Sunday, February 23, 2014
I didn't realize how long it had been since I had updated, since mentioning that he had a birthday hardly counts as an update. The news is good!
He had a magnetic resonance spectroscopy scan...I am not exactly sure how that differs from a regular MRI, although in his case it definitely took less time. That was last Wednesday. Then on Thursday he had a PET/CT scan of his brain, which took a very, very long time. That was because the PET scan uses radiolabelled glucose, and the brain takes up glucose big time. So, in order to get a decent image of the brain, they have to give him the glucose in an IV, and wait three hours until most of it has been cleared from his body and just a small amount remains. They seem to have all this down to a fine art, which is great, but I have to admit I would have gone stir crazy waiting for that long, if it hadn't been for a friend who came to keep me company.
Meanwhile, on Tuesday, before the exams had even happened, Danny's oncologist had called me to say that she had consulted with some super specialists - pediatric neurooncologists she knew from a previous assignment, plus the neuroradiologists at the hospital, and all of them thought that the area of concern in Danny's brain was most likely just scarring. So, even though she and they still wanted to have the scans done, she was pretty sure everything would be fine, and she then wanted Danny to have his regular chemo (which, by then, had been delayed by ten days from when it should have been scheduled) the day after his last scan (Friday).
Neither Danny nor I was happy about his having chemo on Friday. He had been invited to The Incredible Pizza company that evening and wanted to go really badly. Plus his bowling league is on Saturday mornings, and he didn't want to miss that either. But it was made plain that this was an 'offer' we couldn't refuse. So I said, "Sure, we'd be glad to," with gritted teeth.
However, Dr. Whiteway also assured me, I mean assured me, that someone would be calling me to let me know the actual, as opposed to assumed, results. Silly me. I inferred from that that we would hear in a timely fashion, as in, before we presented ourselves at the clinic for chemo.
So on Friday morning we waited. And waited. And waited. Finally, at noon, my phone rang, and it was Dr. Gidvani, my least favorite of all the oncologists. Tact is a word unknown to him. I answered, said hello, and he said, "So, are you guys coming in?"
I said that I had been waiting for a call to tell me the scan results, and he said, well, this is the call. I have them. Then he told me that the spot in Danny's brain is consistent with scarring, for sure, definitely. And asked again if we were coming in.
So I said, yes of course, we would be there soon. Grrrrr. The man always manages to annoy me.
We went in and he had his regular chemo and stayed overnight to get lots of IV fluids. To my dismay, Dr. G was the ward attending, but he actually surprised me by being nice and not patronizing me when I asked a bunch of questions.
And, as of right now, Danny is doing very well, so far no vomiting, and everything is looking good for a complete cure.