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Easter Sunday

Monday, April 21, 2014

I meant to post a blog yesterday, but I was just too tired.

As you know if you regularly read my blogs, going to church on Easter Sunday was very important to me (and not just because of the new dress). Well, I wanted to let you know, that I made it! It was looking doubtful Saturday night; I had woken up in the middle of the night with a migraine and it took a long time to break the headache after taking my migraine meds, so I didn't get a lot of sleep. But somehow, I rallied in the morning and I was able to go.

It was the first time I had been out in weeks that wasn't for a medical appointment, or to buy groceries or pick up a prescription. It also lifted my spirits to see so many people that were glad to see me. I enjoyed the service, but when it was over, I was ready to go back home.

I did a short 20 minute workout, but I was too tired to do anything else the rest of the day. I ended up taking a nap late in the afternoon, which is something I rarely do, because it usually makes it too hard to sleep at night, but ended up going to bed at 11pm and fell asleep fairly quickly.

The issues with the diarrhea haven't improved a whole lot. I have noticed lately an increase in my joint pain, all over, in the past week. Last night, even my hands were hurting. I think whatever is causing the inflammation of my digestive tract is causing my joints to hurt as well. I have a feeling my anemia may have slightly worsened too, but I see my oncologist tomorrow, and they will be drawing blood to check my blood counts, and my potassium as well.

  
  Member Comments About This Blog Post:

SLIMMERJESSE 4/21/2014 10:18AM

    I'm so glad you were able to go and have a happy time. I understand what it's like to be housebound except to pick up meds or go to doc. Glad you have your appt tomorrow and they can help you. Have a good day.

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SIMPLELIFE4REAL 4/21/2014 10:16AM

    I'm so glad you were able to get out yesterday. That does so much to lift the spirits! I know people were really happy to see you.

I'm so sorry the intestinal problems really aren't getting better and joint issues have set in. I know that none of that is no fun and gets so wearing day after day. Ugh.

Thanks for letting us know how your day went yesterday, and how you are doing today.

I'm hoping that your MO (or GI doc) can get to the root all this and provide you with some real relief.

Wishing you the best.

Hugs,
Kay

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MYTURNNOW2013 4/21/2014 10:02AM

    So happy you could make it out for a non-medical, non-grocery outing! It is possible, with all the diarhea, that your joints are hurting from the loss of minerals, including potassium.

Your oncologist will get to the bottom of it. Hope today is restful for you.

LOVE the new dress!

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ANAWESOMELIFE 4/21/2014 9:43AM

    So glad to hear that you made it. I bet you looked lovely in your new dress. ❤️

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"How Do You Do It?"

Thursday, April 17, 2014

"How do you do it?"; that is question I have been asked a lot over the years of being treated (and I am still in treatment) for stage IV breast cancer. This month marks 7 years since my cancer returned, this time to my bones. Next month marks the 11 year anniversary of my original diagnosis, which was stage II breast cancer. (Now my cancer is stage IV, and incurable.)

There is no simple answer to that question, "How do you do it?". I don't really know myself how, it's just something I do because I have to, I have no other choice. People often tell me that if "it happened to them" (meaning cancer), that they couldn't go through what I have and am still going through, but the truth is, they would if they had too. No one plans ahead of time having cancer; it's not something most people expect is going to happen to them. Most people, when they get that news, they are going to try out whatever treatment is offered, in hopes of a cure, or if not a cure, at least a chance of a longer life.

I have been called "brave" and "courageous", but I am neither of those things. Cancer is not something I chose to fight, it chose me. I am only doing what I have to do to slow down it's progression and live as long I can with it, at least until it gets to the point where the treatments are making my quality of life suffer too much. Having cancer does not make me any more noble than anyone else, and it does not mean that my troubles in life are any worse than anyone else's. Everyone has their burdens in life to carry; some are just not as visible on the outside.

By the way, I am NOT saying that people with cancer are not brave or courageous, I just mean that I don't feel those terms apply to me. (And I've already made it known to my family that when the time comes, I do not want those words used in my obituary.)

This disease has limited what I am able to do physically, but I refuse to let myself feel like a "victim". It's important to me to retain as much normalcy to my life as I can, and do as much for myself as I can, even though some things (such as doing housework) may take me longer than someone who is in good physical health.

It's also important for me to keep up a fitness routine, even if right now it's just my Sit and Be Fit workouts or chair aerobics. I know that at this point, diet and exercise won't add years to my life, but hopefully, those will add to the quality of what I have left. And I want to show people that having an incurable disease doesn't mean that you should just give up and wait to die. Even if you are not in perfect health, there are many good benefits to exercise to help you be as well as possible under your circumstances. In most cases, there is no excuse NOT to exercise, I am proof that there are ways to work around health issues and limitations.

I don't talk about it all the time, but I do have my days where I feel down, and wonder if it's all worth it; I think that is normal for anyone with a serious illness. I have my moments where I feel sorry for myself, or just plain depressed. It's good to vent those feelings sometimes, but on the other hand, it's not something that other people constantly want to listen to either. Sometimes, I feel like I have to hold back so I am not bringing down those around me.

I've also been living with this disease for so long, that the way I live now is "normal" to me; it's amazing what you can adjust to and get use to when you have no other choice. And as much as I hate using cliches, I really do get through most of my days just "one day at a time". There is also a quote a like, and I don't remember who said it, but it sums up how I feel; "Every day may not be good, but there is good in every day."

  
  Member Comments About This Blog Post:

PIMPINELLAN50 4/20/2014 8:22PM

    Shari,
You have written yet another beautiful and candid blog.Thank you for sharing your life's journey with us.Hope that you get a chance to go to church over the Easter Holiday.The new dress that you bought is very feminine and pretty!Wishing you,your mom and Rhonda a wonderful and Happy Easter!
Warm hugs from Marianne. emoticon emoticon emoticon

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SLAYINGDRAGONS 4/19/2014 10:03AM

    Thank you for sharing these special thoughts, Shari. I know it has been quite awhile since we've connected and I saw your face on another friend's blog, so here I am! I love what you have to say about how you get through your days. Although you may not feel like it, you are a hero in many respects simply because you do what others can't imagine they could do. You are an example of how not to give up and give in, altho I am sure you feel like it many times. It never helps to hold your breath or put your life on hold, so to speak, because none of us knows how many days we are given or whose lives our live may touch and encourage or at least give permission to share a burden, a prayer, a thought, a hug, a clue. Whenever I come by to check on you, I am encouraged to face reality and keep moving forward to the next thing, the next moment, the next job, the next opportunity.

Happy Easter! I hope you do get out to church and that the message, the weather, the people, the flowers all bring you hope, peace, and love to surround your heart and mind with the positive things of this world we live in today. Every life counts, every life is connected in some small way, and I am so glad that you are still here.
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TRACYZABELLE 4/19/2014 12:02AM

    You are an amazing warrior!! Keep up the fight!!!

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KITT52 4/18/2014 2:35PM

    emoticon

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OPALMOON 4/18/2014 3:07AM

    Dear Shari,
You have written another down to earth, honest and straight forward blog. Like Kay, my first thought was to bookmark it too (mine is under "Motivational").
Even if you don't like to be called 'brave' or courageous', there can be no doubt that you are immensely inspirational in your positive approach and healthy attitude to your experience. You are right in what you have written - the way forward for anyone facing a challenging life experience is 'one day at a time'. I don't see that as a cliche; rather a truism. I can see how this has worked in my own case, and can relate to your day- to day ups and downs, which are indeed normal. I also understand how easy it can be to feel overwhelmed and feel it is all too much.
I cannot tell you enough how much your blogs have helped me to keep going, and we are all blessed for the privilege of reading them - and even more so, of knowing you, even if that can only be through cyberspace.
May God bless you always,
Love and hugs, Nattacia

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ANGELBELIEVER 4/17/2014 9:52PM

    Hi Shari,
Loved your blog. You are so open and honest about your feelings. That's one of many good things I admire about you. You live life every day and continue to bless other with your positive attitude. emoticon

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LIZSPRINGSTEEN 4/17/2014 9:41PM

    emoticon

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NPA4LOSS 4/17/2014 8:29PM

    emoticon My friend! emoticon

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YELLOW09RED 4/17/2014 8:15PM

    Your blog is wonderful Shari,
I'm so blessed by your friendship.
God bless you.
I wish I could give you a hug in person.
I pray you have good days.
I love reading your blogs.
You are graceful and sincere.
Sending my Spark Hugs,
Good night friend,
Debbie emoticon emoticon emoticon emoticon

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GEORGIAGIRL26 4/17/2014 7:34PM

    Sending hugs, thoughts, and prayers your way sister.
Your friend in Fitness, Holly emoticon

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CELLOPLAYER1 4/17/2014 6:48PM

    Thak you for sharing!

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BETHGILLIGAN 4/17/2014 5:49PM

    What a wonderful, insightful blog. Thank you for sharing this with us.

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MADMIRANDA 4/17/2014 5:40PM

    A great blog and whether you like it or not inspiring. I pray for you every single day and I hope it helps in even a little way. God bless. I hope you get to church over Easter and get to show off that new dress. Give my love to Rhoda and your Mum. emoticon

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GRETA242 4/17/2014 5:18PM

    I'm so sorry you have cancer. Thank you for sharing part of your story with us. I feel helpless. All I can do is offer a virtual hug (if you want one) and/or hold your virtual hand and cry. You give a very clear picture of your future. I'm glad you can vent here--really vent. Your words and blogs will remain long after you--or any of us are gone. I find encouragement in your story. I don't know what else to say. emoticon

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MYTURNNOW2013 4/17/2014 4:31PM

    Shari thank you for sharing your cancer journey with us. The good, the bad and the ugly. Yes, no one chooses to have cancer. But you do choose to either beat it by living longer, or letting it beat you.

Cancer is an equal opportunity disease. It attacks young, old, rich, poor, male, female, all ethnicities and religions. YOU give us hope that we can and WILL carryon if we are ever stricken with it ourselves.

I am so honored to have you as a friend and share this journey with you.

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SIMPLELIFE4REAL 4/17/2014 4:13PM

    Shari, I have actually bookmarked this blog and saved it under my "coping skills" section of my cancer bookmarks. I think you have hit the nail right on the head about bravery. Those of us fighting cancer make a choice to live and we do what we need to do. It's not a question of bravery, it a matter of facing "what is" and going from there.

I have often thought of asking you "how do you do it?" I'm so glad that you chose to write a blog about it. Nothing that you have written surprises me because I've had the honor of getting to know you better the past seven months, but I still really appreciate seeing it all down in print. I think what I really like about the way you handle things is that you don't sugar coat what is going on, but you also somehow manage to keep a "can do" attitude in the midst of your battle. Your desire to maintain independence serves you well with this.

A lot of what you said about exercise is mirrored in Dr. Block's book Life Over Cancer. He is a big advocate of doing some form of exercise no matter how bad we feel. He believes even patients totally bedridden enchance their QOL by movement. I agree.

I'm hoping you are feeling a little better today.

Thank you for taking the time to write this wonderful blog.

Hugs,
Kay

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UNICORN212 4/17/2014 4:07PM

    We are all in awe of how gracefully you are dealing with it, and are hopeful that we will be able to do the same if we should ever have the same type of diagnosis. (And even those of us who are "healthy" have days where we wonder if it is all worth it.)

So just smile and say "Thank you" - and hopefully we will all write down and remember your last sentence: "Every day may not be good, but there is good in every day."

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ICEDEMETER 4/17/2014 3:49PM

    When a friend asked him how he "could carry on so normally when you're dying", my late husband's response was that he was NOT dying - he was LIVING, and that he was going to continue to do that until he took his last breath.

LIVING, for everyone, has trials and tribulations, and pain and suffering, and challenges and opportunities, and oh so much love and joy...

There are many people, with or without terminal illness, who choose to be "dying" - you have chosen to LIVE and love and see the joy.

You may not think that it's brave or courageous or strong to have made that choice, but it's not the easiest option, so you'll just have to forgive those of us who do think that you're brave - and who are grateful that you share your perspective with us.

Strong thoughts and gentle hugs...

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SLIMMERJESSE 4/17/2014 3:39PM

    What a beautiful blog. This is exactly the course my cousin's cancer took - first breast cancer and then came back in her bones. I lived with her for awhile during the breast cancer time, so I know the behind the scenes. I still feel that you (and she) are very brave. This is a great blog and I admire you a great deal.

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SHEHULK86 4/17/2014 3:23PM

  God Bless you!

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More fluids and lab work today

Tuesday, April 15, 2014

I thought I was seeing my oncologist today, but my appointment was just for lab work. Because I am still having the diarrhea, they decided to give me fluids again too. From what my nurse told me, it sounds like my oncologist's suspects it's inflammatory bowel disease also. He said all the chemo I have been on over the years may have caused it, if that is what I have. However, since we still don't know for sure if the Afinitor is causing the problems or not, I am still off of that drug for now.

My potassium went up to 3.4 (3.5 is normal) but again because of the diarrhea, he wants me to continue on another week with the potassium supplements, to make sure that level does not go back down. My nurse told me today also that having too low potassium can be bad for the heart too.

Anyway, I will be seeing my oncologist next week, and I'll have more blood work again.

About our storm Saturday night; now they are saying the damage was done by straight line winds, and they reached 75-85 mph for 3-5 minutes in my area; it's amazing how much destruction those winds caused within a few minutes. They are still cleaning up debris from the trees all over town.

Last night, it turned colder and began to snow. We had about 2 inches of snow here overnight, and it's only been in the low 30's today with a bitterly cold wind.

I am looking forward to going to church Easter Sunday even though I know I probably won't be feeling my best. Lately, my "tummy troubles" have been under control during that time of the morning, so I think I will be ok if I just stick to dry toast for breakfast that morning. I ordered a new dress to wear for Easter and just picked up the order at JCPenney this afternoon. I'm glad it fits me; I wanted something new but I just didn't feel up actually looking around in the stores right now with the health issues I am having.

You can see it here. I paid less than $36 for mine; using a 15% code I found, plus I saved about another $1.30 by going through Ebates.
www.jcpenney.com/dotcom/jsp/browse/p
roduct.jsp?containerId=JCP|EMAIL&ppId=
pp5003730624

  
  Member Comments About This Blog Post:

OPALMOON 4/17/2014 11:55AM

    Hi Shari,
Your new dress is absolutely gorgeous! May you have a lot of pleasure wearing it! It's good to hear your potassium level has improved and even better that it is being closely monitored since it can affect the heart. I hope the fluids help you to feel a bit better, and that the diarrhea improves very soon...you've had such a long run with it already. I admire your strength managing with something so draining. I hope your system can behave for you to enjoy the service on Sunday. It's incredible how damaging some storms can be and how long it can take for the clean up to be complete. Keep warm with that latest burst of snow....I hope you get some more sun soon - and hopefully for Sunday!
Keeping you in my thoughts and prayers - big hugs, Nattacia

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MOMMA_BEAR_69 4/16/2014 11:35PM

    I love your dress...it's beautiful!!! Glad your potassium is up. You are so right...being low is not a good thing either.
Prayers that you are feeling much better by Sunday and will enjoy a beautiful day and your Easter service.
Prayers, blessings and hugs,
Helen

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NPA4LOSS 4/16/2014 9:26PM

    I hope that you are feeling better soon and are able to go to the service on Sunday. emoticon

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PATRICIA441 4/16/2014 7:04PM

  Your dress is lovely Shari. If you can get a picture of you in it. So sorry you have been having a rough patch again. Hopefully, you will feel well for Easter . I love your background. God Bless you dear one. Hugs. Pat

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MADMIRANDA 4/16/2014 2:29PM

    Really lovely dress. Hope you get some improvement before Easter and get to church. Can't believe what terrible freakish weather you are having. Here it is beautiful. God bless

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BETHLOVESBIKING 4/16/2014 9:02AM

    Yeah, we got the snow too! Blech. Wishing you the best on this week and hope that your time at church on Easter goes well for you. emoticon

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LADYDARYA 4/16/2014 8:22AM

    What a pretty dress! Can you believe snow!!! I left the windows open the other night and regretted it in the morning for sure!

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YELLOW09RED 4/16/2014 7:58AM

    Hi,
good morning. It is a beautiful dress. Happy Easter. God bless you friend.
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I'm so glad the potassium went up.
Have a nice day emoticon emoticon

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ALLENJOSEPH 4/16/2014 12:20AM

    I always enjoy reading your blogs. Shari, you always do such as great job explaining things. I know you aren't feeling up to par, but I hope you aren't feeling as weak as you were recently. You sound a bit stronger.
I appreciate you telling us all about the storm you had over the weekend. That had to be scary, and then your pictures tell the story.
Wishing you a very blessed Easter, with love & prayers, Janis emoticon emoticon emoticon

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MYTURNNOW2013 4/15/2014 11:28PM

    Very pretty dress Shari and I am glad it fit so you can wear it on Easter. Fatwallet.com also has coupon codes. I use them often!

Detroit broke the snowfall record with the two inches we got last night. Warming back up a little tomorrow.

Comment edited on: 4/15/2014 11:29:27 PM

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ANGELBELIEVER 4/15/2014 8:58PM

    Hi Shari,

Love the dress. It's adorable. Glad it fits. Hope you feel better and can enjoy the Easter morning service. emoticon

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BETHGILLIGAN 4/15/2014 8:42PM

    Shari, I am so sorry you are still dealing with that diarrhea! I hope they figure it out and get it stopped. You must be miserable with it.
I like the dress. It is really cute. That should lift your spirits a bit.....even if you have to wear your winter coat over it!
Sorry to say we are having snow/rain here tonight with winds. emoticon

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CELLOPLAYER1 4/15/2014 8:16PM

    emoticon

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ENG_TV 4/15/2014 8:09PM

    Hope you are feeling better now that your blood work is a little better and you've had fluids. Your dress is cute! Enjoy it on Sunday.

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SIMPLELIFE4REAL 4/15/2014 7:37PM

    Cute dress! What a good idea to shop for it on line like that since you haven't been feeling good. I hope the extra fluids helped some. It will be interesting to see if you get any better this week as the medication gets more out of your system. I'm hoping it's not IBD, or if it is, that it's something that can be brought under control.

Hugs,
Kay

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MCFITZ2 4/15/2014 6:39PM

    The weather is a yoyo. 80's yesterday with high wind followed by rain and snow.
Today 30's more snow. Sunday they say will be much better.
Hope it will be beautiful for you. Feel better. emoticon

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DOILIEQUEEN 4/15/2014 6:26PM

  Beautiful dress! Glad it fits.

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Very Scary Storm Last Night

Sunday, April 13, 2014

Last night we had our first real thunderstorms of the season here in my area. There were no watches or warnings issued, but things got scary when a brief, but powerful storm moved through around 9pm. Before that, we were having some big booms of thunder, and the wind picked up. During the worst part of the storm, the lights started to flicker, and it sounded like the rain was coming at the house sideways. I was checking both online and on different TV stations for any special weather statements, but there weren't any. I was quite nervous though, and didn't know what to think. I just sat down on the couch, holding onto my two squirming kitties, and said a little prayer. There really wasn't time to think about heading to safer room in the house.

After the worst part of the storm was through, the power went out and stayed out. I don't have wireless internet, or a smartphone, so there was no way I could check anywhere to see what was happening. Our 3 local radio stations were of no help either; on Saturday nights, they all play prerecorded programming. By 9:30pm, except for the rain, it was quiet, so I figured that the severe weather was over and done with for the night. Nothing to do really but just go to bed. I took one of my Xanax for my nerves, and got into bed and did some reading with the aid of a book light until I was tired enough to fall asleep.

I got up around 7:30am. The power was still out. I was expecting just to see some branches and maybe some tree limbs down, but when I went outside to do some looking around in my neighborhood, I was shocked to see huge trees had been uprooted. From talking to other neighbors, it sounds like most of the trees that came down did so in such a way that they did fairly minimal damage to homes and vehicles, and no one was hurt. I only had some branches and small limbs down in my yard, a few shingles torn off my shed, and a cover blown off one of my bird feeders.

I haven't heard any official reports yet on the storm, but I think we had a small tornado; the damage seemed to be so random. There were yards were kids had left their toys outside from the day before, and they were left untouched, and then the next yard would have a tree down in it. I'm sure someone from the weather service will be investing it though.

While I was out walking, I had several neighbors that don't even really know me, but they were asking if I was ok and if my house was ok; that really touched me how much people care. And soon after that, I was hearing the sounds of chainsaws cutting up trees, and seeing neighbors getting together to help each other clean up the debris.

At first, it was predicted that our power would not be restored until around 11pm tomorrow night, but thankfully, mine came back on around 10am. I am so thankful for that, especially since so many do not have power yet. After I was able to get back online, I learned that the damage was pretty widespread throughout my town and the entire county; most of the businesses in town this morning were closed because they did not have power.

So much to be thankful for today, God was really looking out for me, getting me, my kitties, and my home through the storm unscathed.


This is one of the trees in my neighborhood.


Another uprooted tree, not far from my lot. The house shown here has been empty for a few years. This tree is near the path I walk to get to the mail room.



More downed trees

  
  Member Comments About This Blog Post:

CELLOPLAYER1 4/14/2014 7:31PM

    We had several storms roll through Saturday night, but nothing like this. Glad you came through without any damage.

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PIMPINELLAN50 4/14/2014 6:09PM

    Oh my goodness..that sounds very scary!Glad that you and the kitties are safe.
My cat is really freaked out by thunder and lightning,and hides under our bed.
With a severe storm (tornado?) like you experienced how did your cat's react?
Sounds like your neigbours are very caring people! emoticon

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YELLOW09RED 4/14/2014 3:28PM

    I'm glad your electric came back on for you and you are ok.
It's sad the trees fall in the storm.
Take care of yourself.
Thinking of you as you waiting to go see your doctor.
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OPALMOON 4/14/2014 2:00PM

    That was some storm! So glad you and the kitties and your house were safe, though the tree that came down near the path to the mail boxes shows how close the damage was. Thank goodness people in your area are caring enough to check if others are okay and doing whatever they can to give one another a helping hand. Sending prayers to all affected.
...and you too, Shari - I sure hope you are feeling a bit better.
Big hugs, Nattacia

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PINK-SOLDIER 4/14/2014 10:45AM

    Goodness sakes, weather can be so damaging, thanks for sharing your experience, be safe. emoticon

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LADYDARYA 4/14/2014 10:32AM

    wow! That was some storm! Glad your power came back on so quickly!

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BETHGILLIGAN 4/14/2014 8:15AM

    Wow! What a storm that was!! Thank goodness you, the cats and your house are OK!! I do not like storms like that, especially at night!

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ENG_TV 4/13/2014 10:11PM

    Wow! This is the season for thunderstorms, but you really had a bad one. Glad that the major damage missed you though. It is nice to know that you can count on neighbors when the going is rough.

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NPA4LOSS 4/13/2014 10:04PM

    I am so glad that you are safe. Sending prayers for all. emoticon

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ANGELBELIEVER 4/13/2014 8:33PM

    WOW, I'm praising God you are ok as well as others in your area and that no one was hurt. Could have been straight line winds or a small tornado from the looks of the damage. We get those kinds of storms here in Fl in the summer too. Very scary. Our electric goes out quite regularly during a good T-storm. We have a big generator we can use and have use it when we've had high winds from hurricanes or tropical storms. It's so eerie when there's no electricity...so quiet..too quiet.

Have a good night and hope there are no more storms like this one was. Where do you live Shari?

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GINNABOOTS 4/13/2014 6:14PM

    There was one about 2 or 3 miles north of us yesterday at around 5 pm. It knocked down so many trees. There were trees on houses and on cars. It was awful. I haven't heard that anyone was hurt, thank goodness. My niece and I were at the gym and when I was driving her home we were able to see all the damage. There was no warning either, it just hit. I thought it was a tornado, but friend said on the news they said it was straight line winds.

Glad everyone was alright in your area! Got your power back in good time too! Take care.



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FLORIDASUN 4/13/2014 5:14PM

    Holy tomato....what damage! I'm so thrilled and happy to hear that you didn't sustain any other than a few limbs and branches. You are blessed and lucky to have remained safe through such a horrific storm!

Praying for you and the others who had damage...this is not what ANYONE needs in this economy!

Hugs! emoticon

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SIMPLELIFE4REAL 4/13/2014 4:27PM

    Wow! I bet that was scary! We have a lot of thunderstorms here in the spring and usually a tornado somewhere close by. The area about 5 miles south of me seems to be a little tornado alley.

I'm so glad that you only had minor damage and the power is back on.

How do your cats deal with storms? I know dogs can get really scared by them.

I'm enjoying The Measure of Kate Calloway. I think I'm about half way through it. Such a sweet book! Thanks for your book review of it.



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MYTURNNOW2013 4/13/2014 4:19PM

    Wow! Glad you are ok!

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MTN_KITTEN 4/13/2014 3:28PM

    Thankfully everyone is OK.

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SLIMMERJESSE 4/13/2014 3:28PM

    OMG! That is definitely not your typical first storm of the season. So nice to have neighbors that care. Scary stuff.

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Slowly trying to get back to normal

Friday, April 11, 2014

It's discouraging to still not know for sure what is going on and what is causing intestinal bleeding and the diarrhea, and I am getting tired of (pardon the pun) feeling so crappy. I think that getting the IV fluids the other day helped me, and even though the potassium pills are contributing to the diarrhea, I am not feeling as light headed today, and my legs are feeling a little stronger when I am up standing and walking, so I think my potassium level is going back up.

When I had to start the potassium Tuesday evening, I was told to take 2 right away, then 2 at bedtime, then the next day just 1 pill 3 times per day, though my nurse called me Tuesday and told me to just take it twice per day instead until I see my oncologist next week and my levels will be checked again.

I was able to sleep better last night; only had to get up 3 times during the night to rush to the bathroom, which is an improvement. When it was at the worst, I was up every hour to hour and half during the night. Even though the diarrhea has slowed down a little bit, I'm still having some painful attacks.

I wish I had a definite answer as to what is causing all this, but just like with justice, the "wheels" of medicine often turn slowly. In the meantime, I am getting tired of feeling like I am just laying around the house. I will have to take it day by day, but I decided to slowly start getting back into my usual routine as much as I can, and that includes fitness. I figured that my Sit and Be Fit workouts would be safe enough for me too, and not tire me out too much. The last time I did a workout was April 2nd, and think I have taken enough time off.

I decided to do at least 10 minutes of Sit and Be Fit this afternoon, but once I got going, I was feeling good about it, and I ended up doing 27 minutes. I probably won't get my 500 Fitness Minutes trophy this month, but if I can get the 250 minutes one, I will consider that an accomplishment.


  
  Member Comments About This Blog Post:

FLORIDASUN 4/13/2014 5:10PM

    I'm sending you love and light...I wish I could just be there to give you a big ole' hug...carefully and to hold your hand! emoticon emoticon

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OPALMOON 4/13/2014 10:05AM

    Dear Shari,

You are very strong to get through all the trouble you've had with all this. I am sorry for all the pain on top of the inconvenience of constant trips to the bathroom. You are more than well entitled to feel 'crappy'! I hope the frequency and traces of blood diminish very soon. You have done so well to do your workout despite everything else - good for you! All the best for Tuesday if we don't hear from you again before then.

Sending love, prayers and big hugs your way,

Nattacia

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BETHGILLIGAN 4/13/2014 9:06AM

    Sure wish you'd get some answers for this situation! You must be exhausted! I admire you for doing Sit and Be Fit! Great job!! You are one determined woman!!

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RAESUN54 4/12/2014 11:34PM

    I hope they will find answers soon for you about what is causing you to feel as bad as you are. You are in my thoughts and prayers.
I am glad you felt well enough to try your Sit and Be Fit. Congrats on doing it 27 minutes. WAY TO GO.
I am sure you will have answers soon.
I hope you are able to sleep better and not be interrupted so much in the night.

Take care, Rae

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NPA4LOSS 4/12/2014 1:36PM

    My thoughts and prayers continue for you and your health. I hope that you can keep having some relief. YOu are such an amazing lady! emoticon

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ALLENJOSEPH 4/12/2014 10:12AM

    I must tell you again, Shari. You are my inspiration! I'm one of your many Fans.
I hope today finds you feeling better than the day before. I think when you need to be waiting to see the Oncologist, when the medicine doesn't seem to be working, and may be causing you to get sick from it, a person needs at least their feedback and approval on what to do until next appointment. To be plagued with diarrhea numerous times throughout the day and night, but as you said more at night, you need guidance if it's causing more problems. I hope you are getting some feedback from his office in between your appointments with him, unless your primary doctor has a lot of knowledge and is doing exactly what your oncologist would say.

I hope today is a better day than yesterday for you, Shari.
With my love & prayers for a dear Spark Friend, Janis emoticon

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YELLOW09RED 4/12/2014 10:08AM

    Good morning Shari,
I hope today is a nice day.
Feel better.
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Prayers for your waiting time till the appt. on Tuesday.
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NOMIS1 4/12/2014 9:53AM

    Wishing you well.

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LADYDARYA 4/12/2014 8:12AM

    Prayers.... emoticon

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BOPPY_ 4/12/2014 1:41AM

    I wish you feel better.

You always make me feel better! You are an inspiration!

Best,

Le
e

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PIMPINELLAN50 4/11/2014 8:55PM

    emoticon

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BETHLOVESBIKING 4/11/2014 8:33PM

    Glad to hear that your night time visits to the bathroom are down in number---and hope they go away completely. It would be great to have a good night's sleep. Congratulations on still doing your exercises even though you must be feeling really drained and tired from the diarrhea. Thinking of you!! Lots of love and hugs, Beth

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ANGELBELIEVER 4/11/2014 8:32PM

    Dear Shari,
I am so glad you still have that fighting spirit even with diarrhea and wanting to do some form of exercise. You have just encouraged me to do some sit and be fit ones since I'm out of the loop at Curves for now with my bronchitis. I need to be doing something.

I hope you find out some answers soon. The not knowing what is causing something is the hardest to understand I think. Of course we get impatient and want all the answers NOW! emoticon And of course, that doesn't work.

I will continue to say prayers that God will guide the Drs. to the right tests so you can get the answers you seek. emoticon emoticon

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CELLOPLAYER1 4/11/2014 7:08PM

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MADMIRANDA 4/11/2014 5:23PM

    You sound much more positive. I hope you feel better over the coming days. God bless.

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SLIMMERJESSE 4/11/2014 4:57PM

    In no way am I a doctor or making suggestions. Just curious to know if you take any type of vitamin supplements that can help you boost your system a bit. Whenever I'm struggling with my lung infection, and impatient to heal, I think of people like you and my cousin with ongoing needs for patience. I don't know how she or you do it; you are saints. Big hugs.

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ICEDEMETER 4/11/2014 4:53PM

    Glad to hear that you've got your fighting mode on and are taking your *life* back --- sure wish that the diarrhea would clear up more quickly for you though... You should be very proud for getting in such a great workout!

Strong thoughts for less bathroom runs, better sleep, and feeling like yourself very soon...

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SIMPLELIFE4REAL 4/11/2014 4:37PM

    I've been reading Life Over Cancer by Keith Block MD. A friend of mine recommended it. He recommends keeping up with some form of exercise even with diarrhea from chemo or rads. His view of the world is that it can actually help the patient feel better. I thought about you as I read that. Your blog and your experience today supports his view. I'm glad that it may have made you feel a little better. It is no fun feeling crappy all the time!

Thinking of you.

Hugs,
Kay

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