MAZACK   46,783
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MAZACK's Recent Blog Entries

Unwanted eye opener.

Sunday, May 04, 2014

This weekend we went to a motorcycle rally. Ate the motel we stayed in the there was a mirrow across from the shower that gave me a real unwanted view. It is amazing how much we can deny to ourselves when we don't look at the whole picture. I need to lose 35 pounds to get at my goal weight which is what I weighted 10 years ago when my husband and I got married, I had lost down more than that before neck surgery. But back then I had been going to fitness center an hour and a half a day and more exercise after my husband had died in 2002. I have been told, that is not a lot to lose and should be easy but for me it isn't easy. I had lost down 8 pounds a few months ago when my husband was critically ill after emergency surgery but have now gained that back, just loosing the 8 pounds after being stuck in my weight lose for months felt great. Our 10th anniversary is coming up June 3rd, I want to be getting back on track by then.

  
  Member Comments About This Blog Post:

MSLZZY 5/5/2014 7:09AM

    With a change here and there, anything is possible. emoticon

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Springtime woes and update on my DH's Renal Failure

Tuesday, April 29, 2014

I like springtime but it really causes me problems.. I have inhalers that I had started back on fulltime and some other meds but I went to doctor today. got two types steroid shots. Short term and to help inflammation in my lungs and a long term one. Got another antibiotic. I hate it when bronchitis goes that far.

Last week my husband was coughing so much and getting weaker and weaker so took him to ER (he had seen PA week before and was on antibiotics for sinuous infection) DH is in or near end stage renal failure and has had surgery recently to form a fistuala for dialysis. He was in CHF and also had to get 3 units of blood. He was given medication to lose the fluid around his heart and body and by his scales at home from one morning to the next he had lost 10 pounds. My DH also went to doctor for follow-up after being in hospital and getting all that blood. He will start getting certain blood test regularly every two weeks and if certain criteria are met he will get a shot that will boost his body to make red blood cells.and hopefully not have to get 3 units of blood again. I have to say that him being in renal failure is a family thing now that he has reached this stage. Sometimes I have a hard time of being positive and encouraging him.

  
  Member Comments About This Blog Post:

MSLZZY 4/30/2014 2:23PM

    Just love him and do the best you can for him and you. HUGS!

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RENATA144 4/29/2014 9:27PM

  God Bless you both emoticon

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ALIHIKES 4/29/2014 6:19PM

    So sorry that you are both suffering from health issues at this time. My thoughts are with you. My friend's DH also has congestive heart failure/diabetes, but he can get very focused on sitting in his shop finishing a table; maybe your DH also has something he loves that he can still do where he can forget his cares (reading? fishing? ...) Ditto for you if possible!
emoticon

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LAWANDMUSIC 4/29/2014 6:19PM

    Prayers flying up for you and your husband.

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PEZCATHY 4/29/2014 6:01PM

    My heart and prayers go out to you. I know it is hard for him, but I also know it is hard and will continue to be hard on you. Find a good support group for spouses of critically ill people (his doctor or the hospital will be able to advise you). It will be hard to stay positive, but I know you can do it. Sending hugs. Will keep you in my prayers.

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Count Blessings

Sunday, April 20, 2014

The past 30 days have been so busy. Sometimes when so much is wrong it is hard to count blessings. On March 20th my husband had what is called A-V fistula creation surgery. That was done to start developing a means for one type of dialysis. We have known for 10 years that he was in renal failure and has now reached what is called end stage renal failure. Now is the time to begin preparing him for dialysis that he was told could and would someday happen when he reached 20% or less kidney function. It takes at least 6-8 months or longer for the fistula to reach the stage of development that is best, but can be used earlier. This doesn't just effect my husband because there is a lot I have to learn also.

You may wonder about the title of this blog. Well Zack has had 10 years not on dialysis and there have been some advancements in treatment for other things wrong with both of us. We have built a support group in those years to be with us through a lot of stuff.We have a great church family and through CMA (Christian Motorcyclist Association) a worldwide family and more.

Yesterday we went back to where I graduated from High School for what is called the Annual Alumni gathering and banquet for anyone with any connection to the school. The town and the school are getting smaller in number of people now. The 50 year class are the honored class and my sister was this years President and planned the program. My 50 year class was two years ago. Some years ago they started electing someone from the 50 year class to be honored to first serve as vice president and the move up to president. It was a reminder of that even from a very small town of what was a little over 900 when I graduated and now is half of that, can go on to leave a mark that will be remembered for generations to come and people will remember there was such a place as Sparkman, Arkansas. Lots of high school coaches came from theree and the was a girls basketball team from the 1920's that are still talked about and a member in Arkansas' sports Hall of Fame. Lots became educators and member of all kind of medical fields came from there. Mine being in Radiology.

No matter how bad things get most people can remember a blessing at sometime in their life if they will only try. It is amazing how much even a smile can be to someone.

  
  Member Comments About This Blog Post:

VONBLACKBIRD 4/22/2014 10:54AM

    Praying for you Mary Ann. And you shouldn't have to worry about SP while all this is going on..Take care of yourself too besides your hubby. emoticon

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MSLZZY 4/21/2014 10:24AM

    I know and understand what you are saying. DH had a severe medical event last week Saturday night and it was a doozie. Thankfully I was home when it happened or who knows how it would have turned out. A whole new set of rules and conditions to be met but at least I can still nag at him. Life is what it is so move forward knowing you can do it. HUGS!

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Sunshine

Thursday, February 27, 2014

Today was warmer. This morning I was sort of dragging but got some things done, then this afternoon went to the fitness center for an hour and then when I got home I worked 30 minutes outside. I'm getting back to where I want to exercise not make excuses not to go. My husband and I are encouraging each other. His back was really bothering him so cut workout a little short.

Outside I trimmed back the dead stuff in some flower pots that line my front steps and across the small porch. and swept some leaves out of a flower bed. One I need to wait a few more weeks before I do much because I don't want to walk on some plants that are coming up but not quite whre I can see them enough.

Tomorrow supposed to be colder and maybe rainy so nothing outside tomorrow.

  
  Member Comments About This Blog Post:

MSLZZY 2/27/2014 11:42PM

    No way am I going to be going out at this time of year. We still have too much snow to even think about it. But I have hopes it warms up and stays warm so my tulips don't freeze again this year. Enjoy the outdoors as much as you can.

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MNABOY 2/27/2014 10:41PM

    It is freezing here now. My back gives me fits when I don't walk each day. It bothers me all the time but it gets my attention when I lay off walking/hiking or loosening it up. Maybe yoga will work too.

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Preparing for my husband to start dialysis is Scary

Tuesday, February 18, 2014

It is a little scary about what is to come. Seems like the more I read the more real and scary it gets. Yesterday my husband visited the dialysis center that is located here. It is a Di Vita Center. and brought home some literature. There will be meeting at the dialysis center on February 28th that the nurse who is in charge of the in home dialysis is having. Then March 6th the day after meeting with surgeon that will begin the fistula in his arm we will be seeing a 45 minute video about the different types of dialysis. His kidney doctor says that peritoneal dialysis would be great for him if it could be done here. He will probably get prepared for both types of home dialysis. with the center also.

When we first learned of his kidney failure 10 years ago and that someday he would probably be on dialysis it would have been 75-80 miles to the nearest center. Zack's kidney failure is due to a blockage of his urine flow by an enlarged prostate his doctor never checked out any thing but his prostate. I discovered a problem with his urinary tract by accident when I used his a a test person when the Radiology department where I worked got a new ultrasound machine and I was the one doing weekend and call Ultrasound coverage.

Zack has never been on a special diet. He was just to eat healthy, continue with his exercising regularly, keep his weight and blood pressure down, not become a diabetic like his mother and all his aunts..

Due to an injury to his ankle and his back getting reeally bad and developing atrial fib he got out of his regular exercise he gained weight. He has lost 60 pounds in the last year and when he had two emergency surgeries last year he did get down to his goal weight but he has gained back 10 pounds he wants to loose. I want to another 35 pounds that I gained while on steroids for 3 years after I developed a rare disease. I have lost 15 pounds but could kick myself because I had lost another 5 ponds last October-November when he was so sick from his surgeries.

I did register him on Di Vita's website for information. I think the diet and nutrition part is sort of scary and the part I will have to learn as his care partner. We already know that when he actually;y starts dialysis that one of his cardiac medicines will have to be changed probably unless there has been research on it's use with dialysis patients, because when he started it there hadn't been.

Also there is a very expensive medicine that he now has to take for his Ulcerative Colitis that medicare part D (insurance has now denied any part of payment and it is $1438 for 3 months. We thought the $660 our part was high last year. The kidney doctor thinks he needs this one instead of the one he was staking that insurance paid in full. We wonder about the need for the expensive one when he starts dialysis.



  
  Member Comments About This Blog Post:

LINDA! 2/21/2014 2:34PM

    Sending prayers. emoticon

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MSLZZY 2/19/2014 10:48AM

    So many unanswered questions. Stay strong and get all the information you need. HUGS!

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TRAVELGRRL 2/18/2014 5:25PM

    Health problems are the worst. HUGS to you, hoping for the best.

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VONBLACKBIRD 2/18/2014 4:32PM

    I am praying for you both.

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ALFBUNDY 2/18/2014 4:24PM

    WOW!!! THAT IS SCARY! WISHING ALL THE BEST FOR YOU & YOUR HUSBAND!

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JUNEBUG4967 2/18/2014 1:42PM

    Wow, that is really scary! I will keep you and DH in my prayers.
Gloria

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IDLETYME 2/18/2014 12:51PM

    Sending hugs and prayers to you and your DH. I would sure explain to the doctor about the terrible cost of the new medicine not being covered and see how REALLY necessary it is. emoticon emoticon emoticon

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