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Great day!

Saturday, October 18, 2014

My dear man had a great day today-
his 31st day in hospital-
now in an acute rehab unit-
bright eyed and clear thinking (relatively speaking)-
tired but eager to work on his recovery.
His mood was very stable and his walk was fairly steady (with a walker).
His speech was soft but fairly clear.
I know I should not let his state of recovery rule my mood and life but
OH WOW!
This was an amazing day.
Plus, we met a new doctor (a hospitalist) who predicted that David would recover most of his cognitive and physical abilities in due time.
We just need to be patient.
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  Member Comments About This Blog Post:

MEXGAL1 10/19/2014 12:58PM

    Oh that is simply great news all around. I know it will be a long effort that will test both of your patience. He is so lucky to have you as I know you will give him lots of love and support.
Best of everything to you Sparks buddy!
Peanut

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LKWQUILTER 10/19/2014 12:28PM

    emoticon That is GREAT NEWS!! Prayers are being answered and will be continued. emoticon emoticon

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HIPPICHICK1 10/19/2014 11:18AM

    That is TERRIFIC news!!! I'm so happy for you!

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PHOENIX40S 10/19/2014 9:11AM

    emoticon

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LEANJEAN6 10/19/2014 8:10AM

    You must be so happy!!!---

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WATERMELLEN 10/19/2014 8:05AM

    A great day indeed -- we are all rejoicing with you!!

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GABY1948 10/19/2014 7:02AM

    emoticon emoticon emoticon Prayers won't stop either! Totally understand you mood being linked to his progress!

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DOOBRIE 10/19/2014 3:26AM

    So lovely to hear this news and the new doctor's prediction. I'm not surprised David's state of recovery is affecting your mood - only natural. I'm glad he's in a good place where he can recover. Best wishes to him.

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NEW-CAZ 10/19/2014 3:12AM

    WONDERFUL! PROGRESS emoticon

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GOING-STRONG 10/18/2014 11:43PM

    So happy to hear a little good news! Yip!

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IAMBIZI 10/18/2014 11:18PM

    This is a great day. and of course things that happen to your man are going to affect your mood!
((((((HUGS))))))
bizi

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_UMAMI_ 10/18/2014 10:55PM

    Your joy is infectious! We need more of that!
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So happy to hear some good news from you, and hope there is more and more and MORE.
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Stay positive.

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TWILAQ1 10/18/2014 10:23PM

    That is EXCELLENT NEWS!

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EDWARDS1411 10/18/2014 9:37PM

    Wonderful news!!! And of course you are joyful - you deserve to be!!!
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JANTHEBLONDE 10/18/2014 9:22PM

    Yippee! Hooray! This is the best news I've heard all day! I'm so happy your honey had an awesome day! That is wonderful the new doctor predicted that David would recover most of his cognitive and physical abilities in due time! I am so happy for the two of you!
Hugs and love,
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46SHADOW 10/18/2014 9:10PM

    Yay!

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HEALTHY4ME 10/18/2014 8:34PM

    OH what great news.... so so thankful for you both and so happy. Now hope you can sleep a bit better this eve. I know how tiring it is to worry and care and hope and oh you know all that goes with it!!!! HUGS to you both !!!

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OURELEE1 10/18/2014 8:27PM

  Great great news All of you have been in your prayers

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MAGGIEVAN 10/18/2014 8:27PM

    Extremely good news. I am so happy for both of you. Thanks for sharing.

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JTREMBATH 10/18/2014 8:26PM

    emoticon emoticon

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I am beyond sad

Wednesday, October 15, 2014

I was warned that my dear man's recovery from the spinal bacterial infection, plus two other infections and encephalitis would be slow and long with peaks and valleys but after about a month now he seemed to be slowly improving, enough so that he could move to another hospital for 2-4 weeks of acute rehab.
David is still very flat emotionally but expressed happiness about the move.
He has not been sleeping well at all (like barely) and that is hindering his progress.
When they medicate him to get him to sleep, he is lethargic and sluggish and confused the next day.
And despite the meds, sometimes he still doesn't sleep much.
He tolerated about a half day of rehab on his first day yesterday (evals, really, they did not push him too hard) and then in mid-afternoon he just crashed....confused, exhausted, mumbling, would not/could not eat, tense and agitated.
Like he was two weeks ago! emoticon
The social worker called me and explained what seems to be happening and how they are dealing with him.
She said he has months, not weeks, of rehab ahead of him.
They will work intensively with him and then set him up with therapy at home.
And she said he may never recover fully.
It is well and truly sinking in to me and I am overwhelmed.
I am sad and lonely and feel incompetent.
My family and friends have been a great support system but I feel so alone and unable to deal with all of it.
And, as if I needed more, Hurricane Gonzalo passed almost directly over my second home on Anguilla and there is some wind and water damage to our beloved Jasmine Villa and I have no idea how I am going to pay for those repairs.
Thank goodness I have my grandbabies to hold and cuddle with...
they are my reason to get out of bed in the morning.



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  Member Comments About This Blog Post:

LKWQUILTER 10/17/2014 11:15AM

    Praying for all of you. emoticon

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LESLIESENIOR 10/16/2014 10:15PM

    I am adding my prayers and sending love as you navigate each day. Your David sounds so strong, as are you. I believe in the divine power of healing.
Sending a hug!

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HEALTHY4ME 10/16/2014 7:31PM

    OH man that is so much to deal with, my heart goes out to you both. I know as a caregiver that we get exhausted so fast and yet feel we have to go on. Please somehow take time for you, be it a bath, a good cry, an hour or two to do something that is fun. and don't feel that David wouldn't approve cos I am sure he would.

HUGS and we are all here for you, in spirit and in love.

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AJDOVER1 10/16/2014 1:48PM

    I'm here for you. Let me know if there's anything I can offer.
I can't tell you how much I appreciate you sharing your struggle here. You're in my prayers each day.
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BOOKAPHILE 10/16/2014 10:29AM

    I'm so sorry to hear this. You have every right to feel overwhelmed. Please be extra gentle with yourself. You are not incompetent. Know that many here care about you.

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PHOENIX40S 10/16/2014 8:41AM

    emoticon

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TWILAQ1 10/15/2014 11:10PM

    One thing after another. I'm so sorry you and David are going through all of this. Have you considered acupuncture? An evaluative consultation, perhaps?

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_CYNDY55_ 10/15/2014 11:10PM

    emoticon

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IAMBIZI 10/15/2014 10:18PM

    oh
elizabeth..i amsorry tohear this.
I send good health and wishes your way.
bizi emoticon

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SHAKENBAKE 10/15/2014 10:16PM

    So Sorry to hear about the challenges Elizabeth. Know you are being thought of and prayed for. Waiting and trusting is so hard. Love you friend. hugs, Wanda emoticon

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EDWARDS1411 10/15/2014 10:06PM

    emoticon

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46SHADOW 10/15/2014 9:56PM

    emoticon In my thoughts and prayers.

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BETHGILLIGAN 10/15/2014 9:00PM

    Elizabeth, My heart is breaking for you, dear friend. I can feel your loneliness and sense of being overwhelmed. It touches my heart and, like all the others, I wish I could say or do something to make it better/easier for you. It will be good days and bad days. Slow progress, some major steps. It is a lot to think about at one time. As you adjust to your new normal, it will get easier for you to manage. Lean on family, lean on friends, lean on anyone who is close to hold you up. Cry, be angry, and then pick it up and give David a big smile and hug. He will be working hard to get back to you. Try to take it a day at a time (or just a couple of days at a time!). Know that we are all here to listen and support as best we can. You are in my thoughts and prayers as is David.

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_UMAMI_ 10/15/2014 7:47PM

    You poor, sweet woman, of *course* you are beyond sad. My heart breaks for you. What can you do in a situation like this, but feel sad and overwhelmed?
For the time being, I wish you some rest, peace and family comfort.
And we're here when you need to vent....it's about all we can do.
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JOANNANOW 10/15/2014 7:07PM

    So many hard blows ... you have had to face one difficulty after another. I don't really know what to say now. I went through a terrible time back in 1992 there were so many difficulties and my grand babies were little ones like yours. They needed me and oh my I needed them so much. Little kids are such a blessing, when times are good they shine like the sun. When times are tough they take your mind to the joyous moments of childhood. I am so glad that your grand babies are in your life now. I know that will help you cope. Sending you thoughts of hope and healing. Wishing David every good possibility and the strength to carry on. Take good care of your self emoticon

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WATERMELLEN 10/15/2014 6:33PM

    Very sad and overwhelming indeed -- you have been strong for so long and now need maybe a bit of a break and simply to let it all catch up with you.

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DOOBRIE 10/15/2014 6:31PM

    That's a lot for you to take in. I'm so very sorry it is going to take longer than hoped for David to get better. Take one day at a time. There will be up and down days for sure but as time goes on there will be more up days. Keeping you and David in my thoughts.

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GABY1948 10/15/2014 5:26PM

    I am SO very sorry you are going through this. Prayers continue....as I read more and more my heart sank more. I do know someone in MI that went through this and it was almost a year now but he is doing pretty well now....praying for same in your case!

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LATVIAN_SANDY 10/15/2014 5:04PM

    Oh my gosh - that is not good news at all. Praying for you and your family, and to a quicker recovery than expected. emoticon

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FORZACHANDMATT 10/15/2014 3:30PM

    I am so sorry you are going through this - my thoughts are with you!

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GOING-STRONG 10/15/2014 3:29PM

    Elizabeth, I don't even know what to say... this is so devastating. I know you have the strength to get through this... but feel so sorry that you have to. Life sure does throw out some curveballs when you least expect it. Hugs to you, R.

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NEW-CAZ 10/15/2014 3:24PM

    Liz, this is so hard.
To say you are not alone and you have your Sparkfamily would sound so glib, but we ARE all rooting for David's recovery and we ARE all in your corner sending love and positive thoughts, I hope it helps.

If I was closer I'd be there like a shot! You have been, and will continue to, be in my thoughts and prayers; the doctors and therapists are there for you as well as David so lean on them too- get as much support as you can from them

Hug those grandbabies

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Comment edited on: 10/15/2014 3:25:34 PM

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WIFE48 10/15/2014 2:59PM

    Praying for you to be comforted in your time of need.

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MARITIMER3 10/15/2014 2:56PM

    Hi Liz...
Your blogs about David's illness and your struggles to cope reminded me again how important it is to be grateful for every good day. There are no guarantees, and a single moment can impact the rest of our lives.

Hugs and prayers. You CAN do it, because you MUST do it. Glad you have your grand-babies to cuddle to help keep you strong.

Hugs and prayers,
Gail

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MEXGAL1 10/15/2014 2:50PM

    I have been thinking of you and praying for you and your DH. I can't image what it would be like if my DH was in a similar situation. I would pray that he wouldn't give up like his father is doing.

I know you must feel overwhelmed and I am sure there is nothing that I can say in particular that would make it all better. Wish there was some way to make it all better. If I had a magic wand I would certainly wave it your way. And if I were closer to you I would see if I could come and help you out however I could.

Just know that I continue to pray every night for you and send tons of positive thoughts your way.

Hugs and more hugs to you my friend.
Peanut

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FIFIFRIZZLE 10/15/2014 2:28PM

    emoticon

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MAGGIEVAN 10/15/2014 2:01PM

    My dead friend, I wish I could help to support you but I am so far away. The only and best thing I can do is to keep you both in my prayers. Many hugs.

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JANTHEBLONDE 10/15/2014 1:56PM

    Oh my gosh! I am so sorry to hear the news on your husband's recovery! My heart goes out to you and your honey! Please don't feel so alone... you have your family, friends and all your spark buddies are here for you! You and your husband are in my prayers!
Hugs and love,
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SEPTEMBERSPIRIT 10/15/2014 1:48PM

    Oh Elizabeth I wish I could be closer to give you a real live emoticon

To see our loved ones in that state is so difficult. I am sending my prayers and positive thoughts. I'm glad you have your lovely grand babies to cheer you up.

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Better and better each day

Tuesday, October 07, 2014

My dear man is slowly recovering from a major medical crisis.
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On Saturday he could only say single garbled words.
On Sunday he could speak short sentences, not always making sense.
On Monday he could string more words together with more meaning (he slowly asked me if I was paying the bills on time-usually his job) and was getting his needs met.
Today he was speaking much more and more clearly but as he comes out of the fog he is much more agitated, impatient, irritable, etc., which the nurse said is completely normal.
He is sort of hyper-sensitive, besides being upset about realizing something terrible has happened to him and not being able to do anything about it.
They got him up into a chair for a while yesterday and a little longer today.
He is balking at the puréed food offered to him (he was unable to swallow for quite some days) and they are letting me bring soft foods from home.
He can stand, with two nurses helping, long enough to move a few steps from bed to chair.
He is still on three different medicines by IV but they are trying him on crushed pills in applesauce for one of them (yuk, he says).
Tomorrow they will do an occupational and a physical therapy evaluation, which will determine the next step in his recovery.
A case plan manager called me today (I took a much needed day off from the hospital to babysit...I have been with him 10-12-14 hours a day every day in the two hospitals he has been in for 19 of the last 21 days) and suggested a skilled nursing facility - a nursing home!
I said absolutely NOT (no offense to any SNF nurses out there) as he needs way more therapy than they provide. We are exploring acute inpatient rehab places for him and my fervent wish is that he will go back to Newport Hospital to their Vanderbilt Rehab Center.
Soon, I hope!
He is getting miiiiiiighty restless where he is.
Thnx again for all your support. As word is spreading in our circle of friends and family people have so generously dropped off soup and small meals for me...much appreciated as sometimes I don't get back home until 8-9-10 at night and am starving and too tired to think about a meal.
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  Member Comments About This Blog Post:

_UMAMI_ 10/8/2014 8:25PM

    My heart goes out to your DH. He sounds like someone who really wants to "do it himself" and doesn't want to be a burden. It's got to be so hard on both of you. I'm glad you have a support network there. I hope you get some kind of breakthrough and relief soon!

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AJDOVER1 10/8/2014 6:44PM

    I hope he gets to the rehabilitation center that's right for him. You're in my prayers.

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WATERMELLEN 10/8/2014 6:32PM

    That irritable thing is a pretty reliable indicator of progress, for sure!! All best in lining up the optimal rehab facility.

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SHERYLDS 10/8/2014 2:23PM

    hang in there Liz....lots of prayers and thoughts being sent your way emoticon

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EDWARDS1411 10/8/2014 2:12PM

    Good news!!!
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MARITIMER3 10/8/2014 2:06PM

    So glad that he is making progress, and I hope that you will be able to get him closer to home soon..

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LKWQUILTER 10/8/2014 1:34PM

    Prayers continuing for you and David. God is a wonderful God and heals. Remember to take care of yourself so that you will be able to help him when he comes home. Stay positive. ((HUGS))

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BOOKAPHILE 10/8/2014 11:05AM

    It's so good to hear of his improvement as well as your friends' care for you in providing meals. What a blessing!

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MEXGAL1 10/8/2014 10:46AM

    thank you for keeping us informed. I have been thinking of you. So glad to hear there is some progress although it is slow. I know what you mean about them "coming out" of their stupor and gaining awareness of what has happened and how critical they are. Have gone through that two times now with FIL. It sounds like it's going to be a long recovery and I pray that he has a better attitude than my FIL.
Sending many positive thoughts and prayers.
Sallie

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HIPPICHICK1 10/8/2014 9:25AM

    Thanks for the update. I'm glad to hear things are getting better for your man. I hope he can find it in himself to remain patient through the process of rehab.
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PHOENIX40S 10/8/2014 8:39AM

    I'm so glad that your DH is improving and that you have support from family and friends.

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46SHADOW 10/8/2014 8:23AM

    glad you are getting support in meals. Sounds like your husband is on a good recovery track. emoticon

Comment edited on: 10/8/2014 8:30:50 AM

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GABY1948 10/8/2014 8:16AM

    This is excellent news and progress! Still praying for both of you!

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SEPTEMBERSPIRIT 10/8/2014 8:00AM

    I'm happy to hear that he's making progress and that you are getting support for YOU from friends as well. Sending you love and emoticon

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BETHGILLIGAN 10/8/2014 7:49AM

    This is wonderful news!! Sounds like the sooner he can move the better! Hopefully, you can get him where you think it's best. I had to laugh that one of the first coherent things he asks is if you're paying the bills on time!! Take care of yourself, dear Elizabeth. I bet those grandbabies recharged you!

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TWEETYKC00 10/8/2014 6:08AM

    I hope he continues to get better. Take care of yourself as well right now. If you are run down, then what would happen? Hugs.

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NEW-CAZ 10/8/2014 3:16AM

    Liz, hun, this is so good to hear! You hunk is finally turning the corner emoticon good progress.
Hope he's even better today, keeping you both in my thoughts emoticon

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JOANNANOW 10/8/2014 1:25AM

    Thanks for the good news. May tomorrow be even better. emoticon

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IAMBIZI 10/8/2014 12:42AM

    what a nite mere.
Glad that you got to baby sit one day.
happy to hear of friends bringing you meals to help out.
a rehab facility is where he needs to go not some nursing home.
bizi

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DEBBIEANNE1124 10/7/2014 11:42PM

    I'm glad he's recovering nicly. wow! What an ordeal for the two of you to go through.

I'm getting ready to have a 2nd Cochlear implant surgery. I ahve to have a vaccine that is to prevent bacterial meningitis. I'm surprised your husband didn't get one.

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JANTHEBLONDE 10/7/2014 11:18PM

    I am so glad to hear your dear man is finally starting to recover! Woo hoo! You and your honey are in my prayers! Sending you lots of hugs!
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SUNSHINE99999 10/7/2014 11:05PM

  oh my that baby picture is cute. emoticon

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Another update

Sunday, October 05, 2014

We were told yesterday that my dear man David will probably be in the hospital for another two weeks (!) and then go to acute inpatient rehab for a month or TWO!
I don't know if they are trying to prepare me for the worst or just letting me know his journey back will be a long difficult one.
He still has significant damage to his brain from two bouts of bacterial meningitis and a viral infection that caused encephalitis.
He's unable to walk, talk much or eat.
Yesterday they did a swallowing test and he barely passed...they are starting him out with a few bites of purred foods, which he struggled with.
He has lost about 40 lbs since he hurt his back on July 1st.
He is in no pain and not aware enough to be upset with his condition (that will come).
He says a few words but struggles to get them out and often gives up.
My younger son spent most of the day in the hospital with me and that was nice.
My out of state sister home for a family wedding stopped by and he certainly recognized her and smiled. She said she was so happy to have seen him because it is hard to believe such a healthy active vibrant man can be struck down so quickly like that (she saw him at the end of July when we met in Anguilla for vacation).
So, one day at a time.
I came home last night at nine, looked around my house and realized how drastically my life is changed now. I will be learning to do a lot for myself, as well as taking care of him, and, of course, my adored grandkids (resuming that this week, come hell or high water!).
David and I had created a lovely partnership in our 46 years together with a mutually satisfactory division of labor but I'm confident I can assume both of those roles for a while.
I am assured over and over that David WiLL fully recover from all of this but it may take up to a year to fully resolve.
Awful, yes, but it could be worse!
Hold your loved ones close every single day because you never know what may happen.
So, I am walking by the sea with my sister in a few minutes,
Then going to visit my man for a few hours,
Then going to the wedding at four.
Have a joyful, peaceful Sunday!
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  Member Comments About This Blog Post:

TRAVELGRRL 10/7/2014 6:41PM

    You soooo deserve a break. Sending you warm thoughts and healing vibes for your wonderful husband. You will triumph.

I am in the midst of my own issues/battle/struggle with my terminal mother. We just take it one day and decision at a time, right?

We WiLL come out the other side, stronger and wiser!

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HILLRUNNER 10/7/2014 10:06AM

    Hi Liz,
I am adding my prayers and heart song to this already very long list of others who care about you and your situation. I hope and pray that your walk along the sea with your sister and the wedding you attended were a comfort to what you are dealing with day by day. Holding you, your loving man, and family up in prayer! emoticon May you find comfort in the words of so many here! emoticon emoticon emoticon

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AJDOVER1 10/6/2014 1:07PM

    You remain in my prayers.
It brings me joy to see the support you're getting here.

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GERIKRAGH 10/6/2014 12:08PM

    Prayers being sent for all of you.

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MILLIE5522 10/6/2014 11:26AM

    Sending you my love and hugs. It sounds as though you have gained a lot of strength from having had such a great relationship with your dear husband. I hope with all my heart that he recovers soon.

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RITZIBROWN 10/5/2014 10:02PM

    Prayers emoticon , love emoticon , peace emoticon and hugs emoticon to you and David. This may be one of the most challenging situations in your lives. It's good to see you have friends and family as well as the spark family to help both of you through this day by day.

Sending white healing light your way.

Carol

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EDWARDS1411 10/5/2014 9:33PM

    emoticon

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46SHADOW 10/5/2014 9:20PM

    emoticon sending out prayers for a good recovery. take care of yourself as you take care of him.

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DEE107 10/5/2014 8:54PM

    sending Prayers Liz also my church is going to Lourdes and they are taking a basket of prayers to the shrine I will add Dave and you on the list ... last year I got a viral infection only to relapse and it took me months to heal so hang in and will pray Hugs Dee a friend of NEW-Caz

I go to church everyday if you need more prayers email or hit my spark page

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HIPPICHICK1 10/5/2014 8:53PM

    You're right, it could be a lot worse. I'm praying for David's full and speedy recovery. One day at a time, dear one.
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FT4EVR 10/5/2014 8:42PM

    Sending lots of positive thoughts and prayers! Hope you found joy in your day too. It sounds like you had a wonderful day planned and I hope it worked out that way.
Thinking of you!
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HAWTGRANNY2014 10/5/2014 8:38PM

    I had 2 cancers 4 years ago and they thought I would die, yet here I am.
Hubby was in a nursing home 3 times this year for 6 weeks each time because of infections in his blood.
He has been fighting an ulcer in his foot for 5 years and 2 weeks ago he had his leg below the knee amputated. When he was in the nursing home, I was alone and I don't like being alone at all.
Now I have been in the hospital with him for 12 days, day and night. I don't drive and they let me stay day and night.
What I am trying to say is any minute things can change and we have to do our best. It will take time for him to do things like he did, but he is walking with a walker. He cant get a prostetic for about 3 months. Life is funny like that. It can change in an instant. I am sorry about your husband and will say prayers for both of you. You just have to be strong for both of you. Bless you both .
Pam

Comment edited on: 10/5/2014 8:40:48 PM

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MAGGIEVAN 10/5/2014 8:18PM

    My heart aches for you both. You are in my prayers.

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CINDYYB 10/5/2014 7:52PM

    Hello Spark Friend, please be encouraged by the many hearts here that are sending you love and offering prayers for you and your dear hubby! We are a circle of good that can absorb your cares, concerns, tears and joys with you. Yes, JOY. It will come. Your life is indeed different but that doesn't mean the joy is gone. Much love winging your way, dear. Have a great week enjoying those grandbabies. emoticon emoticon emoticon

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NANFACEMIRE1 10/5/2014 7:38PM

    So sorry that you and your husband are going through this really rough patch. I will keep both of you in my prayers and hope that his recovery is a full and complete one as they are telling you. It will be hard, but from this blog I just read, you are strong and you will do it. Sending hugs and lots of prayers. emoticon emoticon

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IMEMINE1 10/5/2014 7:19PM

    Sending prayers your way. emoticon

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RICKISMOM1 10/5/2014 6:44PM

    Meadsbay, you are doing GREAT! You are rising to meet the challenge, and will learn to do those many chores that your husband did until now. But I am glad to see that you are also taking care to continue YOUR life: grandkis, etc. So you will be just fine. May it be as easy as possible!

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BREEZE70 10/5/2014 6:24PM

    Hi Meadsbay, I am so sorry about you situation. I will keep you and your family in my prayers. emoticon Breeze

Comment edited on: 10/5/2014 6:25:08 PM

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DOOBRIE 10/5/2014 5:58PM

    You are right - you never know what is going to happen in this life from one minute to the next and that's why it so important to cherish our loved ones and be grateful for every second we have with them.

I'm pleased to hear that David has a good prognosis even though it will take a very long time. Thank goodness you are such a strong woman and can do this without crumbling. Just what David needs at this time.

I was horrified the other day when my DH told me he had moved our old heavy reclining chair into the garage by himself (when he could so easily have asked our body building son to help him). I told him about David's accident and reminded him that we're getting older now and it's so easy to push our bodies too far. I know we like to still think we're young and fit but the truth is we're not the same in our sixties and we have to accept that.

Do take care of yourself Elizabeth and enjoy the moments you can catch with your grandchildren. Keeping you and yours in my thoughts everyday.

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GABY1948 10/5/2014 5:46PM

    Hi, Liz, I just heard of your plight and wanted to come by and say that I am very sorry....and I am adding prayers for you and Dave and your whole family. Our God is an awesome God and He can definitely take care of this and is still in the healing business!

You sound good for the situation you are in so definitely stay healthy in the process. God Bless!

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SHAKENBAKE 10/5/2014 5:37PM

    Thinking of you and know how difficult life challenges bring. Remember we are all here for you and will be praying for you. Please keep us posted. hugs, Shakenbake

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HEALTHY4ME 10/5/2014 5:26PM

    I have to say I am so sorry for your dear hubbys health issues and all that means to you and your family. I too have a great man and we do have division of labours but I guess we learn. I know you will do fine.
Wanting you to know, my son had bacterial meningitis at 10 months and is now a 36 year old father of 2. He has crohns which he manages. Also my neighbour had meningitis at age 21 and is now in her late 40s and fine too.
I am sure it will be a long road, but everyday is a day further down the road to health.
HUGS and I will be thinking of you all.

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INDORTY 10/5/2014 5:05PM

    emoticon emoticon emoticon

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PATRICIAANN46 10/5/2014 4:57PM

  Hi Liz..........
We have never met, but Caz informed me of your situation and I would like to give you some encouragement. My husband and I have also been together for 46 years and have a definite division of labor around our home. We have also had to change places off and on over the years due to health situations and have managed to do so quite well. We, too, are very close as spouses and also as best friends. We have 2 sons and 2 Grand-daughters that we adore. I hope that you will gather strength from your children, grand-children, sisters, brothers, friends, etc. and that you will take the time to take very good care of yourself.
My brother had a very similar situation and is doing very well now. It is a long road to recovery, but recovery does happen. I wish you the very emoticon and please know that you are in my thoughts and prayers.
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Patti

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HOPE2BE 10/5/2014 4:32PM

    Sorry to hear about your husband. I will certainly say prayers for both of you knowing you both need it. Years ago although not in the same circumstance as you, I had a father leave me and his child and left us to fend for ourselves. Just know that God will protect you and not put you through more than you can handle although I know it doesn't always seem that way. Other people saying prayers for you help but also just praying to God for seemingly endless times still help one self. Know he is there helping you around every corner and know that when you least expect it he will show his shining face to you in the darkest times when you feel like you're all alone. Don't give up Hope and know he will pull through this. Keep me posted because I'll love to hear from you. I know things may seem hopeless right now but not to God. He can pull off miracles like you never expect. Prayers for you two. Hope

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REDHATSHAPELY1 10/5/2014 4:22PM

    Please know that you are in my prayers. God will give you both the strength you need to get through this. You are a special person and you will grow even stronger as a result of doing what you need to do to support your dear husband.
God Bless You!
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DEBBIEANNE1124 10/5/2014 4:01PM

    Lizzie, I'm so very sorry for the changes in your DH's condition. I wish I could say something to help you feel beter. I pray that he can fully recover. Hang in there.

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IMAGINE_IT 10/5/2014 3:37PM

    emoticon I don't know you but I am wishing you Strength for the coming weeks and beyond....try and stay positive even if it is difficult.....you and your husband will conquer this. emoticon

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SEPTEMBERSPIRIT 10/5/2014 3:32PM

    Elizabeth - you are an earth angel and I know you will get through this. All the caring you provided for clients prepared you to adapt so easily to the changes you're facing now. Positive thoughts for his recovery as well. Thinking of you emoticon

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KELLIEBEAN 10/5/2014 3:10PM

    I'm so sorry to hear about what you are going through. I will keep you and David in my thoughts and prayers for some time to come and hope that his road back to recovery is shorter than they expect.

I am wishing you much love and strength in the coming months. You are not alone!

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MARYJOANNA 10/5/2014 2:47PM

  Please know you are being lifted up in prayer. Psalm 30:2 - " O Lord my God, I called to you for help and you healed me." Keep the faith!

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SHERYLDS 10/5/2014 2:14PM

    Oh Liz
You are in my thoughts and prayers. Hang in there my friend.
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AKELAZ 10/5/2014 1:08PM

    I have read your blogs about your husband on and off because we have a couple of mutual friends and I see them following your story. I haven't commented up to now as we are not officially friends but am doing so now thanks to Caz. i am SO sorry that your hubby's condition has gone this far. I can't imagine how hard it must be for you to get through this difficult time but please know I'm thinking of you - and of him - and wishing you well. Take care of him and of yourself - you need each other at this time. Stay strong - as you patently are a strong woman - and lean on your family, friends and us Sparkers when you are in need of succour and help to get through.
All the very best to you both - emoticon emoticon

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LKWQUILTER 10/5/2014 12:47PM

    Liz, you have been strong so far and will just continue to be strong. It is surprising what we can do when we have to. Praying for you and your David. emoticon emoticon

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TWILAQ1 10/5/2014 12:10PM

    Liz, the previous posters have posted thoughts more eloquently than I can, but know that I'm thinking of you and David and your family as well. It's going to be a long hard road, but keep your head up and your heart full of love.

Your work as a caregiver makes you utterly qualified to help David get onto his road to recovery.

Love and hugs,
Jodi

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IAMAGEMLOVER 10/5/2014 12:05PM

    I am so sorry you are going through such a terrible time. Caz sent me to your page to remind you that your spark family cares and you have all of us to lean on when you need to. It is good that you are remembering to take care of you. That will be so important. Saying prayers and sending hugs.

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ALEXSGIRL1 10/5/2014 11:35AM

    emoticon and prayers for you during this difficult time , I am a friend of caz you have a long difficult road but you are not alone remember to take a few brief moments for yourself emoticon each day

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JOANNANOW 10/5/2014 11:34AM

    It's hard to find words for you. I'm so glad the little ones are in your life. Take good of yourself. emoticon emoticon

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LIVINGLOVINLIFE 10/5/2014 11:34AM

    Liz;
I read your blog by way of a mutual spark friend and wanted to drop by with my love, prayers and understanding. I have been a caregiver for several friends and family. I have been alone now for 3 years. I totally agree never take your loved ones or your place in life for granted because it can change drastically in a heart beat. It is wonderful that they have given you a prognosis of full recovery but it will be a long hard journey I am afraid.
But that said I know you and David will do this and form a stronger bond for it. You have been together for a long time. Obviously you are a strong couple. Accepting limitations and pushing each other to do better reaching for dreams is what kept your love strong. Do this together. Stay optimistic, enjoy each day. You will have to do more you know that. You will have to be strong for both of you for a while. He is going to be angry, frustrated and depressed. He is going to want to give up and quite. He is going to hate being dependent on you and others. But with your love and encouragement he can come back.
Know that you have a lot of friends here for you. Here you can vent your frustration and anger and shed your tears. We will be here for you. I have added you as a friend. You can stop by my page anytime or email me if you need to talk. Hugs emoticon

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MEXGAL1 10/5/2014 11:32AM

    My heart is breaking for you. Yes, how our lives can completely change. This just breaks my heart as I know how upsetting this must be for you. I can remember not too long ago seeing photos of the two of you in Europe. Your DH looked the picture of health. Just goes to show you that something we would consider "normal"...like working on the boat can change our lives.
Sending many hugs and positive thoughts.
Peanut

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IAMBIZI 10/5/2014 11:17AM

    thanks for the update.
Am worried about you.
take care of yourself too. eat well and sleep well what ever it takes. You have to stay healthy and strong for your man now.
(((((HUGS)))))
bizi emoticon

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LESLIESENIOR 10/5/2014 11:15AM

    There are almost no words to say that will help you at this very, very difficult time. God will give you the strength and courage to continue on this road to his recovery. I'm so glad the doctors have assured you he can, and will, recover. I will say again to take care of yourself. The care giver, as you well know, is subject to stress and fatigue that the patient isn't even aware of at the time. I know this well, from our own past situations.
God bless you and enjoy your walk and your wedding today, if you can.

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GEMLADYONE 10/5/2014 11:05AM

    I'm impressed by your strength and fortitude in this difficult situation. Your friends and family are supporting you....and you are right. The rest of us should not take for granted the good times we have with our loved ones. You never know when they can turn to difficult times....but it is part of life.

Keep them all close and have faith. You will get through this time and things will work out.

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JANTHEBLONDE 10/5/2014 10:56AM

    My heart goes out to you and David! You and David are in my prayers and thoughts! Sending you lots of hugs today!
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MARUKI52 10/5/2014 10:56AM

    What a very difficult time you are going through with your beloved husband. I am so sorry to hear about your problems but I hope that he will recover given time. Sending prayers for you and your family. I hope tha,t even given the situation you find yourself in, you were able to enjoy the wedding.
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AEHEGE 10/5/2014 10:38AM

    emoticon to you, and thank you for sharing this blog. Your words about making every minute count with your loved ones is so true and should be considered by all.

You seem like a person who gives of your self to others. Remember that self care is important, too, and it looks like you are aware of that also, as you continue with your grandchildren and family.



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BOOKAPHILE 10/5/2014 10:26AM

    This is very hard. My heart goes out to you. I'm glad the prognosis is for David's recovery. You are doing well juggling the many parts of life that don't stop when a crisis and its aftermath occurs. Be gentle with yourself, and hug the many precious family members and friends in your life as they come within reach.

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WATERMELLEN 10/5/2014 10:23AM

    You're doing all that you can: keeping on keeping on, discovering your strength. Wishing your DH all best. You too.

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IDLETYME 10/5/2014 10:14AM

    I'm sooo sorry to hear about Hubby's problems. Just know that we are all sending thoughts and prayers to makes his days easier and to let you know we are praying for you and the family too. emoticon emoticon

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LEXIE63 10/5/2014 10:11AM

    emoticon So sorry to hear about this. I hope your lovely man has a good recovery, and that you two emerge from this stronger than ever.

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My heart aches for my dear man

Friday, October 03, 2014

He has suffered so and been through so much since hurting his back working on our new boat on July 1st.
I will not give you all the details (see last few blogs) but here is the latest version:
The bacterial spinal meningitis has come back as his antibiotic apparently failed
(we hear so much about antibiotic resistant bacteria...well, here it is...the bacteria changes as it gets used to the antibio being administered).
He has had fevers and he is unable to walk, talk, or eat since Monday as the infection is also in his brain.
We moved him to a bigger hospital on Tuesday with a larger infectious disease department.
He is in serious but stable condition.
They changed the antibiotic, added another and are keeping him safe and cormfortable while his body fights the infection.
He is not in intensive care, like last week when it started, as his vital signs are all stable and the fevers have improved.
He is a bit better today, less fever, eyes open more but does not know where he is or why.
When I kissed him hello he mumbled 'who are you?'
He keeps smiling at me, though.
His body is hard at work fighting the infection off and it will take some time.
He should be here at least another week and then will be in acute rehab, which is also in a hospital setting. I will try to get him moved closer to home so his family can visit him (right now we are about an hour away).
I have been with him 12 hours or so every single day and cry when I think about how much I miss my beloved grandbabies.
But he needs me more than they do right now.
Thanks so much for your spark love, goodies and kind prayers and messages through this difficult time.
Xoxo

  
  Member Comments About This Blog Post:

IMEMINE1 10/5/2014 7:21PM

    emoticon and prayers to you both.

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TWILAQ1 10/4/2014 9:20PM

    Take good care. Love and hugs to you.



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AJDOVER1 10/4/2014 7:30PM

    My prayers are with you both. I've been following your experience with some anxiety as my Guy's back surgery is scheduled for later this month. I appreciate you taking the time to tell us what's happening.
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Take care of yourself. You need to be at your best as well.

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MAGGIEVAN 10/4/2014 3:19PM

    I am so glad to hear that there is improvement. Hugs to you both!

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FIFIFRIZZLE 10/4/2014 2:15PM

    Thank goodnes your DH is in a hospital that has the facilities to support him best. I know he tiring it can be attending to a hospitalized loved one. Can you find somewhere to stay closer to the hospital so that sometimes you don,t have to make the long journey.

Of course you are crying for life as it has been, it does seem that things will not be the same as they were for a long time.

Just a word on moving facilities, if I may. Rehab is so very important, especially at first when the most advances can be made, you will want to pursue the best care most suited to his needs, no matter where. Because DHs recovery outcomes have to come first, they will have a serious effect on your life together.

Hugs from Fifi.


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ATHENA1966 10/4/2014 12:00PM

    Sending prayers to you and your husband. I am so sorry you are going through this. It hurts to see someone you love in pain.

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DEBBIEANNE1124 10/4/2014 8:56AM

    My heart really goes out to you.
We're behind you all the way. Be strng.
Hugsxlxl

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PHOENIX40S 10/4/2014 8:32AM

    emoticon

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NEW-CAZ 10/4/2014 2:39AM

    oh my word, Liz, I am so saddened to hear this, prayers for both of you coming your way emoticon emoticon

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GOING-STRONG 10/3/2014 11:50PM

    Oh Elizabeth... this has gotten much more serious than expected. I'm so sorry for you and your dear husband and pray the good Lord embraces you in his peace and strength.

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LEANJEAN6 10/3/2014 11:34PM

    Oh that is terrible--=--Prayers for you both are coming yer way!--Lynda

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IAMBIZI 10/3/2014 9:57PM

    you and your hubby need good thoughts and intentions sent your way.
(((((HUGS)))))
bizi

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46SHADOW 10/3/2014 9:52PM

    emoticon emoticon Take care of your hubby and yourself. Sending prayers.

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JANTHEBLONDE 10/3/2014 8:42PM

    Oh my gosh! You and your husband are in my prayers! I pray that he gets well soon! Sending you all my love!
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EDWARDS1411 10/3/2014 8:00PM

    I'm so very sorry to hear that your dear hubby's health has gone from bad to worse. Praying for his speedy recovery!!!
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Comment edited on: 10/3/2014 8:02:43 PM

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TRAVELGRRL 10/3/2014 7:55PM

    Soooo sorry!!

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DOOBRIE 10/3/2014 7:15PM

    This brought me to tears, knowing how much you love your DH. Sending as many healing thoughts as I can.

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WATERMELLEN 10/3/2014 5:59PM

    Yes, he needs you more -- and you will want to be right with him too.

All best to you both.

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ALIHIKES 10/3/2014 5:01PM

    My thoughts and prayers are with you and your DH. Hugs and best wishes,
Alison

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SEPTEMBERSPIRIT 10/3/2014 4:42PM

    I'm so sorry you are going through all of this Elizabeth - and that your DH is suffering so ... I pray he gets well soon. emoticon

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BETHGILLIGAN 10/3/2014 4:00PM

    Elizabeth, my heart aches for you and your husband. This has truly been a nightmare for you both. It's good to hear he is doing a bit better today. What is the rehab looking like? How long and what will he need. I'm sorry--probably a bit early for those questions. You and your dear husband remain in my thoughts and prayers. I'm sure those grandbabies miss you, too! Hopefully, it won't be too long til everyone is home again. Hugs!

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JOANNANOW 10/3/2014 3:43PM

    Steven_D is right on .... my thoughts exactly. Please take good care of yourself. So glad things are looking up today. Sending you my very best wishes.

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MARITIMER3 10/3/2014 2:49PM

    Oh Liz... what an ordeal for both of you. I am so glad that your husband was moved to a bigger centre, even though it's farther away. Lots of prayers and hugs coming your way.
Gail

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WIFE48 10/3/2014 2:25PM

    Sending prayers and hugs your way. Take care of yourself!! emoticon

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MEXGAL1 10/3/2014 2:11PM

    Oh my goodness, this breaks my heart! I know the two of you have been together forever.
I pray that he gets well soon!
Peanut

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STEVEN_D 10/3/2014 1:46PM

    Wow, that's hard to read. Prayers for both of you. I hope that you are taking time for yourself. So many times I have seen spouses just exhausted from all the things they do while their loved ones are going through difficulties. Please take care.

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