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FD cannot be prevented. However, through genetic testing, people of Ashkenazi heritage can find out whether they carry the mutated IKBKAP gene before they start a family. A genetic counselor can explain a couple's risk of having a child born with FD.

In addition, special screening tests for FD are available in a small number of medical centers that focus on FD research. These centers are located in the northeastern United States and in Israel.

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