JLCONROD   11,098
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JLCONROD's Recent Blog Entries

My Spark Streaks don't reflect my Activity

Saturday, March 15, 2014

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Some of my Spark Streaks do not accurately reflect my SparkPeople activity. This is especially true for my Login Spark Point spins.

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I can use all Spark People features when I log in with my laptop, the preferred method.

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Away from home, whether travelling or running errands, I may just use the great SP Diet & Nutrition Tracker on my Android smartphone. Unfortunately, the Tracker doesn't have a Login Points feature, and while I can use the mobile browser to login in to my SparkPeople account, I still can't spin the wheel. In many areas away from home WiFi access may be insecure or unavailable.

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Result of mobile access days: Break in the Login SparkStreak -- and missed Spark Points.

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I reached a normal BMI and BDI, and have been in Maintenance Mode for months. Both my BMI and BDI are in the upper range for normal. The result of my February HbA1c for blood glucose control over a three month period is 6.5: perfect! The A1c is particularly satisfying with an over 43 history with Brittle Type 1 Diabetes.

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My new goal is to reach an even better weight of 150 pounds by my birthday in June, when I'll be 70! This goal weight will move my BMI and BDI to mid-range normal. If I meet that goal it's another small personal achievement. Even if this new goal is missed, I can be satisfied that I strived for the goal, but am still in normal range.

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Happy Saint Patrick's Day!

Slánte!

  
  Member Comments About This Blog Post:

CHRISTINEBWD 3/15/2014 11:30PM

    Wow good for you! All the best with the new goals too!
emoticon Cheers!

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MORTICIAADDAMS 3/15/2014 10:21PM

    Sounds like you are doing great!! Have a wonderful St. Patrick's day!

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JARBRITT 3/15/2014 9:17PM

    Happy saint Patrick day. Great goal, and great accomplishment.

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Managing Type 1 Diabetes Self-Management and Peer Support

Friday, February 14, 2014



In addition to Spark People emoticon and our Diabetes related Spark Groups, I am very active with peer support. My special interest is Type 1 Diabetes, particularly Brittle Type 1 DM which was recently listed (2013) by the U.S. National Institutes of Health (NIH) Office of Rare Diseases Research as a separate category of Type 1.

rarediseases.info.nih.gov/gard/11900/bri
ttle-diabetes/Resources/1


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With over 43 years personal experience with Brittle Type 1 Diabetes, I have developed strategies for maintaining relatively close control using intensive self-management. Beginning at onset in 1980 I kept meticulous log books.

Despite the inaccuracy of urine tests using reagent tablets and later urine test strips, through careful analysis I discovered a pattern of "Dawn Phenomenon high BG levels followed by daytime raised BGs. I proactively suggested dividing my long acting NPH insulin into two doses, morning and night. With my physician's approval, I implemented that change with positive results. Not long after that I started intensive multiple daily injection (MDI) therapy. emoticon

U-40 insulin caused frequent temporary inject site pock marks. When U-80 insulin became available, I immediately changed to U-80 R and NPH.

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Pock mark occurrence diminished but still appeared on occasion. I rotated injection sites carefully, emoticon but on MDI my six or more daily injections quickly used every spot I could reach that did not cause bleeding or was too painful.

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Log books became much more accurate and useful when blood glucose meters arrived. Once again I was an early adopter of emerging technology for Diabetes. I jumped at the chance to change of rDNA human insulin, and participated clinical trials or professional samples if human insulin. Not only did control improve -- significant for Brittle Type 1 -- but the pockmarks and local injection site sensitivity as well.

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As an IT professional I created a spreadsheet Blood Glucose log book. It worked fairly well, but I had to manually enter data from my paper log book when away from the computer. The spreadsheet let me use my log book data and was useful but tedious.

I was selected to be an early adopter of Windows PDA's before the release of Windows CE. I could use my PDA as a portable log book. I was able to synchronize my spreadsheet log book between my PocketPC PDA and my PC whether at work or home.

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After extensive web searches I found SiDiary for PC, an application created by an engineer who developed it for personal use then published on the internet on his SINOVO.net web site.

The application, SiDiary 5, was much more full featured than my home grown spreadsheet log book. They also had a version for PocketPC so my log book data continued to improve and became more useful.

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I went through several PDAs then changed to a Blackberry smartphone. Fortunately SiDiary 5 had a Blackberry version which also synchronized with my PC SiDiary 5. Not long after that, SINOVO started development of SiDiary 6 and I became a Beta tester. The SINOVO folks became cyber-friendsand key members of my Diabetes support network.

After SiDiary 6 was released, versions for multiple platforms followed, including Android, iOS (iPhone/iPad), Symbian, Windows Phone, and a self-contained USB thumb drive, SiDiary 6 PnP (Plug n Play). Details about SiDiary 6 were featured in my Blog a couple of days ago, and on my Spark Page. For more info:

www.sinovo.net
(Note: This link is not an advertisement, but I provide it based on my personal experience. Other than being a satisfied user and Beta tester I do not represent SINOVO, nor do I receive any compensation.)

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The support and information I received and shared with social networks like Spark People and Facebook inspired me to create a peer support Facebook page for Brittle Type 1 Diabetes:
www.facebook.com/BrittleType1Diabete
s


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My Diabetes peer support network is now world-wide! Thanks to Spark People for inspiring me by the awesome support I share here.

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Happy Valentine's Day to all my Spark Friends!

  
  Member Comments About This Blog Post:

JLCONROD 2/14/2014 8:22PM

    Thanks, Morticiaaddams! emoticon

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MORTICIAADDAMS 2/14/2014 7:57PM

    Loved reading about all of your progress through the years to control this difficult disease.

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Quick Update 13 Feb 2014

Thursday, February 13, 2014

emoticon Happy President's Day holiday this weekend.

emoticon emoticon emoticon Happy Valentine's Day tomorrow (Friday)

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Celebrating the 2014 Olympic Winter Games in Sochi, Russia
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Yesterday I updated my Spark Page with new photos and current information. I am now a Medtronic MiniMed Ambassador, a peer-support group for Medtronic Insulin Pump users. I've been absent here lately because I've been very active in Diabetes peer support as well as creating a Facebook page: Brittle Type 1 Diabetes. Please look for my special page when you are browsing Facebook:


www.facebook.com/BrittleType1Diabetes


My January 2014 visit with my physician was terrific! emoticon My HbA1c was a fantastic 6.4, lab tests were perfect, BMI is mid-normal, and all is well despite 43+ years controlling genetically Brittle Type 1 Diabetes.

emoticon Hello to all my Spark Friends! emoticon

P.S.: emoticon emoticon Finally reached Level 10! emoticon

  
  Member Comments About This Blog Post:

MORTICIAADDAMS 2/13/2014 11:50AM

    Sounds like you are doing great!!

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GEMINI-SKY 2/13/2014 6:05AM

    Gosh We were so worried about you !!!
So Glad you are back and with emoticon News !!!
How wonderful and Congrat's for your appointment to Ambassador !!!
OXOX

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Levelled Up!

Wednesday, December 28, 2011

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Just reached SparkPeople Level 9!

emoticon Changed my Tracker to Weeks on Maintenance Weight!

emoticon Reached my Maintenance Weight several months ago, and have only minor fluctuations of 3 - 5 pounds, all within my target!

emoticon Thanks to President Obama for the Affordable Care Act that helps relieve the financial burden of Type 1 Diabetes and an increasingly Geriatric body. emoticon


emoticon Recent checkups with my Primary Care Doctor and Opthalmologist gave me a clean bill of health with NO Diabetes complications after 41 years brittle Type 1! Saw my Specialist for Sleep Disorders and, after an extensive Sleep Study, now have a new, replacement Respironics CPAP machine. Saw my Respiratory Medicine Doctor and have a new Nebulizer. Finally, my Medtronic Paradigm Revel Insulin Pump is working great, helping keep my still-brittle Type 1 Diabetes manageable with fewer blood sugar swings, rare hyperglycemia (high blood sugar) and fewer hypoglycemic (low blood sugar) episodes. It's still a tight-rope walk, but after 41 years I have gained a good sense of balance and maintain my sense of humor.

emoticon As my 95-year-old father says,
"We're in great shape for the shape we're in!" emoticon

emoticon emoticon Thanks to all my Spark Friends for your support, encouragement, kind words, and friendship. Thanks to SparkPeople for the great tools, information, articles, and healthy social network.

emoticon Warm personal regards, with wishes for a healthy, happy, peaceful, and prosperous 2012 for us all,

John
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  Member Comments About This Blog Post:

SUPERDUPER26 1/3/2012 10:15AM

    Yay to all of that! New machines are so helpful arent they? emoticon
Congrats on all the work you've done/are doing to stay in such good shape for the shape you're in! emoticon

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FITB4-40 12/28/2011 6:54PM

    Sounds like a great year. Here's to continued good health in 2012 emoticon emoticon emoticon

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MORTICIAADDAMS 12/28/2011 4:33PM

    Sounds great!! I hope you have a good 2012!

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ECONLADY 12/28/2011 3:37AM

    Congrats!

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Holiday Greetings

Monday, December 26, 2011

emoticon Merry Christmas! emoticon

emoticon Happy Hannukah! emoticon

emoticon Happy Kwanzaa! emoticon

emoticon Happy New Year 2012! emoticon

emoticon Peace, Health, and Prosperity for all of us in the New Year. emoticon

John
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  Member Comments About This Blog Post:

MORTICIAADDAMS 12/26/2011 2:47PM

    The same to you!!

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GLOMER 12/26/2011 12:13PM

    Very thoughtful and back to you for the rest of the year also!

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PYNETREE 12/26/2011 8:54AM

    Best of the season to you also! And wishing you a happy, healthy 2012!

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ECONLADY 12/26/2011 1:22AM

    Merry Christmas!

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