Friday, February 21, 2014
Today I went to see a Physiotherapist and she told me I have Hypermobility Syndrome and have had it all my life.
She was amazed that no had realised it before now. She gave me a web address so I could learn about it.
So what does it mean?
Well basically that I can move my joints beyond the normal range commonly called 'double jointed'.
I could bend and move easily and move my joints with ease amazing people that I could do things they found hard to do. Things like standing with my knees straight and bending over to place my hands flat on the floor.
As a child I was told by the Doctor that I had Growing pains this was in fact the Hypermobilty Syndrome but was never mentioned.
This is a site about it
and these are the symptoms
I have all these
Joint hypermobility syndrome can cause:
joint pains, particularly after physical work or exercise – due to overstretching of the joint capsule (the structure that surrounds the joint) and ligaments (tough bands that link two bones together at a joint)
muscle aches and pains because your muscles have to work harder with supple joints
back pain and neck pain
a tendency to bruise easily
pain that gets worse through the day and better at night, after you have rested
fatigue (extreme tiredness)
night pains in children
In joint hypermobility syndrome, these muscles may be weaker than they should be and this leads to food progressing more slowly though your digestive system. This can cause a range of symptoms including:
stomach acid leaking from your stomach to your gullet, causing symptoms such as heartburn (a burning sensation or discomfort in the chest)
your stomach having difficulty emptying its contents into the small bowel, which can cause bloating and nausea (gastroparesis)
an overgrowth of bacteria in your bowels – this may cause symptoms such as diarrhoea, bloating and cramps
not being able to pass stools (faeces) as often as you usually do, or having to strain more than usual (constipation)
irritable bowel syndrome (IBS) – a disorder that affects the digestive system, causing tummy pain, diarrhoea and constipation
dizziness or fainting
sense of anxiety – feelings of unease or worry
When the Physiotherapist went through things with me she said that was why I had been miss-diagnosed so many times, they had not taken into account all the symptoms and seen them as one condition.
She realised this as soon as she started to examine my flexibility, for someone with osteo arthritis my hip flexibility is unusual. She then flexed my fingers and feet then asked all sorts of questions.
The problem with my back is a Prolapsed Intervertebral Disc part of the syndrome means this sort of thing can happen easily.
Having a high threshold to pain has meant I tended to work through things and that may or may not be a good thing.
Anyway I am now going to see the Physiotherapist in two weeks time and she will work on what treatment I need. In the mean time I am to do no exercise and rest.
At last I an answer to all the problems I have had what a relief. My Husband said 'I always knew you was different' and smiled. It is good to know and now I can get the treatment I need.