement, support, and comments during this ongoing journey together. Thanks as well to the Spark Community and Spark Teams as well. Especial thanks to my wife, family, healthcare team and others for daily support which I endeavor to return.
Another Zen aphorism (or Koan) is that to reach enlightenment "Give up giving up". How is that logically possible? A verbal explanation of a non-verbal possible resolution is that dieting gives up certain foods, a temporary deprivation.
One of the Spark People techniques is to define and refine a goal, considering and evolving the life style changes or habits needed to realize that goal.
More later, not feeling well at this moment.
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