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First Halaven Chemo Yesterday

Friday, October 24, 2014

First, I will share some good news. My hemoglobin level before I had the blood transfusion Wednesday was 7.0; when I had my CBC done yesterday, it was up to 10.8, that is a huge improvement for me! My heart rate was down too, Wednesday while I was there, it never went below 100; yesterday, the first reading was 87.

My good friend Connie drove me yesterday. It had been awhile since we had seen each other, so the time went by quickly while we talked and got caught up.

The set up they have for the infusion area at the cancer center is pretty nice. Each treatment area is divided by a short wall, just enough to feel you have some privacy yet not feel closed in. There are 15 chairs, and each one has a window and a flat screen TV. There are recliners for the patients which have heat and massage, and a regular chair for a visitor. Because of space limitations, you can only have one other person with you in the infusion area. They also encourage you to walk around and visit with the other patients if you want to do so.

I had my CBC done again, and was started on fluids. The nausea med was combined with the steroid and that was a 30 minute infusion. The actual chemo went quickly; my nurse just pushed it into my IV line with a syringe over 5 minutes. Normally, I would have to go back the next day for a Neulasta shot, but with the first chemo, I didn't need it. I guess that is because that white blood counts don't really drop that much with the first one. I will start those next Friday.

The nausea meds started making me a little sleepy before we even left the cancer center. The steroids kind of gave me a short burst of energy around 7pm that lasted a couple of hours. I got kind of antsy and couldn't sit still, even though I knew I should be sitting and resting, I was up and down out of my chair. I also had some mild stomach cramping and abdominal cramps, which I am still having today, but I've had that with steroids before, so I know that is just temporary.

The steroid they gave me, Decadron, kept me awake almost all night. I fell asleep sometime around 4am but only slept 2 hours. I got up around 7:30am to feed the kitties and went back to bed til 11am, but never really did fall back asleep. I'm thankful that I had that blood transfusion before having the chemo; having a better hemoglobin count makes the lack of sleep much easier to handle. I'm going to ask next week for something to help me sleep on those nights; I think I would actually be feeling pretty good today if it weren't for the lack of sleep. My pain level in my hip and shoulder hasn't been too bad today.

I'm just trying to stay off my feet today, and trying to get some fluids down. Except for when I got back up at 11am, I haven't really had much of an appetite today; not really having problems preventing me from eating, I'm just not hungry. But I'm trying to make myself eat a little something every 2-3 hours.

I was really hoping today to tackle some of the clutter that has piled up during the weeks I wasn't feeling good from being severely anemic, but it won't hurt to wait one more day to start on that. Even if I wait til tomorrow, I still have 5 more days before the next chemo to get things done.

  
  Member Comments About This Blog Post:

NPA4LOSS 10/25/2014 2:22PM

    The loss of appetite could be from the GP too. Rest and take care of yourself. You can enjoy all of those books! I hope that you have a good weekend and look forward to seeing that you are feeling better! emoticon emoticon

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HANOVERLADY 10/25/2014 1:44PM

    Glad it was a better experience for you. The good news about not having a lot of energy - more time to READ!

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JANET552 10/25/2014 12:16PM

    I'm glad things went as well as they did and I hope you get some sleep tonight!

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RYDERSAUNT14 10/25/2014 11:22AM

    Hey, that is good news! Glad you are feeling much better but take it easy! I try to avoid taking steroids because they mess up my blood sugar. emoticon

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YELLOW09RED 10/25/2014 8:46AM

    emoticon God bless you Shari,
I hope today will be a good day for you.
Debbie


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PIMPINELLAN50 10/25/2014 5:51AM

    Happy that your first Chemo Session went well,and emoticon that the hemoglobin is way up!I did not know that Steroid's can cause severe insomnia...I hope the clinic can give you something to help you sleep next week.The 'clutter/housework/' will still be there when you are feeling more rested Shari...Have a relaxing weekend! emoticon emoticon emoticon

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GOANNA2 10/25/2014 1:01AM

    So happy for you Shari. It was nice of Connie
to take you and stay with you. Makes it more
relaxing for you to have someone there with
you and catch up with each other. Just take
care of yourself and don't worry about cleaning
until you feel stronger. emoticon

Comment edited on: 10/25/2014 1:01:49 AM

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JANIEWWJD 10/25/2014 12:50AM

    I pray that things continue going your way!!! God bless you!!!
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CELLA_P 10/24/2014 8:45PM

    emoticon on your having made such a smooth transition and good adjustment to the Halaven regimen thus far, Shari! And what a lovely, healthy jump in that hemoglobin level, too - ahh! I never realized how much the change could even affect a person's heart rate. No wonder you felt so anxious - I've always had a fairly low heart rate, and the only time it's gone above 100 was years ago, in a strenuous aerobic dance class :)

The infusion area sounds pretty comfortable - almost homey, even! I'm so glad Connie was able to help with the driving and that you had a nice catch-up chat, too emoticon

Dealing with the sleepiness from the nausea med and the Decadron hyperalertness (oh, steroids!) must feel like a roller coaster, but it sounds like you're handling the shift very well. Meanwhile, take good care of yourself and stay well-nourished and hydrated. The little bit of clutter will ALWAYS be there when you're feeling a little stronger, and in the bit scheme of things, it's pretty unimportant. Feel better! emoticon

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MOMMA_BEAR_69 10/24/2014 7:58PM

    So happy that things went smoothly for you. You can wait another day to start you decluttering. Just take the best care of you that you can. YOU DESERVE IT!!!
Prayers, blessings, and hugs,
Helen

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ANGELBELIEVER 10/24/2014 6:47PM

    I'm happy things went smoothly for you. Be kind to yourself at home. A little every day and you'll be done. emoticon

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ICECUB 10/24/2014 6:46PM

    I AM SO HAPPY YOU ARE FEELING BETTER AND YOUR HEMOGLOBIN LEVELS ARE HIGHER. DON'T WORRY ABOUT CLEANING RIGHT NOW. THAKE CARE OF YOU. GLAD YOU ARE NOT IN TOO MUCH PAIN TODAY.

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CELLOPLAYER1 10/24/2014 6:16PM

    It sounds like things went smoothly. emoticon

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CASSIECAT 10/24/2014 3:56PM

    That sounds really good overall! I'm happy to hear it. I get the decadron insomnia too, which is no fun, but hopefully tonight will be better for you.

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JUDITH316 10/24/2014 3:32PM

    I am encouraged seeing your levels looking so good, overall things are looking up...I hope you can get some rest today, I agree for next week's appointment that you ask for something so you can sleep that night. Your area sounds much better than I remember when I was a student medical lab tech, I did a study on Infant/Childhood Leukemia, and yes the treatment areas were like an assembly line, happy they have improved and you now can have some privacy. Take care Shari, and don't worry about your house, keep getting rested up and stronger, let today take care of itself, there IS always tomorrow...Big emoticon and my prayers continue for you always...

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PICKIE98 10/24/2014 3:31PM

    i am so happy that your first day went smoothly. Hopefully, fatigue will set you to sleep better tonight.

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SLIMMERJESSE 10/24/2014 3:26PM

    I'm glad about your levels being good. I know how steroid can keep you awake. Hope you get some rest today. Great about the short walls. I remember when I used to take my cousin and it was like an assembly line, I really felt the lack of privacy.

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Feeling better this morning

Thursday, October 23, 2014

First of all, I want to thank everyone for the prayers and support!

It was a long day yesterday getting my blood transfusion, and at the cancer center, they give Benadryl as a premed. It was just a low dose, but I am sensitive to it, so I wasn't feeling very good from that. It made me tired, but at the same time kind of wired too so that I couldn't sleep. I couldn't concentrate much on reading so I watched TV most of the time while I was there. I was kind of bummed about not feeling well enough to read, if you know me, you know if I don't feel like reading, I'm REALLY not feeling good!

After I was home a few hours though I started feeling better, and by 7pm, it felt like the Benadryl was finally wearing off. When I fed Timmy and Kallie (my kitties) their last meal of the day, I was able to bend over and pick their dishes up off the floor without feeling dizzy for a moment after standing back up. I also felt well enough to sit in my recliner to do some reading and watch a couple of TV shows before going to bed.

I also slept much better last night; before I had the transfusion, the rapid heart rate made it almost impossible to relax enough to fall asleep.

I still don't feel 100% this morning, but a lot better than I have felt in the morning for a long time. I even made scrambled eggs for breakfast, which was kind of a big deal for me, since in the last couple of weeks I didn't even have the energy to stay on my feet long enough to cook something on the stove.

I found out also that in addition to getting a CBC (complete blood count) before each chemo, I will also need to get the CBC done on my off weeks too. So even though the chemo will probably cause my hemoglobin to go down again, hopefully it won't fall to such a dangerous level again before getting a transfusion. I asked if on my off weeks if I could get my lab work done at our local hospital which is just a 5 minute drive from my house, and I was told that yes, I can do that.

And the next time, if there comes a time when I am not getting a CBC every week, if I start having those symptoms again, (the weakness, fatigue, and rapid heartbeat) I will call my oncologist and ask for a CBC. That was pretty scary having my hemoglobin so low and I never want to go through that again.

My chemo will be at 1:30pm today; I'm still a little anxious about it, but not nearly as bad as I was before. I realize now that what I thought was a case of "nerves" was actually the anemia. And even though I will need the Neulasta shot the day after each chemo, I was told I won't need it with the first one, so that is a big relief; 3 trips in a row to the cancer center is enough for one week!

  
  Member Comments About This Blog Post:

GOANNA2 10/24/2014 11:25AM

    Glad to hear you are feeling better Shari.
I hope the chemo goes well for you and
you can have a restful week ahead.
Take care and eel better soon. Thinking
of you. emoticon

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OPALMOON 10/24/2014 4:17AM

    Dear Shari,
I can well imagine that it took a lot out of you getting the blood transfusion done. It's good to know you are finally feeling a bit better now, and I am very glad that your CBC is going to be more closely monitored, especially when you've had low haemoglobin levels in the past. I hope all went well with the chemo...and that you will be okay going out again for the Neulasta shot. I am sure you will be glad to just have s good rest after such a busy week.
Take care - thinking of you as always.
Big hugs,
Nattacia

emoticon emoticon emoticon

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PIMPINELLAN50 10/24/2014 2:48AM

    I am so relieved that your transfusion made you feel better.Good idea to have your CBC checked every week and that you can have the blood test done at your hospital!Praying that the chemo went well today, and that you will feel a little bit stronger every day.
emoticon emoticon emoticon emoticon emoticon

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ICECUB 10/23/2014 7:21PM

    SO GLAD YOU ARE FEELING BETTER HOPE YOU HAVE A GOOD AND EVERYTHING GOES SMOOTH emoticon KEEPING YOU IN MY PRAYERS.

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SUSAN-FIT-N-FAB 10/23/2014 5:53PM

    emoticon

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CELLA_P 10/23/2014 4:43PM

    Shari, what encouraging news! Yep, when you don't feel up to reading, something surely must be afoot. I'm glad you and the doctors got to the root of it and that the transfusion was so restorative emoticon With chemo's potential to alter blood chemistry so dramatically, it's reassuring you'll be able to get those CBCs at your local hospital, minimizing the exhausting travel time. I know how much you love and care for your kitties, so when you're feeling so ill it's hard to tend to their needs, I would guess you're in real trouble.

So glad to hear your encouraging news! May you continue to do so, and I hope all goes well with the Neulasta, too. Be well, dear Shari! emoticon

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PICKIE98 10/23/2014 4:08PM

    How nice that you are getting into a normal routine. Prayers winging their way to yo....

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SMILINGEYES2 10/23/2014 3:37PM

    So glad to hear how well you are responding to the transfusion and treatment. It is good you can get the labs on off-weeks nearer your home. Know those kitties appreciate that you felt god enough to feed them when you got home.

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SMILINGEYES2 10/23/2014 3:36PM

    So glad to hear how well you are responding to the transfusion and treatment. It is good you can get the labs on off-weeks nearer your home. Know those kitties appreciate that you felt god enough to feed them when you got home.

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MOMMA_BEAR_69 10/23/2014 2:28PM

    So glad you are feeling better Shari! Continuing prayers and asking for blessings for you. WAY TO GO on being able to get your blood work done close to home!!! Hopefully your hemoglobin will never gets that low again. Glad they are staying on top of it! Hope you can enjoy a wonderful week.
Praying, blessings and hugs,
Helen

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LUCYCAN7 10/23/2014 2:17PM

  Sending prayers your way that the chemo is a big help.Glad to hear
the transfushion has started helping you. emoticon emoticon

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DAISYBELLEKIA 10/23/2014 1:46PM

    I'm glad you're feeling better. I am praying today goes well for you :)

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RAESUN54 10/23/2014 12:48PM

    Glad to hear you are feeling better. I hope you continue to do well during the treatments. I know with your levels going low that can be scary. It is good you can monitor at your hospital. I understand having to drive far for the treatment. When I had mine, I had to drive 45 minutes one way. Doing that twice a week was not easy. My daughter did the driving and she was/is a full time college student. She was a trouper.

I continue to send my prayers and thoughts to you during your chemo treatments and pray you don't have issues with the treatments. Remember to eat and rest.

Take care and God Bless.

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CRUISEGAL55 10/23/2014 12:25PM

    Shari, Very glad to hear the transfusion helped. I am praying the Chemo doesn't kick your butt. I'm glad Kallie & Timmy will be waiting for you, when you get home.
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SLIMMERJESSE 10/23/2014 11:01AM

    I love to hear good days for you and wish you more of them. I know what you mean about feeling so bad you couldn't even read. That's how I get when I get pneumonia.

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RYDERSAUNT14 10/23/2014 10:18AM

    emoticon Glad to hear you're feeling better.

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ANGELBELIEVER 10/23/2014 10:16AM

    I'm so happy you are feeling better. I pray the chemo treatments go well for you. You continue to amaze me, dear friend. emoticon

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ICEDEMETER 10/23/2014 10:07AM

    So very glad to hear that the transfusion has started helping, and stunned at all that you still accomplished while you were feeling so very, very badly.

Strong thoughts that chemo goes smoothly today, and that you just keep feeling better!

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No chemo today, hemoglobin too low

Tuesday, October 21, 2014

Once I got the the cancer center, and in the infusion area, my nurse drew my blood for labs and got me started on fluids. It was about an hour wait for the labs to get back, and because my hemoglobin was only 7.0, they could not do my chemo today.
My oncologist was called, and he wants me to have a blood transfusion first, which I will get tomorrow, then I will have my chemo on Thursday instead.

I'm not really surprised my hemoglobin was low, I was having symptoms of being anemic (extreme fatigue, feeling weak, pale, and a rapid heartbeat) but I wasn't expecting it to be that low. That's actually the lowest it's ever been, if I am remembering correctly. Since I haven't been on any actual cancer treatment for about 6-8 weeks though, I just attributed the tiredness to not feeling good because of my chronic pain, and the rapid heartbeat to anxiety or nerves over starting the new chemo.

In a way, it's a relief to know that my hemoglobin is low, because now I know there an explanation to why I have felt so crappy the last 2-3 weeks, and getting a transfusion can help with that.

I asked the nurse about what may have caused it to drop like that, and he couldn't tell me for sure, but he said with all the the chemo I've had in the past, and because of the cancer being in the bones, that my bone marrow is just getting "worn out".

It's been a struggle especially the last 7-9 days to just get through the day, and I haven't done much with my waking hours except to sit around. Somehow, most days I did muster up the strength to do my chair workouts, but for the parts of my workout that I can do either sitting or standing, I've been sitting instead, and I've only been doing 20 minute workouts instead of my usual 25-30 minutes. But I haven't said much about it in my blogs because I felt like I just being "lazy" and didn't want to admit to it, but now I know I was NOT being lazy, I truly couldn't do more.

  
  Member Comments About This Blog Post:

BETHGILLIGAN 10/23/2014 7:55AM

    Oh, Shari, I'm so sorry you've felt so bad! I hope that transfusion is a big help for you. Good luck with the chemo! Back on track!!

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YELLOW09RED 10/22/2014 7:26PM

    Hi, thinking of you. I hope the transfusion is helping.

Hugs for your evening and tomorrow.
God bless you,
Debbie

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PICKIE98 10/22/2014 4:24PM

    Oh Sweetie, , LAZY?? You are not lazy. Any movement you do to strengthen the body also strengthens the bones. Keep that in mind.

Eating beets, tuna, fresh spinach, chicken livers are so high in iron, along with prunes. Maybe just lifting a pop bottle while sitting in the chair..
bran muffins to counteract all of the iron so you are regular.

Poor thing! You will feel so much better after the transfusion. I eat oatmeal and Cheerios every single day.

I wish I could go there and help you, cook for you. Maybe your driving friend could stock you up on those iron high foods and help you prep them, You are so tired to do anything....


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JUDITH316 10/22/2014 3:00PM

    Sorry to hear about your hemoglobin being so low but am glad you now know what was causing you to have all these symptoms of fatigue and generally feeling low. Happy they caught it now and are giving you a transfusion, trusting this will turn things around and you will be feeling much better soon and you can move on with your treatment. My prayers continue for you my friend, you are such an inspiration to me and I thank you for your friendship & support! emoticon emoticon

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CRUISEGAL55 10/22/2014 12:51PM

    Shari.... isn't it just like a woman to think we're being lazy, instead of think why is my body acting this way? I am glad you are getting the transfusion. I was anemic when I went through menopause. I craved parsley. I knew every produce manager within 5 miles. I would buy 10-12 bunches of curly parsley 3-4 times a week. I would freeze the parsley & eat it that way... I was craving it! My friends thought I was nuts. emoticon I finally had blood work & there it was- Anemia. I hope I gave you a chuckle.
I am praying for you. emoticon Judi

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CASSIECAT 10/22/2014 10:51AM

    I hope the transfusion will help boost your energy! I'm sorry you have a delay now, but like you said, at least you have an explanation for why you've been feeling so low energy lately.
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PIMPINELLAN50 10/22/2014 4:53AM

    Sorry that your hemoglobin was low,no wonder that you have been feeling very tired.And No you are definitely not "lazy"!Hoping that the blood transfusion will have you feeling a lot better by Wednesday,and that your new chemo treatment will be gentle on you.
Wishing you much rest and peace in the coming days. emoticon emoticon emoticon emoticon


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OPALMOON 10/22/2014 4:48AM

    Dear Shari,
It is no surprise you have been feeling debilitated the last few weeks with this low haemoglobin count....and you haven't been lazy in least. I'm dealing with constant fatigue and don't get as much done as you, so all the exercise you have been doing is highly commendable. I agree with others that it's the time to be gentle with yourself and rest as much as your body needs.
I'm sorry it's been such a hard time for you. You have been through such a lot since coming off the last lot of IV treatment all those months ago. I hope not only that you feel better after the transfusion, but that your haemoglobin will be more closely monitored on account of your bone marrow condition.
Wishing you all the best with the transfusion and then the chemo treatment on Thursday, with prayers and warm thoughts coming your way.
Love and lots of big, gentle hugs,

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GOANNA2 10/22/2014 3:20AM

    You are definitely not LAZY Shari. I am sorry
that you are going through all this pain and angst.
I am praying that the transfusion will help you
feel better and that you can start your chemo.
Bless you my dear, you are the bravest person
I know. emoticon emoticon emoticon emoticon

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JANIEWWJD 10/22/2014 12:41AM

    God bless you, my friend!!! I have you in daily prayer!!!
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ANGELBELIEVER 10/21/2014 10:41PM

    Dear Shari, I don't think you know the definition of lazy. As far as I can tell from your blogs, you have NEVER been lazy. I agree that it's best to be gentle with yourself at this time until you start feeling stronger. But you always need to be mindful of being kind and gentle to yourself. Your medical issues are always behind what you think is being lazy. Please be kind and give yourself a break. You are so dedicated with your exercising and I am so proud of you. What a motivator you are for me. emoticon emoticon emoticon

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SMILINGEYES2 10/21/2014 9:44PM

    emoticon emoticon

In addition to all that is going on physically, the stress of treatments plus the waiting compounded the physical with the emotional. I am amazed how well you have held up. Hope you start feeling better soon. Keeping you in my thoughts and prayers.

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ICECUB 10/21/2014 8:52PM

    I AM SO SORRY YOU ARE HAVING SUCH A ROUGH TIME. I KNOW YOU ARE NOT LAZY. HOPE THE BLOOD TRANSFUSION HELPS.

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CELLOPLAYER1 10/21/2014 7:42PM

    emoticon

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JANET552 10/21/2014 7:35PM

    I hope the transfusion helps you get your energy back. I hope things can proceed for you and that you can feel good enough to do the things you want.

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LUCYCAN7 10/21/2014 7:13PM

  Glad that that transfusion will help you.It is very understandable why
you could not do your exercises.Hugs and Blessings emoticon

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CELLA_P 10/21/2014 7:11PM

    Ahhh, Shari...sending you big, gentle emoticon after reading what must have been such discouraging news for you... That was a very low hemoglobin count, to be sure, and I'm sorry it resulted in your feeling both so tired and yet anxious (from the rapid heartbeat). I'm sure it had to be rough just having to sit around for that hour and wait 'til the labs got back.

It's so reassuring to hear you'll be getting that transfusion tomorrow, and from what you've written in the past about them, they must make quite a positive difference in how you feel. Thursday's just around the corner; I just hope it's not a long trip for you to get there - so tiring!

Gee, of everyone and anyone I've ever "met" on Spark, you are as far from "lazy" as a person could EVER be! I hope you'll give yourself plenty of loving permission to be gentle with yourself right now, especially during what's such a physically - and probably emotionally, too - trying time (getting used to a new round of chemo, etc.). Be generous in getting all the rest you need. It's like medicine when we're feeling tired out, you know.

We're all thinking of you all the time! emoticon

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RYDERSAUNT14 10/21/2014 7:05PM

    emoticon to hear you are having a rough time. Hope you feel better soon. Hang in there! emoticon emoticon emoticon emoticon emoticon

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ALLENJOSEPH 10/21/2014 7:04PM

    I'm happy to hear you found out that you were not being lazy, but you were exhausted. Now you know you need a blood transfusion; I hope you will be feeling better soon.
emoticon Janis emoticon

P.S. I don't think you're capable of being lazy.

Comment edited on: 10/21/2014 7:06:07 PM

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UNICORN212 10/21/2014 6:43PM

    I am sorry to hear this. I hope things get better and your blood levels are able to hold their own after the transfusion. Make sure you get good rest and adequate nutrition.

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SLIMMERJESSE 10/21/2014 6:31PM

    I have been wondering how you're doing and glad you're getting the transfusion. Hoping you feel better soon.

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Pain clinic appointment

Wednesday, October 15, 2014

My pain clinic appointment went well. I saw the PA there, instead of my regular doctor. He's always been very helpful to talk too. He also worked at one time with my oncologist, so that helps too; he doesn't hesitate to consult him about me if he thinks it's needed, and having a background in oncology, he understands my other health issues rather than just the pain.

We talked mostly about the ongoing pain in my left hip, which is my biggest issue when it comes to pain. He is going to have me get an x-ray of it, to see if there is anything there that my last bone scan did not pick up. We'll see what those results are first, but I might also be getting a CT scan or an MRI of it too at a later date. He is hoping it will be something treatable with an injection though.

My next appointment is December 9th; the reason why I have to wait so long is that he wants to see me when my doctor is there, if it's something that can be treated with injections, and he is only there on Tuesdays. I also had to have a morning appointment so I could work it around my chemo schedule. But I am sure if it turns out to be something that needs attention before that, they will let me know.

I'm glad my pain specialist and the PA are not giving up on the hip pain issue, even if I have myself at times. This has been a problem for quite a few years; it first started when my cancer returned and spread to the bone; at that time, most of the bone mets were concentrated in that left hip. Over the years, I've developed arthritis in it, in addition to inflammation caused by the cancer and the radiation treatments I've had. When I first started getting injections, they did help, but gradually, they stopped working. But hopefully, the x-rays might be helpful in perhaps pinpointing the exact area the pain is coming from a bit more.

  
  Member Comments About This Blog Post:

JANET552 10/20/2014 6:24AM

    I'm glad you have such a great medical team and I hope they can find someway to help you with that pain. Good luck!!

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MOMMA_BEAR_69 10/19/2014 11:14PM

    Shari, So glad you have such an AWESOME doctor and medical team who works with you and actually listens to you! Hopefully the x-rays shows show them exactly where and what the problem is with your hip and can be treated easily and quickly.
Have a super week.
Prayers, blessings and hugs,
Helen

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PIMPINELLAN50 10/17/2014 6:15AM

    Good to hear that your doctor(s) and pain specialist, are working together
with you as a team!Hopefully they can figure out the exact area where the pain is coming from.And treat it so you can feel better soon.
Sending you love and prayers. emoticon emoticon emoticon emoticon

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CELLA_P 10/16/2014 10:02PM

    It sounds like you've got a highly competent, compassionate, and responsible medical team in place, Shari... and I know they, too, must be grateful to have such a mature and knowledgeable patient! You'll all get to the bottom of the answers you seek, and you'll collaborate in finding the best possible treatments, too... emoticon

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PICKIE98 10/16/2014 8:14PM

    After all of that hassle in the beginning, your medical team seems to be shaping up for you. Praying for all of you dear!

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YELLOW09RED 10/16/2014 3:42PM

    emoticon Hi Shari,
Hugs for your waiting time for the x-Ray. I hope he can help you.
Have a good afternoon.
Debbie
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GOANNA2 10/16/2014 7:24AM

    It's great to have caring doctors by your side.
Praying that if the injections are decided on,
that this help your hip pain. emoticon

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JUDITH316 10/16/2014 1:27AM

    My prayers are with you Shari, I do hope your Doctor's will be able to locate and determine the source of your hip pain, sounds like you have such a great support network at the Pain Clinic and with your Doctor's sounds like they are a Caring group there...Sending you BIG HUGS and of course my ongoing PRAYERS... emoticon emoticon

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JANIEWWJD 10/16/2014 12:40AM

    Your doctors sound like they really care. I pray that all goes well for you!!!
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Comment edited on: 10/16/2014 12:40:44 AM

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ALLENJOSEPH 10/15/2014 10:01PM

    I'm glad to hear you have such wonderful Doctors. It's always nice when a Doctor will take the time to explain things.
My love & prayers for you, Janis

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46SHADOW 10/15/2014 9:53PM

    All the best to you!

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ANGELBELIEVER 10/15/2014 9:31PM

    Good to hear your appointment went well and that the hip pain issue will be addressed. I pray it's fixable with an injection of some sort as well Sheri. emoticon

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SMILINGEYES2 10/15/2014 9:16PM

    Praying they can locate the source and treat the pain effectively. Sounds like you have an excellent team of health care providers. emoticon emoticon emoticon

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CELLOPLAYER1 10/15/2014 8:13PM

    emoticon

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LUCYCAN7 10/15/2014 7:15PM

  HOPEFULLY THEY WILL FIND OUT WHAT IS THE EXACT CAUSE
OF YOUR HIP PAIN,GREAT YOUR APPOINTMET WENT WELL.
HUGS AND BLESSINGS! emoticon

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NPA4LOSS 10/15/2014 6:12PM

    I have a lot of pain in those areas too. The Rheumatologist took xrays so I hope to find out information when I see her again.
I hope that they are able to find something that can help you with the pain. Keeping you in my thoughts and prayers daily. emoticon

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ICECUB 10/15/2014 6:05PM

    I AM GLAD YOUR APPOINTMENT WENT WELL. IT IS GOOD YOUR DOCTORS ARE ADDRESSING THE PAIN IN YOUR HIP. I HOPE THEY CAN HELP YOU.

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SLIMMERJESSE 10/15/2014 5:41PM

    I'm glad they're seeking a cause of the hip pain and hope it is something they can help with in mitigating (hopefully, eliminating).

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Teaching appointment at the cancer center

Monday, October 13, 2014

I had my "teaching" appointment at the cancer center this afternoon, it went fairly quickly. I got to the cancer center with almost 20 minutes to spare, and when I walked in, the nurse practitioner who was doing it was there talking to the receptionist when I walked in, and she took me right back to her office to get started.

A lot of the stuff we went over I was already familiar with, being the chemo "veteran" that I am. I also found out that I will be getting steroids with this chemo too; not too happy about that, but it's needed to prevent certain reactions. I've done steroids before with chemo, and the worst part about the steroids for me was not being able to sleep, and the feeling like my emotions were "crashing" on the day they wore off. This time, they will give me the steroids as an injection, instead of oral medication like I had before, so we will see if it's better or worse this time around.

I came home with a thick notebook full of information, and complementary digital thermometer. I also have one sheet of paperwork to fill out and bring along when I have chemo next week for the dietician.

  
  Member Comments About This Blog Post:

RYDERSAUNT14 10/16/2014 7:11PM

    Hi Shari,

Hope this goes well for you. The one thing I don't like with steroids is that they mess with my Blood Sugar.

Hang in there! emoticon

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RAESUN54 10/15/2014 1:27PM

    I had to take steroids in the past and I did not like what it did to me. I got all bloated and mood swings. I was losing weight and it put on 10 to 15 lbs. I hope that you will have a better time with them now.

I agree, you do deserve a medal for being a "veteran" with chemo. My prayers are with you that you don't have bad side effects if at all. When I had chemo, my bad days came a couple of days afterwards and last all of the weekend.

Take care an God Bless.

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LIVINGLOVINLIFE 10/15/2014 11:30AM

    My prayers are with you as you begin yet another round of chemo. You are amazing and a hero for maintaining your positive and can do attitude. You are a spokesperson for so many who are just starting on this special journey against cancer. Hugs and prayers. Pat

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DAISYBELLEKIA 10/15/2014 10:18AM

    I'm glad the appointment went well. You are in my prayers!

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SUSAN-FIT-N-FAB 10/15/2014 8:54AM

    I think you deserve medals for your veteran status! Hope the change in delivery method makes the steroids more tolerable for you. emoticon

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BETHGILLIGAN 10/14/2014 8:22PM

    So glad that appointment is over!! Now you can get started again. Hopefully, the steroids won't be as difficult this time. Thinking of you!!

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CASSIECAT 10/14/2014 6:39PM

    I'm glad the visit went smoothly and that you didn't have to wait. Good luck next week.
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PICKIE98 10/14/2014 5:43PM

    Not optimal, but just knowing that you will possibly crash, maybe you can plan to have something on hand to distract you.. reading of your faith, phone call with friend. .. Sparkathon blogging?? You know we are always here for you, you can blab, blog or blubber to us. we will understand. Nobody can be in your shoes, but we can be here as your shoe horns to support you.. Linda emoticon

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CRUISEGAL55 10/14/2014 3:07PM

    Prayers & Hugs to you.
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NPA4LOSS 10/14/2014 1:53PM

    One step closer to getting started. I know that you must be glad to having this first step over with. It sounds like they are trying to prevent some problems so I hope that you will have success with the steroids this time. I don't have the issues with the steroids injections for my knee and back as I do with the oral medications.
You continue in my thoughts and prayers. emoticon emoticon

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ANGELBELIEVER 10/14/2014 8:53AM

    I have re-subscribed because for some reason I wasn't getting notifications of your blog and so many others.

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OPALMOON 10/14/2014 8:47AM

    Dear Shari,
I'm glad you got today's appointment out of the way, and you didn't have to wait. There can be so many side effects from different medications....I pray you won't have any trouble with the steroid injections, and the whole process with the chemotherapy goes smoothly and successfully for you.
Hope you have a chance to catch your breath before your other appointments this week and they both go well.
Big hugs and warm, positive thoughts coming your way,
Nattacia

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MOONGLOWSNANA 10/14/2014 8:34AM

  Sounds like you are good to go next week. I'm hoping that the steroid injections will cover the side effects of the chemo and not cause any of the other effects. Your nurse sounds efficient and caring and I'm sure you will form a good relationship. She can use your experiences to treat her other patients. Teaching and experience goes hand in hand. emoticon emoticon

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GOANNA2 10/14/2014 7:14AM

    Shari, I just want to say that you are such an
inspiration to me. So courageous. I wish you
all he best with the steroids and your new
round of chemo. Have a good week. emoticon

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PIMPINELLAN50 10/14/2014 3:26AM

    Wishing you all the best with the new chemo treatment and additional steroids.Your grace,wisdom and courage are so inspiring.
Thoughts and emoticon.

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BOPPY_ 10/14/2014 2:10AM

    I know I've said all of this before, but I keep being reminded of it every time I read your posts. Your writing captures my attention. Every time. It's interesting. It's courageous. It's important.

You inspire me. In all kinds of ways.

Thank you.

Lee

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JANIEWWJD 10/14/2014 12:21AM

    God bless you!! I'm glad things are moving ahead for you. Next week will be here sooner than you think.
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ANGELBELIEVER 10/13/2014 11:29PM

    I wish you all the best on this round of chemo. You are in my prayers and will be daily. emoticon

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ALLENJOSEPH 10/13/2014 10:03PM

    So thankful how you share with us about your appointments and what they entail, Shari. I feel you give many of us courage and strength with your example of courageous strength.
You are always in my thoughts & prayers.
emoticon Janis

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LUCYCAN7 10/13/2014 9:52PM

  Wishing you luck with your steroids and the new chemo.Will keep
you in thoughts and prayers! emoticon emoticon

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CELLA_P 10/13/2014 9:13PM

    I'm so glad things went pretty smoothly at your appointment today, Shari. It's always such a relief when people and procedures are moving ahead on time so that you're not left with a wearisome wait on top of having to face the appointment itself. Sounds like you're an "old hand" at this, and they must've been grateful to have such a knowledgeable patient.

I've had an oral course of steroids before (for MS, almost two decades ago for an attack), and they can have such widely varying effects on people, can't they? I remember mine was methylprednisolone, and aside from giving me a weird metallic taste and that unforgettable (!) insomnia, I was lucky not to experience that emotional "crash" when they wore off. I seem to recall my neurologist giving me Ambien to help me sleep while I was taking them. I'm glad you let them know about your previous reaction and hope the injection might do away with the unpleasant crash. We're all thinking of you! emoticon

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ICECUB 10/13/2014 9:05PM

    GOOD LUCK WITH STEROIDS. I TOOK THEM FOR A WEEK A COUPLE YEARS AGO FOR PAIN. AND THEY REALLY HELPED ME.

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SLIMMERJESSE 10/13/2014 6:53PM

    I hope things go well with this new chemo.

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