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Thursday, February 27, 2014

Today was warmer. This morning I was sort of dragging but got some things done, then this afternoon went to the fitness center for an hour and then when I got home I worked 30 minutes outside. I'm getting back to where I want to exercise not make excuses not to go. My husband and I are encouraging each other. His back was really bothering him so cut workout a little short.

Outside I trimmed back the dead stuff in some flower pots that line my front steps and across the small porch. and swept some leaves out of a flower bed. One I need to wait a few more weeks before I do much because I don't want to walk on some plants that are coming up but not quite whre I can see them enough.

Tomorrow supposed to be colder and maybe rainy so nothing outside tomorrow.

  Member Comments About This Blog Post:

MSLZZY 2/27/2014 11:42PM

    No way am I going to be going out at this time of year. We still have too much snow to even think about it. But I have hopes it warms up and stays warm so my tulips don't freeze again this year. Enjoy the outdoors as much as you can.

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MNABOY 2/27/2014 10:41PM

    It is freezing here now. My back gives me fits when I don't walk each day. It bothers me all the time but it gets my attention when I lay off walking/hiking or loosening it up. Maybe yoga will work too.

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Preparing for my husband to start dialysis is Scary

Tuesday, February 18, 2014

It is a little scary about what is to come. Seems like the more I read the more real and scary it gets. Yesterday my husband visited the dialysis center that is located here. It is a Di Vita Center. and brought home some literature. There will be meeting at the dialysis center on February 28th that the nurse who is in charge of the in home dialysis is having. Then March 6th the day after meeting with surgeon that will begin the fistula in his arm we will be seeing a 45 minute video about the different types of dialysis. His kidney doctor says that peritoneal dialysis would be great for him if it could be done here. He will probably get prepared for both types of home dialysis. with the center also.

When we first learned of his kidney failure 10 years ago and that someday he would probably be on dialysis it would have been 75-80 miles to the nearest center. Zack's kidney failure is due to a blockage of his urine flow by an enlarged prostate his doctor never checked out any thing but his prostate. I discovered a problem with his urinary tract by accident when I used his a a test person when the Radiology department where I worked got a new ultrasound machine and I was the one doing weekend and call Ultrasound coverage.

Zack has never been on a special diet. He was just to eat healthy, continue with his exercising regularly, keep his weight and blood pressure down, not become a diabetic like his mother and all his aunts..

Due to an injury to his ankle and his back getting reeally bad and developing atrial fib he got out of his regular exercise he gained weight. He has lost 60 pounds in the last year and when he had two emergency surgeries last year he did get down to his goal weight but he has gained back 10 pounds he wants to loose. I want to another 35 pounds that I gained while on steroids for 3 years after I developed a rare disease. I have lost 15 pounds but could kick myself because I had lost another 5 ponds last October-November when he was so sick from his surgeries.

I did register him on Di Vita's website for information. I think the diet and nutrition part is sort of scary and the part I will have to learn as his care partner. We already know that when he actually;y starts dialysis that one of his cardiac medicines will have to be changed probably unless there has been research on it's use with dialysis patients, because when he started it there hadn't been.

Also there is a very expensive medicine that he now has to take for his Ulcerative Colitis that medicare part D (insurance has now denied any part of payment and it is $1438 for 3 months. We thought the $660 our part was high last year. The kidney doctor thinks he needs this one instead of the one he was staking that insurance paid in full. We wonder about the need for the expensive one when he starts dialysis.

  Member Comments About This Blog Post:

LINDA! 2/21/2014 2:34PM

    Sending prayers. emoticon

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MSLZZY 2/19/2014 10:48AM

    So many unanswered questions. Stay strong and get all the information you need. HUGS!

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TRAVELGRRL 2/18/2014 5:25PM

    Health problems are the worst. HUGS to you, hoping for the best.

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VONBLACKBIRD 2/18/2014 4:32PM

    I am praying for you both.

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ALFBUNDY 2/18/2014 4:24PM


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JUNEBUG4967 2/18/2014 1:42PM

    Wow, that is really scary! I will keep you and DH in my prayers.

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IDLETYME 2/18/2014 12:51PM

    Sending hugs and prayers to you and your DH. I would sure explain to the doctor about the terrible cost of the new medicine not being covered and see how REALLY necessary it is. emoticon emoticon emoticon

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Changes in Routine

Wednesday, February 12, 2014

Last night was a meeting of A Craft Guild I have been a member of for about 15 years. We had a Craft Shop where we members rented booths and volunteered to get $5. off our booth rent. The numbers of us who would keep the store open has dwindled and expenses and repairs have really been bad. I have volunteered 1-2 days a week for many years. I would use that day to work on my crafts. Last night it was voted to close that shop. The Guild will continue and continue to put money into what is a building fund and look for a newer building where there would be less repairs. Everything we had looked at was too expensive to rent.

Now I have 1-2 days more to work on my own craft rooms. There will still be craft shows and also I have put my name on a list to get a booth in what is called Mena Flea Market but this is a very neat clean place that has really nice stuff and not like a lot of flea markets. There are some booths there that have handmade items but many other items. There is a long waiting list there. The people who own the building also own vacant building next door to expand.

Now I have those days that I can have more days to go with my husband to the fitness center and we want to make a really long trip this late spring or early summer to Arizona, Oregon and Washington state to see my husband's children and grandchildren before he has to start dialysis.

  Member Comments About This Blog Post:

VONBLACKBIRD 2/13/2014 6:06PM

    That is so sad the craft cottage is closing. It is hard to sell handmade things today too. I am not physically able to do the craft shows and got burned trying to do a booth at a shop once so I'm afraid to step into something like that anymore. I am thinking of maybe selling more online on etsy instead. I have sold a little there but just have not worked it like I should to push it more. So maybe this is the year to do that.

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MSLZZY 2/13/2014 12:47PM

    That is kind of sad but opens your days to doing things you love. Enjoy the free time and see where it leads. HUGS!

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Back to fitness routine

Tuesday, February 11, 2014

Today and this week I will start back to my full exercise routine with my husband at the fitness center. Also this week I want to finish or work on what I'm setting up as my at home exercise workout area.

As was mentioned in comments to my last blog there are reasons to get regular medical attention. My deciding to exercise with my husband regularly did do more than just try to get fit. By going to the ER because of the severe chest pain while exercising it was discovered that I had another medical condition that could have lead to some very bad things, like a bleeding ulcer. I have to see a doctor regularly ever 3-4 months because of a rare disease I developed in 2007. Sometime in less time than that. Right now I was back to 6 weeks apart because my BUN , creatine and potassium levels were up on my regular lab in December but my next appointment wasn't for 5 weeks. I also wouldn't have been checked for H.palorii as part of that unless I had gotten worse.

So actually exercise has helped both my husband and I. My husband has always tried to be physically fit but due to some medical issues and other things he had gained weight in the last few years. Ten years ago I accidentally discovered what led to his diagnosis of renal failure and now facing dialysis but being physicality fit has helped him' He has now lost most of the weight he gained (60 pounds) , has not become a diabetic when his mother and aunts were all diabetics. I was on steroids for 3 years and got out of the exercise routine I had before I got sick.

Regular exercise is now a must for me. I have high blood pressure but for me it wasn't because of my weigh (hereditary), I have high cholesterol and high triglycerides but can no longer take the medicine to control it. My liver functions started being high and now I have had to quit taking one of my blood pressure Rx that had a diuretic in it because my kidney functions got abnormal (they have been borderline for years) , they started going down after taking the med every other day for 6 weeks and now I am not taking any regularly. I have my next labs in 2 weeks. I did have to start taking another BP Rx because the other two Rx can't be increased.

  Member Comments About This Blog Post:

MSLZZY 2/11/2014 5:15PM

    Sounds complicated but you know what to
do and seem to stay on top of things. Not
everyone pays attention to what their body
is telling them. Hope you get to feeling better
all the time.

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JUSGETTENBY42 2/11/2014 9:48AM


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Get serious

Monday, February 10, 2014

My husband has been much better displined in exercising regularly. I have been better starting this month. We have been going to fitness center together. Some of my volunteering interferes with me going every day. But I have made it made it 3-4 days for 60-90 minutes. My husband has lost 60 pounds and I had lost 20 but gained back 5 last month. I want to lose 35 pounds and my husband wants to loss another 10 pounds.

A week ago my workout ended after 20 minutes. I started having severe chest pain and since we we were just across the street from the hospital my husband took me to ER. I really didn't think it was my heart, I thought I was probably having esophageal spasm, but it had never happened when I was exercising. Back in August after having a severe episode I had a heart cath. I have had high blood pressure since my late 20's but it has been controlled. I am careful when I exercise about raising my heartrate because I take medicine to keep the rate lower to control PSVT episodes. When my heartrate gets above 100 I feel weird. I was admitted to ICU. Don't really know what it was but I could have got my heartrate up a bit to trigger the spasm but I have had chronic gastritis for years AND After I was admitted the lab work showed had H. Pylori so I am on 3 meds for 2 weeks and another for a month. The doctor said it was a good thing I came to the hospital so I could start treatment before it got worse.

Now to get serious about my health.

  Member Comments About This Blog Post:

VONBLACKBIRD 2/11/2014 7:08PM

    emoticon emoticon emoticon

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MSLZZY 2/11/2014 7:24AM

    Getting proper medical attention is a must and
now you know what you are dealing with so do
take care of yourself. HUGS!

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MNABOY 2/11/2014 12:28AM

    Great catch! See how exercise can save your life? My DD \'s MIL broke her foot and while they were examining and treating her discovered she had cancer. She is doing well due to the early discovery.

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DENI3513 2/10/2014 11:32PM

  So glad you got treatment, hopefully you can get back to working out. I sure wish my husband would go to the gym with me. Lucky you.

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