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Tests continue

Friday, August 22, 2014

I just spent another 32 hours down with a headache and vomiting. The muscles in my neck, shoulders, and lower back got so tight it was almost impossible to move them.

I am going to be tested now for MS and Myasthenia Gravis next week. I will be running between my regular doctor in my hometown, and my Cancer doctor in Sioux Falls, and my team of doctors in the Cities.

I do not have West Niles. Seriously, I was hoping I did as that can be overcome within a years time. My sister, Niece, husbands Nephew and my father-in-laws brother have it.

Exercise has become now a thing of the past. I joke that what use to take me an hour can now take a day to accomplish. Its hard to explain but...I have a chair placed between the house and my garden now because just walking to the house is an effort. I tire out so quickly. I started my Summer doing GREAT and then about the middle of July...started to feel drained all the time. Now, I feel weak. It has become an effort to keep my arms raised long enough to dry my hair. Middle age bites. I can hardly wait for the golden years. LOL

Personally, I think it is my fibromyalgia messing with me. It makes it hard to get a good nights rest etc.

I will let them run their tests and pray they have an answer for me that I can live with. I am going to be concentrating on this aspect of my health right now.

  
  Member Comments About This Blog Post:

SIOL55 8/23/2014 12:10PM

  I continue to think of you and pray for you. emoticon

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WENKEL1020 8/22/2014 11:19AM

    Praying for you! Hoping they find an answer so you begin the right course of action. The unknown is always the hardest. Stay strong.
emoticon

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LUCKYDUCK2 8/22/2014 9:36AM

    SIOL55...Thank you. I AM a tick magnet and that is something to consider! They were bad here this year and last year and it is not an exaggeration to say there were times I could find as many as a couple of dozen on my legs at the end of the day. :(

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MSLZZY 8/22/2014 9:31AM

    emoticon I hope all the testing points your doctors in the right direction so you can overcome all these issues. I can't imagine not being able to do what I want. HUGS!

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CALENSARIEL 8/22/2014 9:20AM

    Boy that's a hard one. MS vs. Fibro... I'm not sure which of them is more debilitating. Always got my fingers crossed for you, girl. And glad you got the visit with your brother in before this round of your "social life" started. emoticon Hugs, Calen~

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SIOL55 8/22/2014 7:00AM

  I am so sorry to hear you are going through these struggles. I hope you have answers soon. I know you are outdoors a lot. Have they checked for Lyme's disease? I only ask because my sister-in-law was just diagnosed after months of suffering similar symptoms. I hope they soon find the cause of your pain so treatment can begin. You are in my prayers. emoticon

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Now waiting for results

Wednesday, August 13, 2014

They ran a series of tests on me. Five blood tubes for inflammation tests, West Niles, and two others that I am hoping I pass.
A chest x-ray, ekg, and a cat-scan for my head. I guess we will find out if I still have any working matter upstairs. emoticon I have ALWAYS had blood pressure that is 112/67 and today it was 180/80. My body temp is always low...about 93 and today it was 99.4. Odd.

The extreme fatigue and headaches point to West Niles I am hoping this is the case because the other possibility is that my cancer is back. I had Medullary cancer in my thyroid. We will have to wait and see if my calcitonin levels are elevated again. This would be the worst outcome because....there is no treatment for this type of cancer. Only surgery until there is nothing left that can be removed. emoticon

I will find out more on Monday. All prayers appreciated.

  
  Member Comments About This Blog Post:

SIOL55 8/14/2014 7:22PM

  You will be in my daily prayers. I am so sorry to hear you are going through this. I hope you will soon have tests results that will let the doctors know how to treat you. Stay strong. Prayers going out for you right now.

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MSLZZY 8/14/2014 11:16AM

    West Nile isn't easy to overcome but better than cancer, that's for sure. Hope all the results come back soon. Praying for you while you are waiting. HUGS!

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GOWITHTHEFLO50 8/13/2014 8:28PM

  Hope your results turn out ok. My prayers are with you. emoticon

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TRUCKERDEE 8/13/2014 8:25PM

    thoughts and prayers sent your way!!!

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LYNMEINDERS 8/13/2014 6:26PM

    Praying for your results and your health

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RAPUNZEL53 8/13/2014 6:23PM

  Good Luck! Hope everything works out!

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CALENSARIEL 8/13/2014 6:22PM

    Oh dear... You have been through so, so much already. You desperately need a break from all the worry right now. Am so praying that the tests come back that you have a virus. Hang in there, girlfriend. Hugs, Calen~

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PRAIRIECROCUS 8/13/2014 6:19PM

    I hope you will be fine !

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Down again

Wednesday, August 13, 2014

I woke up Tues morning around 6 am feeling GREAT. By 8 am...I was down with a migraine again and by 9 am...vomiting until 1:30 am Wed morning. Now it is almost 6 am and I feeling a little weak, but the headache is gone. Just some sore muscles yet in the neck and shoulder area. I am hoping to be able to put up some dill pickles today and maybe start the sweet chunks. Or, I may just call it a lazy day, depending on how sore I am.

This has been a bad Summer for Migraines for me. I am averaging a couple of them a week since the start of June. Odd, because usually I only get a bad one every couple of months. I do have a doctor appt. in place because I need to see if I can get them under control. They always rob me of a good 24 hours from start to finish and the day after, I am drained.

  
  Member Comments About This Blog Post:

CALENSARIEL 8/13/2014 1:52PM

    Allergens are over the top here. It's been such weird weather. Any chance it could be allergy related? You're always outside so much. So all in all, how'd your visit with your brother go? Get feeling better. Hope the doc can help alleviate the migraines. Hugs, Calen~

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MSLZZY 8/13/2014 8:48AM

    No wonder you are drained. I have never had a migraine and don't want to start now. Hope the doctor can help you.

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LUCKYDUCK2 8/13/2014 8:11AM

    Thank you all for your kind comments. I am hoping that the doctors can help me find some relief from them soon.

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WDIPIM 8/13/2014 7:07AM

  God Bless so sorry you are having such bad migraines.

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ELRIDDICK 8/13/2014 7:06AM

  Feel better soon!

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AJB121299 8/13/2014 7:00AM

    Feel better

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Rain. Really?

Saturday, August 09, 2014

Last week we had all these high percentages for a chance of rain and got nothing...nada, zip.
This weekend it was suppose to be Sunny and the chance was almost zero. So, we have been getting nothing BUT rain. Now, if my brother were not here from CA, I would be totally fine with that but...it has been a damper in all of our plans for the lake.

We had plans for taking the boats out...skiing, tubing, fishing, and just cruising around. We were going to spend the day at Todd's camper and grill and sit around a bonfire. Instead, we spent last night all sitting in Mom's garage and grilling and visiting. WAY too much food but I kept it under control. emoticon

Kev and I got home at about 4 am and slept in late. Quick check-in here to log some food and weigh in and its back to my mom's to sit in the garage and visit. It is really raining AGAIN. I wish it would have held off for a couple of days. Todd was planning on pulling out tomorrow but may leave on Monday instead.

  
  Member Comments About This Blog Post:

CALENSARIEL 8/11/2014 1:52PM

    Well thank God you can still be outside...sorta... Hope you're having a good visit despite the rain. Hugs, Calen~

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MSLZZY 8/9/2014 10:08PM

    They had such good chances for rain for us too and all we got was a few light sprinkles and mist. Sorry your whole weekend is a wash out but time spent together is precious.

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NEPTUNE1939 8/9/2014 2:57PM

    We just got over a flash flood. No major damage but a lot of yard cleanup. emoticon

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Blah

Friday, August 08, 2014



I came down Wed night about 11 pm with the start of a migraine and could not control it. It hit hard at 1 am on Thurs and keep me in bed until Friday morning at 2:30 am.

Not a good way to welcome my brother here from Ca on his first day back. We are all meeting at my mothers tomorrow for a BBQ and I need to get my potato salad and chip dips made yet. I am playing with the idea of running in yet at 3 am to get groceries purchased but not feeling very ambitious just yet. I may wait until 6 am.

I think I may try to get a couple of hours of sleep in yet that does not involve icepacks and getting up to get ill every half hour.

I am going to not be on here much for the next couple of days. It is FAMILY time with my brother being back.

Everyone, see you on Monday and have a healthy weekend. Hugs

______________
Wow. I can tell that I was out of it and off. The one thing about working from home is I can lose track of my days but couple that with being down in bed and I really lost a day. So, back this all up one....down Tues night and up Thurs. am.

Just got home at midnight Friday night and had a great time visiting family. There, I am on the right day in my head. LOL

  
  Member Comments About This Blog Post:

SIOL55 8/8/2014 9:09PM

  Hope you're feeling better soon. emoticon

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CALENSARIEL 8/8/2014 2:39PM

    Hey, do you wear sunglasses all the time when you go out? My friend in Perth, Australia never goes out of the house without hers because she is prone to migraines, too, and bright light sets them off for her. Hope you end up feeling good enough that the weekend isn't just a struggle to get through. Hugs, Calen~

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MSLZZY 8/8/2014 9:56AM

    Hope the migraine disappears so you can enjoy family time without pain.

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GHOSTFLAMES 8/8/2014 5:19AM

    emoticon emoticon

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