VELMATULIP   13,140
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VELMATULIP's Recent Blog Entries

Back At It

Saturday, September 28, 2013

Hi there! Did you miss me? emoticon

The new steroids the dr. gave me have definitely helped put me back in remission and I'm starting to wean off them. Many of the side effects that I typically have on Prednisone weren't as noticeable on Entocort. One nice side effect is that I was able to eat some salt without the migraine hangovers (I still hang back just in case). One not so fun side effect is that I have been craving sugar like MAD. UGH! I've never been a sugar person, so this always perplexes me.

If we're friends on Fitbit, you've probably noticed my steps are much closer to 5,000 (if that) than 10,000. The steroids affect my knees in a couple of ways. They swell off and on during the day (food, drink, activity, you name it, it affects my knee swelling), which is definitely uncomfortable. I've known since the first time I was on massive quantities of Prednisone that it changes the shape of my body. The area around my knees is included in that list. I get strange rounded pockets behind my knees...yeah not comfortable. I'm not sure if it's skin, fat, or just fluids. Then there's the pain. It comes and goes, but walking as fast as normal just isn't in the cards until this latest poison is out of my system.

In changing my body shape, there are other places as well. My belly gets very round, my neck gets extra fluid, and I get two hard sore areas just below my bra in the front and back. Again, I'm not sure if this is skin, fat, or fluids. Thankfully, I know from experience that this will also go away within a few months.

I'm on Entocort for another 3 weeks and after that the fluid will start to leave my body again. What to do in the meantime? Keep on keeping on. Without a plan, goals are not reached. And having a goal of becoming the healthiest me can't happen without a plan.

1 - I'm going to go weigh myself & put it on my tracker.
2 - I've joined a local organic foods buy share program where I pay $36 a week for a laundry basket full of organic fruits and vegetables, so we will be forced to eat more F&V weekly because I hate wasting food.
3 - I'm going to start tracking again.
4 - I'm going to go back to my small chunks of walking throughout the day instead of just shooting in the dark.
5 - I'm going to start looking at the many exercise video resources on this site and use them.
6 - I'm going to get active on the site again.

Thank you for the kind messages, cheers, comments and likes you've given during this whacked out time. I truly appreciate it.

  
  Member Comments About This Blog Post:

ZMADAME 12/12/2013 6:04PM

    I love your goal list. You've inspired me to make my own plan. I also like the organic fruit and vegetable idea. I don't know if they have that in my area. How did you find out about that???

Thanks for posting. You are definitely spreading the spark and inspiring others. emoticon



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RACEWELLWON 10/1/2013 11:18AM

    Great Courage with wonderful Goals ! emoticon

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MPETERSON2311 9/30/2013 4:55PM

    welcome back! I love your new goals!

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SUEPERWOMAN 9/29/2013 9:56AM

 

welcome back!

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2HAMSDIET 9/28/2013 11:46PM

    emoticon emoticon

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LINDA! 9/28/2013 9:56PM

    Happy to see you are back!

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68ANNE 9/28/2013 9:19PM

    Glad to see you are back and have a plan!

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MSHEL7 9/28/2013 7:11PM

    Great goals. Hope your back to feeling yourself soon. I did notice you were a little behind on the Fitbit. I like it better when I have competition-another great reason for you to feel better soon. We did miss you!!

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KERRYG155 9/28/2013 5:27PM

    Great goals and really glad they found a better treatment for you!

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KELLIEBEAN 9/28/2013 4:54PM

    You have great goals there! I have faith in you!

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MARILYNROBERT 9/28/2013 12:59PM

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BRENJET 9/28/2013 12:43PM

    You know just what to do!! So proud of you! We will all help you keep on keeping on!!! Welcome Back! emoticon

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1HAPPYSPIRIT 9/28/2013 11:43AM

    Glad you're back on track!

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_VALEO_ 9/28/2013 11:35AM

    Of course, we missed you! And I am so glad to read news from you.

The side effects of the steroids are not pleasant, but it will go away. Just hang in there!
You know that all your efforts and plans will be rewarded after these 3 weeks! Keep pushing!
Even if you cannot be as active as before, you have a great plan and goals... You know the saying: 70% diet; 30% fitness! Just focus on what is doable for your body and your current condition.

Good luck on your sugar craving!

And more importantly, get well soon!


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SCRAPPINPOLLY 9/28/2013 11:27AM

    Those are great goals! Good luck with them!

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*Sigh* More Steroids

Wednesday, August 21, 2013

This three amazing words spoken to me after my last colonoscopy were such a lifeline. "You're in remission!" I had looked forward to them for 22 months while I was poked and prodded, scoped and tested. I never thought to ask at my follow up appointments the question that no one with ulcerative colitis (or any autoimmune disorder) wants an answer to, "how often should I expect a flare?"

*Sigh*

Those of you who read and/or comment often (aka my support system) may have noticed that I've taken a LOT fewer steps this week. I haven't commented as much. I haven't been as present on SparkPeople.

I knew first thing Monday morning that something was wrong. My entire body hurt as though someone had hit me with a truck. I creaked out of bed and eventually made myself go to work. I went to the bathroom...a LOT...and went about my day with no energy. Yesterday was a repeat so I took my Lomotil and kept moving forward. Today I almost left work at 9am (I got there at 7 after driving an hour to get there) because my upper back was hurting so bad. The Lomotil wore off and I had to take it again. I gave in...I called and left a message for my GI nurse hoping I had something else, anything else. My favorite nurse called me back and said she'd call my head dr with all my symptoms (nausea, big D, joint pain, muscle pain, fever...sounds fun huh?) she emailed me back (we have a great relationship) after I emailed her my temp when I got home (99.9). She said the words I was dreading all week...my PA wants me to start a new script...a steroid that was just approved for ulcerative colitis. NOOOOOOOOOOOOOO!!!!!!

Steroids make me mean. Steroids make me swell (any sodium goes straight to my knees & face). Steroids make me have severe night sweats. Steroids give me insomnia (3 hours sleep tops).

On the other hand...steroids remove the inflammation and make my immune system weak; therefore, making my body stop attacking my colon...fun huh?

So, it looks like I'm back on the rice and water diet (to give my gut a rest for a while). And I won't be able to walk as many steps because it is just so painful. I will walk as much as I can, but running in the bathroom is out. emoticon

  
  Member Comments About This Blog Post:

KML410 8/27/2013 9:54PM

    Sorry you are not feeling well. Hope you are feeling better soon! emoticon

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LOVELYPAMPA 8/24/2013 10:54PM

    I've missed you on the msg boards and noticed your steps on Fitbit but I wanted to give you your space. I was surprised as you're always in high spirits and very cheery and wondered what happened. Until I read your blog.
Hang in there, hun, we all love you and your awesome attitude and wholesome personality. You've come a long way. I know you can beat this. You have to be strong and tough for you and your body. If your doctor says complete rest that also goes for your new best friend 'Fitbit'. So, check with the doctor to make sure it's ok as walking is an exercise.
Lots of love and hugs!!! And we're all here for you anytime.
emoticon emoticon emoticon

Leader-40 Somethings with 25-49 lbs to lose
Leader-40 Somethings Walking Fitness Workout Team

Comment edited on: 8/24/2013 10:57:14 PM

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_VALEO_ 8/23/2013 5:59AM

    Sending you good and healing vibes! Sorry that you had to go through all that! emoticon

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JOJOSLIVIN 8/22/2013 9:33PM

    Bummer. Hope you get well soon and off the meds ASAp

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VELMATULIP 8/22/2013 8:33PM

    The doses every other day is only when I'm coming off to minimize the withdrawals. This particular steroid is specifically for ulcerative colitis & is extended release. Took the first dose today.

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68ANNE 8/22/2013 8:14PM

    I am so sorry.
Can you ask them if you can do a dose every other day? That is what my doc has me on and it keeps the side effects down.

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BRENJET 8/22/2013 4:11PM

    You are in my thoughts!!! Rest and get well soon!!

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KERRYG155 8/22/2013 11:39AM

    Hope you get some quick relief-that sounds painful. Take care!

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MPETERSON2311 8/22/2013 9:58AM

    Oh no, I am so sorry to hear about all this. I hope you get to take it easy and feel better soon. We're here to support you!

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MADAMES 8/22/2013 8:49AM

    Hope this time will be better with the new medication!


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MOTHEPRO 8/21/2013 11:43PM

    emoticon emoticon

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DS9KIE 8/21/2013 10:40PM

    emoticon emoticon emoticon emoticon hope you feel better soon

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KELLIEBEAN 8/21/2013 10:25PM

    Wow! I am SO sorry you are going through this!

I'm thinking about you and hoping this new script won't be as rough on you!

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2HAMSDIET 8/21/2013 9:39PM

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MSHEL7 8/21/2013 9:27PM

    Okay, so that does not sound fun at all. I am so sorry you are not feeling well and hope they help you get things regulated soon. Just do what you can, as sometimes that is all that you can do. Praying.

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This Week's Realizations

Friday, August 16, 2013

I had a few ďAhaĒ moments this weekÖ emoticon

1 Ė Changing the way that I look at goals, makes them more achievable. Iíve always known that looking at needing to lose 40 pounds is too daunting for my mind to wrap around. emoticon I know what I looked like 10 years ago at my goal weight, but just thinking about losing back to that weight makes me want to just go eat an entire container of soy peanut butter ice cream because the goal is so big in my mind. So I set mini-goals to reach my big goal. Iíve made lists. Iíve changed habits. Iíve added more fiber and water. I havenít lost the 40, but I know Iíll get there. emoticon

2 Ė I FEEL better! I feel like Iím moving towards something instead of just existing. Iím no longer just a slug moving from event to event. emoticon

3 Ė The more steps I get in a day, the less tired I feel during the day. That makes absolutely no sense to me, but I actually feel more energized with more steps. Sitting around watching tv or riding in a car makes me physically exhausted! emoticon

4 Ė I donít get enough sleep because I truly donít want to go to sleep. I feel like a silly 3 year old who fights sleep every night. In fact, Iím 40Öand fight sleep every night. I literally donít want to turn off the light and go to sleep. I realized last night that itís because Iím scared of what frightening things happen in my sleep. Or waking up terrified and confused of where I am and whatís happening. One night I woke up after just turning off the fan in my sleep in the middle of the night. My husband asked me if I had turned off the fan & it freaked me out quite a bit waking up like that & not knowing where I was and how to get back to bed! I made my husband turn on the light just so I could find the bed again. Other nights I jump out of bed due to spider/snake/trucks coming through the walls, etc. Good times! Now that I know about the reason, I will work on a better before bed routine to calm myself before going to bed to see if that helpsÖno pills for meÖI woke up in a burning house once and never want to be so completely drugged out of it that I canít hear the windows popping out (thatís what woke me up).

5 Ė Using a device for my step count instead of a simple pedometer makes me more accountable. I canít round up. I canít say that I did 30 minutes of active walking around the neighborhood (thinking I really did) when it was really only 20 minutes of walking and 10 minutes of standing around while waiting for the dogs to sniff things out. I also canít look at it and say, ďI had to walk more than 1,000 steps in the last 2 hoursÖmust be something wrong with the pedometerĒ. I now only add things to my fitness tracker that I do without my Fitbit, such as swimming, or strength training.

6 - Finally, I can't do this alone. My SparkFriends push me every day to do more, track more, and move more. They encourage me when I do well and lift me up when I feel like I've failed myself.

Today is a new day. What is behind me cannot be changed. Moving forward to see what realizations I can achieve next week is exciting! emoticon

  
  Member Comments About This Blog Post:

68ANNE 8/18/2013 10:37PM

    Wow, I really learned some things reading this and of course see a bit of me in there too. oops
you are really doing awesome!

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MOTHEPRO 8/17/2013 2:29PM

    emoticon

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GRATEFULWYO 8/17/2013 12:39PM

  What an impression amount of work you have done! I hear what you say about setting and celebrating smaller goals.

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AGILECAT 8/17/2013 10:29AM

    Sometimes, simply airing our worries gives us more power over them, and I hope doing so will help you sleep more and better at night. I've struggled with insomnia for the past month, and sometimes I take 1/4 to 1/2 of a sleep aid just to kick-start the process, but I can totally see why mindful meditation would the better route for you. You are on the right track with all your goals. Best of luck!!

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DAWNSJOURNEY 8/17/2013 10:07AM

    What Awesome goals and accomplishments .. WE can do it Together ... Taking care of one thing At a time ..

hugs and light ..
Dawn

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MIRAGE727 8/17/2013 8:07AM

    You're embrace the lifestyle and you thought process shows it! Stay strong, focused, and be well!
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LOVELYPAMPA 8/17/2013 4:11AM

    Your blog is better than awesome!!! Forget the weight and forget the scale for now. Just enjoy being healthy. Because, I know you're losing fat and gaining muscle at the same time. Hang in there with me and everything will fall into place.
For your 'walking in your sleep'. I think I have a simple solution for you. These days you can purchase those sensor night lights that turn on/off so you won't fall during your sleep walking. Take a closer look at your daily carbs. Especially those coming from processed foods. And walk in place before going to bed. Your sleep walking will get way less and eventually be gone and you'll sleep comfortably and wake up refreshed. It's not an overnight solution as the body needs to detox from those carbs. I'm not saying add more protein but just cut back on the carbs. Why do I know this? And how do I know this will work? Guess.
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Leader - 40 Somethings with 25-49 lbs to lose
Leader - 40 Somethings Walking Fitness Workout Team

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_VALEO_ 8/17/2013 2:15AM

    I don't want to play Freud (just waxed my mustache! ;D), but I am not surprised that you don't want to go to bed or don't sleep well if you had to wake up once in a burning house.

I also (from time to time, mind you) experience these "high" moments. Keep this feeling alive and keep up exercising to reach your goal!

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MSHEL7 8/16/2013 11:31PM

    Love this blog, actually some of these I used to do to and still would without my fitbit-walking around waiting for the dog-that's me. This is a wonderful way to document things you want to do and are doing. Great job.

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KELLIEBEAN 8/16/2013 10:11PM

    Great blog. You are really facing your issues head on. I think good, calming bedtime routine will help. Disconnect from all electronics, don't watch the new etc.

Keep moving forward!

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REMEMBER_THIS 8/16/2013 9:52PM

    emoticon emoticon emoticon emoticon

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KERRYG155 8/16/2013 9:36PM

    Good blog. It's good to face the issues and find the answers. I think we all tend to think we move more than we do when a lot of that time is spent just standing. It burns more calories than sitting but still not as much as walking! lol I have problems sleeping at night but not because of anything as awful as a fire. Keep up the good work.

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LARISSA238 8/16/2013 8:59PM

    You can do it! You are awesome! I can't wait until I get my FitBit. It's my reward for not eating fast food more than once a week in the month of August. I used to be a fast food addict, spending hundreds of dollars a month on fast food. Now I have it once a week and I'm good. That's something you have to remember, too- you have to reward yourself for meeting your goals. They don't have to be big (like my FitBit), but still, something like a new bubble bath for losing 5 pounds. I love bubble baths! Or a pedicure, massage, something to look forward to. Just keep pushing!

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2HAMSDIET 8/16/2013 8:46PM

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Numbers game

Wednesday, August 14, 2013

So....how do you think I did yesterday with a plan of spreading everything out?

8-I still struggle getting more during the day...especially Taco Tuesday because I'd rather have beer than water with tacos. I did get in 8 glasses, but had to drink 3 before bed. FUN! emoticon

30-I woke up and did a few minutes of yoga...my body was NOT happy bending forward first thing in the morning. I wasn't doing anything strenuous, just sun salutations. I figured my body wanted to ease into it, so I stopped and finished getting ready for work. I didn't swim because we got home so late and took a rather long walk, but Fitbit says I was active for 137 minutes yesterday, so I was happy.

130-Ummm not there yet. emoticon

1500-I stayed within my calorie range, but I felt like I was over, so not sure what happened there.

10,000-Getting 600+ per hour was quite helpful to reach my goal. It made me more conscious about how much I moved hourly instead of just a couple of times per day. I still had to walk around the house for the last 1500 steps (after sitting too much for 2 hours at Taco Tuesday), but it was worth it and I made it to 10,000. emoticon

Overall, I was quite impressed with myself. I'm working from home today, so I'll get in some treading and laps in our pool this afternoon after we go walk around a few stores and libraries.

For those of you who want to join our 40 Somethings Walking Fitness Workout Team, here is the link www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=60775


I warn you, it's an active team, so be ready to move your body! emoticon emoticon emoticon

  
  Member Comments About This Blog Post:

LINDA! 8/16/2013 6:45PM

    emoticon

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REMEMBER_THIS 8/15/2013 3:34PM

    emoticon emoticon emoticon emoticon emoticon

emoticon ~B

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JOJOSLIVIN 8/14/2013 10:08PM

    Yeah! Great job! Hope you had a great day......

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68ANNE 8/14/2013 8:30PM

    Aha
The manageable goals are working!
yippee

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2HAMSDIET 8/14/2013 8:22PM

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DS9KIE 8/14/2013 8:05PM

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_VALEO_ 8/14/2013 4:32PM

    Good job on breaking your Fitbit goal into smaller and doable time units!

I hope you've been enjoying your workday from home, and been able to take advantage of this day without a looooooooong commute.

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MPETERSON2311 8/14/2013 2:43PM

    way to go!

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KERRYG155 8/14/2013 1:22PM

    Good job getting those 10,000 steps in even with Taco Tuesday! Where do you go for your Taco Tuesday?

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2BEHEALTHY2014 8/14/2013 11:38AM

    Great job!

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EMTCHICK109 8/14/2013 10:51AM

    emoticon emoticon

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MSHEL7 8/14/2013 10:47AM

    Well, it sounds to me as if you did really well. You got it all in and are working toward a goal. Great job. Have fun at the stores and libraries.

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8, 30, 130, 1500, 10,000

Monday, August 12, 2013

You know what those numbers are, right? Goals! emoticon
8- Glasses a day emoticon
30- Minutes a day emoticon
130- Goal weight emoticon
1500- Calories (depending on the day) emoticon
10,000- Steps per day emoticon

It looks a little daunting, but you know what? With a little planning, I can achieve every one of them! emoticon The problem is, I haven't been planning. I've been just shooting in the dark & scrambling (or cringing) at the end of every day.

So, let's see how I can change that bad habit step-by-step...
8- I've been drinking 8 glasses, but at least 4 of those glasses have been before bed because I haven't planned to drink more throughout the day. So, I plan to drink 2 as soon as I get up, 1 as soon as I get to work, 2 with each meal, and 1 before bed (with my night meds).

30- for the most part, Fitbit has TOTALLY helped me achieve this one, so I'm not worried about it as much. I do need to get back to swimming more laps, so I'll plan on 15 minutes of laps and 15 minutes of something else (yoga, a video, dumbbell routine, etc.)

130- Well, that will happen as my body gets healthier and sheds the fat. emoticon

1500- I've stayed within my calorie range most days, so I'm happy with this number.

10,000- Here's the biggie. I TOTALLY thought I had this one in the bag before I got my Fitbit. I just knew that parking as far as I do from the door, walking up and down the stairs in the garage, going to the other end of the tunnel to get breakfast, walking quite a ways out of my way to go to lunch, etc. I was absolutely POSITIVE that I was reaching 10,000 every day. emoticon Not even close!

I have plenty of friends on Fitbit that taunt me and cheer me during the day (I can always use more!). LOVELYPAMPA started a new group for those of us in our 40s to get in more steps and other exercise. I joined the 10,000 step challenge in that group to push myself daily to get the steps. Unfortunately, I find myself running in my bathroom at night trying to get in the last 2000 steps. emoticon emoticon

So, let's break it down into manageable chunks to see how I can reach my daily goal because, let's face it, when you're used to hitting 7,000, finding an extra 3,000 every single day can be daunting! I'm awake about 16 hours. 2 hours of that is driving, so that leaves 14 hours to do 10,000 steps. I get at least 1500 steps walking the dogs at night with my husband. That leaves 8500 steps to accomplish on my own. So, breaking that down hourly, that's 610 steps per hour or 305 steps every 30 minutes. See, that's much less daunting than 10,000...don't you think? And anything above and beyond is a bonus! I love bonus days!! emoticon

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  Member Comments About This Blog Post:

LOVELYPAMPA 8/14/2013 2:12AM

    You and and your numbers..wink..wink. This the best blog ever! Thank you for breaking it down beautifully. And I'm all flustered for mentioning my name and our group. Actually, thank you as it really makes me work harder towards our teams.

emoticon emoticon emoticon emoticon

Leader-40 Somethings with 25-49 lbs to lose
Leader-40 Somethings Walking Fitness Workout Team

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JOJOSLIVIN 8/13/2013 10:20PM

    Great Plan. Great reminder on breaking things into smaller less daunting goals! THANKS!!!!!!!!!!!!!!!!

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68ANNE 8/13/2013 9:56PM

    Absolutely do-able!

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DS9KIE 8/13/2013 9:30PM

    emoticon

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2BEHEALTHY2014 8/13/2013 11:00AM

    These are good goals. I like the way you broke it down.

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MOTHEPRO 8/13/2013 10:47AM

    Great plan!

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WHITEFEATHERONE 8/13/2013 8:29AM

    You go girl! you can do it! emoticon my name is Cherokeesong & I would like to join that group that you were speaking about, How do I do that & join other groups on here? Reading your Blog has really made me even more motivated! Keep it up! emoticon

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HOLLYM48 8/13/2013 6:48AM

    emoticon emoticon
Maybe a treadmill could be on your shopping list! I love mine.

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LOPEYP 8/13/2013 5:14AM

    Whatever it takes to meet that fitbit goal!

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_VALEO_ 8/13/2013 1:05AM

    So that's why you drink before going to bed... to run to and in your bathroom! emoticon

Confession: yesterday night I was running like a mad runner in my kitchen just before midnight as if my Fitbit and I were about to turn into pumpkins!



Comment edited on: 8/13/2013 1:06:32 AM

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ZMADAME 8/12/2013 10:48PM

    Love your goals. Thanks for sharing.

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LARISSA238 8/12/2013 10:30PM

    Good luck with your plans! You seem to have everything worked out. It's hard getting 10,000 steps in... I don't know how many I do a day, but I wouldn't be surprised it if was only 2,000. I don't do a lot. but I'm planning on getting a FitBit myself (if I reach my August goals I'm getting myself one) and I'm on track for that! I know you can do this!

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TAARON69 8/12/2013 10:15PM

    It sounds like you have made good plans. I agree breaking it down sounds and looks more attainable. You've got this! emoticon

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MSHEL7 8/12/2013 10:06PM

    Sounds like a wonderful plan. Love the thoughts on less daunting goals. Smaller the better sometimes is best. Great job.


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MRSKATEDUVALL 8/12/2013 10:06PM

    I could almost echo your list.

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SARIANEC 8/12/2013 10:00PM

    oh - and I march in place while folding laundry!

I work my steps into a weekly goal instead of daily. I shot for 77,000 weekly.

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SARIANEC 8/12/2013 9:58PM

    have you considered the Biggest Loser Challenge on Spark? Its broken out into teams and there are challenges each week the really reinforce planning.


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WALLPER26 8/12/2013 9:37PM

    Great idea!. I plan to use some. Keep up the good work!

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REMEMBER_THIS 8/12/2013 9:35PM

    I can never get those steps in!!!
I have an idea.... you could walk to work. LOL!! JK!!

You'll get there! I know you will. You are doing great even if you don't think so!
Recognize what you HAVE done rather than criticize what you haven't done!!

I'm proud of you!
xo Beni

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KERRYG155 8/12/2013 9:35PM

    Great list! I have managed to get my 8 glasses of water in today with most of it during the day. I need to work on getting my calories below 1200 to lose some weight.

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TRYINGTOLOSE64 8/12/2013 9:25PM

    You can do it!! One day at a time!!

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